{
  "dataset": "What Ontario publishes about the autism waitlist",
  "description": "Publication-gap matrix: which waitlist measurements the Ontario government publishes, which it does not, the sequential wait stages families actually face, and the undercount waterfall layers with confidence levels.",
  "publisher": "End The Wait Ontario",
  "publisherUrl": "https://www.endthewaitontario.com",
  "license": "https://creativecommons.org/licenses/by/4.0/",
  "sourceOfTruth": "lib/data/undercount-sources.ts",
  "statsSsotLastVerified": "2026-08-10",
  "sequentialWaits": [
    {
      "id": "referral",
      "label": "Referral to assessment",
      "durationMonths": 12,
      "displayDuration": "6-18 months",
      "tracked": false,
      "source": "Trillium Health Partners FOI (Mar 2024)",
      "sourceUrl": "https://www.trilliumhealthpartners.ca/"
    },
    {
      "id": "assessment",
      "label": "Diagnostic assessment",
      "durationMonths": 6,
      "displayDuration": "3-12 months",
      "tracked": false,
      "source": "Ontario Autism Coalition parent surveys",
      "sourceUrl": "https://ontarioautismcoalition.com/"
    },
    {
      "id": "registration",
      "label": "OAP registration processing",
      "durationMonths": 2,
      "displayDuration": "1-3 months",
      "tracked": false,
      "source": "OAP program guidelines",
      "sourceUrl": "https://www.ontario.ca/page/ontario-autism-program"
    },
    {
      "id": "oap-queue",
      "label": "OAP waitlist (Core Clinical)",
      "durationMonths": 36,
      "displayDuration": "5+ years",
      "tracked": true,
      "source": "Ontario Autism Coalition FOI update (Dec 2025)",
      "sourceUrl": "https://ontarioautismcoalition.com/"
    },
    {
      "id": "don",
      "label": "Determination of Needs",
      "durationMonths": 4,
      "displayDuration": "2-6 months",
      "tracked": false,
      "source": "OAP program guidelines",
      "sourceUrl": "https://www.ontario.ca/page/ontario-autism-program"
    },
    {
      "id": "provider",
      "label": "Finding a provider",
      "durationMonths": 3,
      "displayDuration": "1-6 months",
      "tracked": false,
      "source": "Ontario Autism Coalition parent surveys",
      "sourceUrl": "https://ontarioautismcoalition.com/"
    }
  ],
  "transparencyTable": [
    {
      "metric": "OAP total registrations",
      "published": true,
      "source": "FOI / OAC",
      "notes": "Published via FOI requests"
    },
    {
      "metric": "Active funding agreements",
      "published": true,
      "source": "FOI / OAC",
      "notes": "Published via FOI requests"
    },
    {
      "metric": "Core Clinical enrollments",
      "published": true,
      "source": "FOI / OAC",
      "notes": "Published via FOI requests"
    },
    {
      "metric": "Diagnostic waitlist (province-wide)",
      "published": false,
      "source": "N/A",
      "notes": "No centralized tracking"
    },
    {
      "metric": "Average wait time by region",
      "published": false,
      "source": "N/A",
      "notes": "Not released"
    },
    {
      "metric": "Children aged out without services",
      "published": false,
      "source": "N/A",
      "notes": "Not tracked publicly"
    },
    {
      "metric": "Funding lapsed by year",
      "published": true,
      "source": "FAO Reports",
      "notes": "Published in FAO reviews"
    },
    {
      "metric": "Cost per child served",
      "published": false,
      "source": "N/A",
      "notes": "Derivable from FAO data"
    },
    {
      "metric": "Administration vs. therapy ratio",
      "published": false,
      "source": "N/A",
      "notes": "Not officially broken out"
    },
    {
      "metric": "Provider capacity by region",
      "published": false,
      "source": "N/A",
      "notes": "No public registry"
    },
    {
      "metric": "Outcomes after intervention",
      "published": false,
      "source": "N/A",
      "notes": "No public outcome data"
    }
  ],
  "waterfallLayers": [
    {
      "id": "official",
      "label": "OAP registered",
      "value": 71263,
      "displayValue": "71,263",
      "color": "official",
      "confidence": "published",
      "source": "CBC FOI Jan 2026"
    },
    {
      "id": "diagnostic",
      "label": "Diagnostic wait",
      "value": 15000,
      "displayValue": "~15,000",
      "range": {
        "low": 6113,
        "high": 50000
      },
      "color": "diagnostic",
      "confidence": "range",
      "source": "Trillium FOI Mar 2024"
    },
    {
      "id": "aged-out",
      "label": "Aged out",
      "value": 10000,
      "displayValue": "~10,000",
      "range": {
        "low": 0,
        "high": 40000
      },
      "color": "aged-out",
      "confidence": "estimated",
      "source": "Estimate"
    },
    {
      "id": "prevalence",
      "label": "Prevalence gap",
      "value": 0,
      "displayValue": "Unknown",
      "range": {
        "low": 0,
        "high": 60000
      },
      "color": "prevalence",
      "confidence": "estimated",
      "source": "PHAC / Frontiers 2025"
    }
  ]
}