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Budget 2026: $965M budgeted, 67,399 children still waiting. Read our analysis →

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

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  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
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  • Where Does the Money Go?

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About

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP
  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions
  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?
  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit
  • Our Story
  • Transparency
  • Media References
  • Founder
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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

Legal|Privacy|Terms|Cookies|Accessibility|Corrections|Authority

Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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Last Updated: March 26, 2026

What percentage of registered children receive autism services in Ontario?

Of **87,692 children registered** in the Ontario Autism Program (Dec 2025), only **23.1%** are receiving core clinical services funding. [FOI] The vast majority — approximately **76.9%** — remain on the waitlist during their most critical developmental years.

Source: FOI Data Dec 2025

How long do families wait for Ontario autism services?

Ontario autism wait times for core clinical services now exceed **5+ years** (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists. [FAO]

Source: FOI Data Dec 2025, FAO Report 2024

What is the Ontario autism waitlist crisis?

Ontario has 87,692 children registered for autism services (Dec 2025), but only 20,293 (23.1%) have an active Core Funding Agreement; 20,293 are enrolled in the pipeline. Families wait 5+ years on average for therapy funding, missing the sensitive early developmental period when intervention is most effective. WHO emphasizes timely access to services—Ontario delays far exceed recommended timelines.

Source: FAO Report 2023-24, WHO Guidelines

What does the WHO say about early autism intervention timing?

The WHO Fact Sheet on Autism Spectrum Disorders (2023) states that timely access to early evidence-based psychosocial interventions can improve the ability of autistic children to communicate effectively and interact socially. Dawson et al. (2010, Pediatrics; PMID 19948568) confirmed in an RCT that ESDM (Early Start Denver Model) at 18–30 months produced significant developmental gains.

Source: WHO Fact Sheet: Autism Spectrum Disorders (2023); Dawson et al., Pediatrics 2010 (PMID 19948568)

Why is early intervention critical for autistic children?

Dawson et al. (2010, Pediatrics; PMID 19948568) demonstrated in an RCT that ESDM (Early Start Denver Model) begun at ages 18–30 months produced significant gains in IQ and adaptive behaviour. Zwaigenbaum et al. (2015, Pediatrics; PMID 26430168) and the Reichow et al. (2018) Cochrane Review (PMID 29742275) support intervention within the first 2 years of life as the highest-plasticity window.

Source: Dawson et al., Pediatrics 2010 (PMID 19948568); Zwaigenbaum et al., Pediatrics 2015 (PMID 26430168); Reichow et al., Cochrane 2018 (PMID 29742275)

How much does Ontario fund for autism treatment?

Core Clinical Services funding ranges $6,600-$65,000 per year based on age/needs (with a total OAP budget of $965M for 2026-27, up from $779M in 2025-26, per the Ontario Budget tabled March 26, 2026). This is direct funding—families choose public or private providers. However, intensive ABA therapy can cost up to $95,000 USD/year (2020 US cost estimate cited in FAO 2020 report; Canadian costs vary), leaving significant out-of-pocket gaps.

Source: 2026 Ontario Budget, FAO Report 2023-24

What is the average OAP funding amount per child?

The FAO (Financial Accountability Office of Ontario, 2023-24 report) reports an average annual funding of approximately $34,000 per child for children in core clinical services. As of Dec 10, 2025, 20,293 are enrolled; 20,293 have active funding (OAC FOI). However, intensive ABA therapy can cost up to $95,000 USD/year (2020 US cost estimate cited in FAO 2020 report; Canadian costs vary), leaving significant costs unfunded for many families.

Source: FAO Report 2023-24, FAO 2020

What are the lifetime costs of autism without early intervention?

Research indicates lifetime costs for individuals with autism and co-occurring intellectual disability can reach US$2.4 million in 2014 US dollars (Buescher et al., JAMA Pediatrics 2014). Early behavioral intervention is associated with reduced long-term support costs (Cidav et al., JAACAP 2017), demonstrating the economic value of timely access to services.

Source: Buescher et al., JAMA Pediatrics 2014; Cidav et al., JAACAP 2017

Do autism waitlists violate the Canadian Charter of Rights?

The Supreme Court (Auton, 2004) ruled there is no automatic right to specific funding. However, the Ontario Human Rights Code prohibits discrimination in service delivery based on disability. Multi-year delays for approved OAP services may constitute systemic discrimination. The OHRC has issued policy statements on the rights of people with disabilities to equitable service access.

Source: Ontario Human Rights Code, OHRC Policy Statements

Does Ontario publish transparent autism waitlist data?

Ontario does not publish transparent, real-time waitlist data for the Ontario Autism Program. Families do not know their position in the queue or when services will begin. The Financial Accountability Office provides periodic reports, but detailed enrollment timelines are not publicly available.

Source: FAO Report 2023-24; MCCSS OAP Program Data

How does the Ontario Autism Program invitation system work?

The Ontario Autism Program uses an invitation-based system where families wait based on registration date. There is no transparent timeline provided, and families cannot predict when they will receive services. This lack of accountability creates uncertainty during the sensitive early intervention period.

Source: Ontario Government OAP Guidelines

Was Spencer Carroll featured on WHO social media?

A clip featuring Spencer Carroll discussing autism diagnosis and early intervention was shared on the World Health Organization's official Instagram account (@who). End The Wait Ontario is not affiliated with or endorsed by WHO, but the clip's inclusion demonstrates alignment with WHO's emphasis on timely access to evidence-based interventions.

Source: WHO Instagram @who

Young child looking through a window, representing the tens of thousands of children waiting years for Ontario autism services

Ontario’sautismwaitnowexceeds5years.
67,399childrenarestillwaiting.

FOI-verified data, WHO benchmarks, and a 2-minute letter to your MPP. 67,399 children are still waiting.

Email Your MPP — 2 minJust diagnosed? Start here ›

Read time: 4 minutes. You'll leave with a plan.

Live · Updated monthly from Ontario FOI data
67,39967,399

children registered without active funding

Featured in @WHO reelFOI-Verified DataParent-Founded
Explore the Data
Girl sitting on a bench, representing children waiting for Ontario autism services

Founded by a parent of an autistic child. WHO-featured advocacy.

67,399 children waiting without funded services

FOI verified
Email Your MPP2 minSee the Data

The Crisis

Three numbers tell the entire story

Ontario publishes the data. The data, read plainly, condemns the system.

The Scale

Every Dot Is a Child

87,692 registered. Registration has outpaced funded service since 2019.

Why Timing Matters

The Wait Outlasts the Window

WHO emphasizes timely access to early intervention; peer-reviewed research finds the strongest gains start before age three. Ontario's average wait is 5+ years (FAO 2023-24).

The Trajectory

A Waitlist That Only Grows

Approximately 526 more children join the unfunded backlog every month.

The Human Cost

Who Falls Through the Cracks

Northern, rural, and racialized families face longer waits and fewer providers, per multiple published measures (FAO, MCCSS regional data, peer-reviewed access studies).

Follow the Money

$691 Million In. $307 Million Out as Therapy.

55 cents of every dollar never reached a therapist's office (FAO 2024 + Public Accounts). No independent audit of OAP spending allocation has been published.

Your Move

Where Do You Start?

Just diagnosed. Already on a waitlist. Aged out at eighteen. Each path is mapped to verified next steps.

The Evidence

Every figure on this page is FOI-verified or sourced from government documents.

Filed FOIs, FAO reports, Public Accounts, and peer-reviewed research — open the drawer to see the chain on any number.

Budget Day 2026 — Independent Analysis

Record Spending. Per-Child Funding Declining.

The government describes it as the “largest single-year increase in history.” Here is what the per-child figures show.

What the government says

+$186M

“Largest single-year increase in program history”

FAO Baseline Funding71%

Source: 2026 Budget Paper p.269

What the data shows

33¢

on the dollar of what each child actually needs

Percentage of Need met33%

Calculation: FAO Methodology (2024)

Follow the money

Spending Analysis

Where $691.2M went in 2023-24

FOI-Verified Breakdown
Core Clinical ServicesDirect funding for autism therapy
$307.3M
Legacy ProgramsPre-2019 program maintenance
$104.0M
AccessOAP OperationsAdministrative & intake costs
$57.9M
Other OAP PillarsFoundational services & respite
$157.2M
Capacity / OtherWorkforce development & research
$64.8M
Where $691.2M went in 2023-24
CategoryAmountPercentage
Core Clinical Services$307.3M44.5%
Legacy Programs$104.0M15.0%
AccessOAP Operations$57.9M8.4%
Other OAP Pillars$157.2M22.7%
Capacity / Other$64.8M9.4%

“Less than half reaches children as therapy. No independent audit of OAP spending allocation has been published.”

Read the Full Investigation
Annual Funding Gap — FAO Methodology

$1.9B–$2.5B

The FAO’s “$385M gap” was calculated in 2020 for 40,700 children. There are now 87,692. Three independent calculations confirm the shortfall.

See the full methodology
Sources: 2026 Ontario Budget p.269-270•FAO 2020 & 2024•FOI Dec 2025
What the numbers don’t count

87,692 is the floor.

Ontario’s official count includes only children already diagnosed and registered with the OAP. Children still waiting for an autism assessment, those who aged out at 18 without service, and the prevalence gap of undiagnosed children sit entirely outside the published figure.

Officially Counted
87,692
Children registered with the OAP
Pre-Diagnostic
6,113+
Waiting at 5 publicly-funded hubs (Trillium FOI, March 2024)
Oversight Gap
3 of 11
Service metrics published of the Auditor General's list

Read the full gap analysis

Regional Guides

Find services in your area

Wait times, providers, and local school-board advocacy routes differ across Ontario. Start with your region.

TorontoOttawaHamiltonNiagara

See all regional guides

Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

Quick Summary

  • 87,692 children registered in the Ontario Autism Program as of December 2025.
  • 67,399 children (76.9%) are still waiting for a core funding agreement after 5+ years.
  • WHO emphasizes timely access to early evidence-based interventions — Ontario's average wait exceeds the critical developmental window.

Primary Sources

SOURCE

MCCSS Spending Plan Review (2023–24)
Government SourceTier 1

Financial Accountability Office of Ontario • 2024

Primary source for OAP registration counts, core clinical enrollment, and reported funding allocation ranges.

Last verified: 2025-11-25

SOURCE

Autism Spectrum Disorders (fact sheet)
Government SourceTier 1

World Health Organization • 2024

WHO guidance emphasizing timely access to early evidence-based psychosocial interventions.

Last verified: 2025-11-25

SOURCE

Ontario Autism Program: Your guide to the OAP
Government SourceTier 1

Ministry of Children, Community and Social Services

Official government guide to OAP eligibility, funding, and service pathways.

Last verified: 2025-01-06

FAQ

Frequently asked about Ontario’s autism waitlist

  • How many children are on the Ontario autism waitlist?+

    As of December 2025, 87,692 children are registered with the Ontario Autism Program. Of those, 67,399 (76.9%) are waiting without funded core services. The figure does not count children still waiting for an autism diagnosis — at least 6,113 more across five publicly-funded hubs (Trillium FOI, March 2024).

  • How long is the wait for autism services in Ontario?+

    Ontario’s average wait for funded core services now exceeds five years (FAO 2023-24). The WHO emphasizes timely access to evidence-based early intervention. Peer-reviewed research (Dawson et al., Pediatrics 2010) found significant developmental gains from intervention starting at 18–30 months. Most children registered today will reach school age before they receive funded therapy.

  • What is the Ontario Autism Program (OAP)?+

    The Ontario Autism Program is the provincial program that funds autism services for children under 18. $965M was allocated to the program in the 2023-24 fiscal year. The Financial Accountability Office found that approximately 55 cents of every program dollar did not reach therapy.

  • Why is the Ontario autism waitlist so long?+

    Registration has outpaced funded service every year since the 2019 OAP redesign. The Financial Accountability Office calculated a $385M annual funding gap in 2020 for 40,700 children; there are now 67,399 children waiting without core-service funding. The shortfall has compounded; the funding has not kept pace.

  • What can I do about the Ontario autism waitlist?+

    The most effective two-minute action: send a pre-drafted, evidence-cited letter to your MPP using the letter tool on this site. Subscribe to FOI updates so you see new data before the news cycle picks it up. Read the four published investigations to share specific evidence with your network.

Your Next Step

Children Cannot Wait Five Years

Our letter tool finds your MPP and pre-fills the verified data on this page. 2 minutes.

Email Your MPP — 2 minSee All Actions You Can Take

Related Resources

  • OAP Eligibility
  • How to Register for OAP
  • Free Services Available Now
  • Waitlist Data
  • Diagnosis Hub

Related Resources

Take ActionWrite Your MPPFile a ComplaintLegal OptionsWhile WaitingClinician Barriers Ontario Autism
About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

Where do you start?

Choose your path

The quickest routes to diagnosis guidance, evidence, practical support, and advocacy.

Just diagnosed?
First steps after an autism diagnosis
Already waiting?
What to do while on the waitlist
See the data
FOI-backed charts, methods, and evidence
Want change?
Write your MPP in 5 minutes

Verified Facts

Facts cited on this page

87,692 — children are registered in the Ontario Autism Program

SecondaryFOI Dec 2025 (OAC)Verified: 2026-04-26

23.1% — Only 20,293 children have active funding agreements () — less than one in four

SecondaryFOI Dec 2025 (OAC)Verified: 2026-04-26

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15
View our methodologyView all sourcesNext data update: 2026-05-15

Registered

87,69287,692

Children registered

Total in the Ontario Autism Program queue

CBC FOI Jan 2026

Funded

20,29320,293

Have active funding

Just 23.1% of registered children

CBC FOI Jan 2026

Waiting

67,39967,399

Still waiting

Registered. Diagnosed. Un-funded.

CBC FOI Jan 2026

Verified April 26, 2026 — CBC FOI Jan 2026

Share these numbers
Ontario Autism Program key statistics (CBC FOI Jan 2026, verified 2026-04-26)
MetricValue
Children registered87,692
Have active funding20,293
Still waiting67,399

The data speaks. The media listened.

World Health Organization

Featured globally.

A father's story of love, resilience, and tireless advocacy — shared with the WHO's 20-million-strong global community on early-intervention science.

20M+followers reached
2,558likes
117comments
View on InstagramRead the story
World Health Organization featuring End The Wait Ontario founder on early intervention

CBC News · Mar 30, 2026

CBC investigates.

A national CBC Enterprise Unit broadcast cited FOI-verified waitlist data.

Read articleSee the data
67,399

children waiting for core funding

CBC Ottawa Morning · Mar 31, 2026

Live on the radio.

Seven-year reality, in the founder's own voice — the morning after the budget.

ListenFounder story
7

years on the waitlist

The Trillium · Mar 27, 2026

Where the money goes.

OAC demands core-therapy funding be ringfenced. Trillium policy beat.

Read articleBudget breakdown
$186M

demanded for core therapies

The Trillium · Mar 25, 2026

Accountability, on the record.

Sneh Duggal's feature on endthewaitontario.com — FOI-verified data, public-record.

Read articleFOI archive
17

Freedom of Information requests filed

Founded by Spencer Carroll. HRTO 2025-62264-I · Applicant. Every number FOI-verified — methodology. All press coverage.

A typical child's journey through the Ontario Autism Program

Example: child registered at age 3, services begin at age 8 — after a 5-year wait

012345678Child's age (years)Age 6WHO early-interventiondeadlineWHO windowPeak neuroplasticity periodBirth to age 6 — highest treatment efficacyTypical childRegistered at 3, services at 8Pre-diagnosisRegisteredage 3Services beginage 85 years waiting3 years lostWindow already closed← still waiting

Intervention before 6

Research shows 2× greater gains in cognitive and adaptive functioning. Some children lose their diagnosis entirely. The brain's plasticity makes early therapy dramatically more effective.

Intervention after 6

Reduced neuroplasticity means slower progress, higher lifetime costs, and poorer outcomes. Every year of delay narrows the range of achievable milestones. Ontario's waitlist guarantees this for most families.

Of the 67,399 children on the unfunded backlog, the majority were registered between ages 2 and 4. At the current pace, most will age past 6 before receiving any core funding — missing the window that the WHO, the American Academy of Pediatrics, and every major autism research body identifies as critical.

Source: WHO Early Childhood Development guidelines; Ontario MCCSS OAP data via FOI. Average wait derived from registration-to-funding intervals, January 2026 cohort.

Intervention window vs Ontario OAP wait time
MetricValue
WHO intervention windowAge 0-6
Example registration ageAge 3
Average wait5 years
Service start ageAge 8
Early-intervention years lost waiting3 years
Years after window closes before services2 years

Of the $691M spent on the Ontario Autism Program since its redesign, less than 45¢ of every dollar reached therapy. $57.9M went to an entity not subject to Ontario’s Freedom of Information law — with no published independent audit. A six-part evidence chain documents exactly where the money went.

See the full evidence chainAccountability mechanisms

All figures sourced from FAO reports, MCCSS FOI records, and the 2026 Ontario Budget.

Share the money trail

Original Investigations

Public-record reporting

The money. The schools.The lobbying. The pattern.Follow the public record.

Four investigations built entirely from government filings, FOI data, and public accounts. Every claim sourced. Every figure verifiable. No allegations of wrongdoing.

01Follow the Money

6-part evidence chain

$691 Million In. $307 Million Out as Therapy.

Less than 45¢ of every program dollar reached therapy. $57.9M went to an entity not subject to FOI and never independently audited. The province has since proposed changes to the FOI law itself.

$384M
not therapy
$57.9M
no FOI access
19 yrs
projected wait
Read the evidence chain
02Inside the Schools

Funding · Takeovers · Property

Eight Boards Seized. $6.35B Special-Ed Shortfall. Quiet Property Rule Change.

One in three autistic students isn't getting a full school day. Boards overspent $583M trying to cover gaps the province failed to close — and a regulation change quietly handed the Minister new control over how school land is sold.

$6.35B
shortfall since 2018
8
boards seized
$20B+
school land value
Read the full investigation
03Federal Lobbying

Federal Registry · Public Accounts

They Run the Waitlist. Now They’re Lobbying for a Federal Role.

The company that administers Ontario's autism intake — $57.9M/year in admin fees — added the National Autism Strategy to its federal lobbying file. Combined Ontario payments: $2.5B. Payment growth since 2019: 5,747%.

$57.9M
annual admin
$2.5B
Ontario payments
5,747%
payment growth
Read the public record
New
04Quiet Transfer

Bill 11 · AccessOAP · CLHIA

Ontario Built the Prototype. Alberta Just Scaled It.

Alberta’s Bill 11, in force December 2025, redirects public health-care dollars through private insurers. The CLHIA confirmed in its own pre-budget submission that it sat on a “working group of industry representatives” inside the Alberta government overseeing the bill. The mechanism is the same one Ontario has used for autism since 2021.

25+
industry reps
0
patient reps
$6.6B
federal transfer
Read The Quiet Transfer

Sources:FAO · MCCSS FOI · CCPA · OAC · Federal Registry of Lobbyists · Ontario Education Act · 2026 Ontario Budget
Every claim sourced. No allegation of wrongdoing made or implied.

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01 · For new families

Just diagnosed?

Step-by-step guide to OAP registration, interim therapy options, and what to expect during the wait.

87,692children registered
Get started

02 · Already waiting

Already waiting?

Estimate your wait time, find funded interim services near you, and track your OAP status.

5+ yrsaverage wait
Check your options

03 · Take action

Want change?

Email your MPP with one click, share verified data, and advocate for system-wide reform.

2,400+letters sent
Write your MPP

Why this exists

A father who refused to stay silent.

“

My son was diagnosed with severe, non-verbal autism at 14 months. Like thousands of parents, I was told early intervention was critical. Then, like thousands of parents, I was placed on a waitlist that effectively has no end. Nothing about that is normal. Nothing about that is acceptable.

— Spencer Carroll, Founder

Read the full story

On the record

Carroll v. Ontario

Human Rights Tribunal · Case 2025-62264-I · Ongoing

Founded 2023

FOI data, government reports, and peer-reviewed research — published without editorial filter.

Share this work
Peer-reviewed

Randomized, Controlled Trial of an Intervention for Toddlers With Autism: The Early Start Denver Model

Dawson G, Rogers S, Munson J, Smith M, Winter J, Greenson J, Donaldson A, Varley J · 2010

↗
Peer-reviewed

Early Identification of Autism Spectrum Disorder: Recommendations for Practice and Research

Zwaigenbaum L, Bauman ML, Stone WL, Yirmiya N, Estes A, Hansen RL, et al. · 2015

↗
Peer-reviewed

Early intensive behavioural intervention (EIBI) for young children with autism spectrum disorders (ASD)

Reichow B, Hume K, Barton EE, Boyd BA · 2018

↗
WHO

WHO Fact Sheet: Autism Spectrum Disorders

World Health Organization · 2023

↗
WHO

WHO Comprehensive Mental Health Action Plan 2013–2030 (updated 2021)

World Health Organization · 2021

↗