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end|thewaitontario

End The Wait Ontario is a parent-led source for Ontario Autism Program (OAP) statistics and advocacy. Serving families, researchers, and journalists across Toronto, Ottawa, Hamilton, London, and all regions of Ontario.

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Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
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Tools

  • Parent Navigator
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  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

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  • DTC & RDSP

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Evidence & Data

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Take Action

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About

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end|thewaitontario

End The Wait Ontario is a parent-led source for Ontario Autism Program (OAP) statistics and advocacy. Serving families, researchers, and journalists across Toronto, Ottawa, Hamilton, London, and all regions of Ontario.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Parent Navigator
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP

Your Region

  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions

Evidence & Data

  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?

Take Action

  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit

About

  • Our Story
  • Transparency
  • Media References
  • Founder
  • Press
  • Contact
end|thewaitontario

End The Wait Ontario is a parent-led source for Ontario Autism Program (OAP) statistics and advocacy. Serving families, researchers, and journalists across Toronto, Ottawa, Hamilton, London, and all regions of Ontario.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Parent Navigator
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP
  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions
  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?
  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit
  • Our Story
  • Transparency
  • Media References
  • Founder
  • Press
  • Contact

Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

Legal|Privacy|Terms|Cookies|Accessibility|Corrections|Authority

Speak softly and carry a big stick. — Theodore Roosevelt

Carroll v. Ontario · HRTO 2025-62264-I · our own pending, unadjudicated application

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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Privacy Policy

How we collect, use, and protect personal information.

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Quick Summary

  • What personal information End The Wait Ontario collects.
  • How information is used, stored, and protected.

Policy scope

Legal and policy pages use stable public-site disclosures, plain-language summaries, and the sitewide reference trail below.

analysisGeneral informationThis page explains website policy and does not provide legal advice.
updatedLast reviewedReviewed as part of the public-site policy shell.

Full details

Privacy Policy

Your privacy is important to us. This policy explains how End The Wait Ontario collects, uses, and protects your personal information.

Last updated: April 26, 2026

Overview

End The Wait Ontario (“we,” “us,” or “our”) operates the website https://www.endthewaitontario.com(the “Site”). This Privacy Policy describes how we collect, use, disclose, and safeguard your information when you visit our Site or interact with our services. Learn more about our mission to advocate for Ontario families.

We are committed to protecting your privacy in accordance with the Personal Information Protection and Electronic Documents Act (PIPEDA) and applicable Ontario privacy laws.

Information We Collect

Information You Provide

When you use our Site, you may voluntarily provide:

  • •Contact Information: Name, email address, postal code (for constituency identification)
  • •Story Submissions: Personal experiences you choose to share about autism services via our story submission form page
  • •Petition Signatures: Name, email, and postal code for advocacy petitions
  • •Media Inquiries: Contact information for journalists and media professionals through our press page
  • •Newsletter Subscriptions: Email address and consent preferences when you sign up for our advocacy updates and monthly waitlist newsletters
  • •Communications: Messages sent through our contact forms

Sensitive Information and Minors

Stories may contain sensitive personal information, including health-related details (autism diagnosis, therapy history, service wait times) and information about children. We treat all such information as sensitive personal information under PIPEDA with enhanced access controls.

Please avoid including full names of third parties, exact addresses, school names, or other identifying details beyond what is necessary. If your story concerns a child, you confirm you are the parent or legal guardian, or have authority to share the information. We may redact details to reduce identification risk before any publication.

Information Collected Automatically

When you visit our Site, we may automatically collect:

  • •Device Information: Browser type, operating system, device type
  • •Usage Data: Pages visited, time spent, referring website
  • •IP Address: For security and analytics purposes
  • •Cookies: Small data files stored on your device (see Cookie Policy below)

How We Use Your Information

We use the information we collect for the following purposes:

  • •Advocacy: To support our advocacy efforts and communicate with government officials on behalf of Ontario families
  • •Communication:To respond to your inquiries and send updates you've requested
  • •Story Sharing: To share parent stories (with explicit consent) to raise awareness

How We Use Stories (Your Choice)

At submission, you can choose whether we may:

  • (a)Use your story internally for advocacy analysis only
  • (b)Publish it anonymously on the site
  • (c)Contact you for clarification or follow-up
  • (d)Share anonymised excerpts with journalists or policymakers

You can change your choices later or request deletion by contacting us. Attributed (non-anonymous) use of your story always requires separate, explicit consent.

  • •Site Improvement: To analyze usage patterns and improve our Site
  • •Legal Compliance: To comply with legal obligations and protect our rights

How We Share Information

We do not sell your personal information. We may share your information in the following circumstances:

  • •With Your Consent: When you explicitly authorize us to share information (e.g., submitting a petition to government officials)
  • •Government Officials: Petition signatures and constituent communications may be shared with relevant government officials as part of our advocacy
  • •Service Providers: With trusted third parties who help us operate our Site (e.g., email services, analytics)
  • •Legal Requirements: When required by law or to protect our rights

Important: When you sign a petition, your name, postal code, and message will be shared with government officials. This is the intended purpose of that feature. The email drafting tool opens a pre-composed email in your local email application. End The Wait Ontario does not receive, store, or transmit the content of emails you send to government officials through this tool.

Cookie Policy

We use cookies and similar technologies to enhance your experience on our Site.

Essential Cookies

Required for the Site to function properly. These cannot be disabled.

Analytics Cookies

Help us understand how visitors interact with our Site. We use Google Analytics (operated by Google LLC, United States) with anonymized IP addresses. Google processes this data under its standard data processing terms, which ensure comparable privacy protections. You can opt out of analytics cookies.

Preference Cookies

Remember your preferences (e.g., cookie consent choice) for future visits.

Layout Tests (A/B Tests)

We sometimes show two versions of the same page layout to learn which one helps families find help faster. Your browser is placed in a test group using a random code — never a cookie. Until you accept analytics, the code is kept only for your current visit and is deleted when you close your browser. If you accept analytics, the code is saved in your browser so your group stays the same on later visits. The code is never linked to your name or contact details, and every version of a page shows the same facts and numbers. If you decline analytics, or your browser sends a Do Not Track or Global Privacy Control signal, you are left out of all tests and always see the standard page.

We never use cookies for commercial advertising or sell your data to third parties.

Data Retention

We retain your personal information only as long as necessary for the purposes outlined in this policy:

  • •Contact form submissions: 2 years
  • •Petition signatures: Duration of advocacy campaign plus 2 years
  • •Story submissions: Until you request removal, or 7 years if published. Story submissions may include health-related information (autism diagnosis, service wait times), which is treated as sensitive personal information under PIPEDA with enhanced access controls
  • •Analytics data: 26 months (Google Analytics retention)
  • •First-party visitor events (IP + visitor ID + path): retained indefinitely, raw and aggregated. See First-Party Analytics below.
  • •We comply with Canada's Anti-Spam Legislation (CASL) and obtain your consent before sending commercial electronic messages. You may withdraw consent at any time.
  • •Consent records: 7 years (as required for legal compliance)

Your Rights

Under PIPEDA and applicable privacy laws, you have the right to:

  • •Access: Request a copy of the personal information we hold about you
  • •Correction: Request correction of inaccurate information
  • •Deletion: Request deletion of your personal information (subject to legal retention requirements)
  • •Withdrawal: Withdraw consent for communications at any time
  • •Complaint: File a complaint with the Office of the Privacy Commissioner of Canada

How to Exercise Your Rights

To make a data subject access request (DSAR), correction, or deletion request, contact us using either method below. We will acknowledge your request within 5 business days and respond substantively within 30 calendar days.

  • •Contact form: Privacy request form
  • •Direct URL: endthewaitontario.com/contact (select “Privacy Request” as inquiry type)

Data Security

We implement appropriate technical and organizational measures to protect your personal information, including:

  • •HTTPS encryption for all data transmission
  • •Secure hosting with industry-standard protections
  • •Access controls limiting who can view personal information
  • •Regular security reviews and updates

However, no method of transmission over the Internet is 100% secure. While we strive to protect your information, we cannot guarantee absolute security.

Children's Privacy

Our Site is not directed at children under 13. We do not knowingly collect personal information from children under 13. If you believe we have collected information from a child under 13, please contact us immediately.

For stories involving children, we require consent from a parent or legal guardian, and we encourage careful consideration of how much identifying information to include about minors.

Data Breach Notification

In the event of a data breach that poses a real risk of significant harm, we will notify affected individuals and the Privacy Commissioner of Canada as required under PIPEDA. We will also take reasonable steps to mitigate the effects of the breach.

First-Party Analytics

In addition to the third-party analytics providers listed below, End The Wait Ontario operates a first-party analytics pipeline using Supabase (operated by Supabase Inc.) to support security, abuse detection, and aggregate traffic analysis — including understanding how our publicly available advocacy materials reach the public institutions and audiences they address.

What this pipeline collects

  • •Visitor ID (vid) cookie: A randomly generated identifier that lets us count unique visitors and distinguish abusive traffic from legitimate traffic. Not linked to your name.
  • •IP address, user-agent, page path, and referrer: Captured server-side with each page view. Used to detect automated abuse, approximate geographic region at the city level, and analyse the source networks and referring organisations from which our advocacy materials are accessed.
  • •Third-party IP enrichment: A small subset of IP addresses may be passed to ip-api.com (operated by Fornex Hosting S.L.) to resolve the associated organisation name and city for aggregate reporting purposes. No other personal information is shared.

Retention

  • •Raw visitor events (IP + vid + path + user-agent): retained indefinitely, so we can maintain a complete historical record of how our advocacy materials are accessed. Individual visitors can still request deletion of their own data at any time — see below.
  • •Aggregated, de-identified metrics (daily totals, regional counts, source-network breakdowns): also retained indefinitely for historical reporting.

Opting out and deletion requests

  • •Do Not Track: If your browser sends the DNT: 1 header or the Global Privacy Control (Sec-GPC: 1) signal, our first-party analytics pipeline skips recording the event server-side.
  • •Cookie choice:Selecting “Essential Only” on our cookie consent banner prevents the vid cookie from being set for analytics purposes.
  • •Deletion:To request deletion of visitor events associated with your browser's vid, use our contact form and select “Privacy Request”. Your vidvalue can be copied from your browser's developer tools (Application > Cookies).

Third-Party Analytics and Performance Monitoring

In addition to any analytics mentioned above, we use Vercel Analytics and Vercel Speed Insights (operated by Vercel Inc., United States) to collect anonymized page view data and Core Web Vitals performance metrics. This data helps us monitor site performance and does not include personally identifiable information.

We also use Microsoft Clarity (operated by Microsoft Corporation, United States) to collect anonymized behavioral data including heatmaps and aggregated session recordings. Clarity helps us understand how visitors interact with the site to improve usability. Clarity does not collect personally identifiable information. You can opt out of Clarity by selecting “Essential Only” on our cookie consent banner, or by visiting Microsoft's privacy statement.

We use PostHog (operated by PostHog, Inc., United States) for product analytics, including anonymized session recordings, feature flag evaluation, and user journey analysis. PostHog processes anonymized interaction data to help us improve the site experience. PostHog does not collect personally identifiable information. You can learn more at PostHog's privacy policy.

Newsletter Subscriptions

If you choose to subscribe to our monthly email digest, we collect your email address and a hashed identifier (used solely to detect duplicate signups and prevent abuse). We use a double opt-in confirmation flow: after you submit the form, we send a confirmation email containing a unique link, and your subscription is only finalized when you click that link.

We comply with Canada's Anti-Spam Legislation (CASL). Every newsletter we send includes our identification, our mailing address, and a working unsubscribe link valid for at least 60 days. Unsubscribe requests are processed within 10 business days, and unsubscribed addresses are added to a permanent suppression list and never re-contacted without fresh, express consent. You can also email us directly at the address listed in our Contact Us section to request unsubscription, access, correction, or deletion of any subscriber records we hold about you.

Subscriber records include: the email address, the date and time of consent, the source page and module of the signup, the consent text shown to you at signup (versioned), and the consent method used (double opt-in). We retain this information for as long as you remain subscribed, plus a minimum of three years thereafter to comply with CASL record-keeping requirements. We do not share, sell, rent, or otherwise disclose subscriber information to third parties for marketing purposes.

Takedown and Corrections

If you believe content on this site is inaccurate, violates your privacy, or is defamatory, contact us with the URL and details of your concern. We will acknowledge your request within 5 business days and may remove or redact content while we assess.

For story withdrawal requests: you may request removal of your submitted story at any time by using our contact form. We will remove or anonymise the content within 10 business days. Note that content already shared with government officials or published in reports prior to your withdrawal request cannot be retroactively recalled.

See also our Corrections and Accuracy Policy for our data verification methodology and correction process.

Changes to This Policy

We may update this Privacy Policy from time to time. We will notify you of any material changes by posting the new policy on this page and updating the “Last updated” date.

We encourage you to review this Privacy Policy periodically for any changes.

Contact Us

If you have questions about this Privacy Policy or our privacy practices, please contact us:

End The Wait Ontario

Privacy inquiries: Contact form (select “Privacy Request”)

General contact: Contact Form

We aim to respond to privacy inquiries within 5 business days.

Privacy Resources

For more information about your privacy rights in Canada:

  • •Office of the Privacy Commissioner of Canada
  • •Information and Privacy Commissioner of Ontario

Verified References & Sources

Updated: Mar 2026

Government Reports & Data

  • [2023]
    Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
    Community Living Ontario • Report • 2023-10-01
    View
  • [2024]
    Inclusion Without Proper Support Is AbandonmentVerified FAO Data
    Elementary Teachers' Federation of Ontario • Report • 2024-06-01
    View
  • [2020]
    Autism ServicesVerified FAO Data
    Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
    View
  • [2024]
    Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
    Financial Accountability Office of Ontario (FAO) • Report • 2024-06-05
    View
  • [2026]
    MCCSS bi-weekly OAP Core Clinical Services progress reports (FOI release CSS2026-0749)Verified FAO Data
    Ministry of Children, Community and Social Services (Ontario) • Report • 2026-03-04
    View

Related Resources

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Evidence on this page

The source chain stays visible.

Key claims are paired with their source, evidence tier, and verification date so readers can inspect the public record directly.

Facts3
Sources3

89,799

children are registered in the Ontario Autism Program

Secondary sourceMCCSS FOI · Mar 2026Verified 2026-06-13

23%

Only 20,633 children have active funding agreements — less than one in four

Secondary sourceMCCSS FOI · Mar 2026Verified 2026-06-13

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Government / peer-reviewedWorld Health Organization (2023)Verified 2023-11-15
Last system verification: 2026-06-13. Next scheduled update: 2026-09-10.
View methodologyBrowse every source