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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

Legal|Privacy|Terms|Cookies|Accessibility|Corrections|Authority

Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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Last Updated: March 26, 2026

What percentage of registered children receive autism services in Ontario?

Of **87,692 children registered** in the Ontario Autism Program (Dec 2025), only **23.1%** are receiving core clinical services funding. [FOI] The vast majority — approximately **76.9%** — remain on the waitlist during their most critical developmental years.

Source: FOI Data Dec 2025

How long do families wait for Ontario autism services?

Ontario autism wait times for core clinical services now exceed **5+ years** (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists. [FAO]

Source: FOI Data Dec 2025, FAO Report 2024

What is the Ontario autism waitlist crisis?

Ontario has 87,692 children registered for autism services (Dec 2025), but only 20,293 (23.1%) have an active Core Funding Agreement; 20,293 are enrolled in the pipeline. Families wait 5+ years on average for therapy funding, missing the sensitive early developmental period when intervention is most effective. WHO emphasizes timely access to services—Ontario delays far exceed recommended timelines.

Source: FAO Report 2023-24, WHO Guidelines

What does the WHO say about early autism intervention timing?

The WHO Fact Sheet on Autism Spectrum Disorders (2023) states that timely access to early evidence-based psychosocial interventions can improve the ability of autistic children to communicate effectively and interact socially. Dawson et al. (2010, Pediatrics; PMID 19948568) confirmed in an RCT that ESDM (Early Start Denver Model) at 18–30 months produced significant developmental gains.

Source: WHO Fact Sheet: Autism Spectrum Disorders (2023); Dawson et al., Pediatrics 2010 (PMID 19948568)

Why is early intervention critical for autistic children?

Dawson et al. (2010, Pediatrics; PMID 19948568) demonstrated in an RCT that ESDM (Early Start Denver Model) begun at ages 18–30 months produced significant gains in IQ and adaptive behaviour. Zwaigenbaum et al. (2015, Pediatrics; PMID 26430168) and the Reichow et al. (2018) Cochrane Review (PMID 29742275) support intervention within the first 2 years of life as the highest-plasticity window.

Source: Dawson et al., Pediatrics 2010 (PMID 19948568); Zwaigenbaum et al., Pediatrics 2015 (PMID 26430168); Reichow et al., Cochrane 2018 (PMID 29742275)

How much does Ontario fund for autism treatment?

Core Clinical Services funding ranges $6,600-$65,000 per year based on age/needs (with a total OAP budget of $965M for 2026-27, up from $779M in 2025-26, per the Ontario Budget tabled March 26, 2026). This is direct funding—families choose public or private providers. However, intensive ABA therapy can cost up to $95,000 USD/year (2020 US cost estimate cited in FAO 2020 report; Canadian costs vary), leaving significant out-of-pocket gaps.

Source: 2026 Ontario Budget, FAO Report 2023-24

What is the average OAP funding amount per child?

The FAO (Financial Accountability Office of Ontario, 2023-24 report) reports an average annual funding of approximately $34,000 per child for children in core clinical services. As of Dec 10, 2025, 20,293 are enrolled; 20,293 have active funding (OAC FOI). However, intensive ABA therapy can cost up to $95,000 USD/year (2020 US cost estimate cited in FAO 2020 report; Canadian costs vary), leaving significant costs unfunded for many families.

Source: FAO Report 2023-24, FAO 2020

What are the lifetime costs of autism without early intervention?

Research indicates lifetime costs for individuals with autism and co-occurring intellectual disability can reach US$2.4 million in 2014 US dollars (Buescher et al., JAMA Pediatrics 2014). Early behavioral intervention is associated with reduced long-term support costs (Cidav et al., JAACAP 2017), demonstrating the economic value of timely access to services.

Source: Buescher et al., JAMA Pediatrics 2014; Cidav et al., JAACAP 2017

Do autism waitlists violate the Canadian Charter of Rights?

The Supreme Court (Auton, 2004) ruled there is no automatic right to specific funding. However, the Ontario Human Rights Code prohibits discrimination in service delivery based on disability. Multi-year delays for approved OAP services may constitute systemic discrimination. The OHRC has issued policy statements on the rights of people with disabilities to equitable service access.

Source: Ontario Human Rights Code, OHRC Policy Statements

Does Ontario publish transparent autism waitlist data?

Ontario does not publish transparent, real-time waitlist data for the Ontario Autism Program. Families do not know their position in the queue or when services will begin. The Financial Accountability Office provides periodic reports, but detailed enrollment timelines are not publicly available.

Source: FAO Report 2023-24; MCCSS OAP Program Data

How does the Ontario Autism Program invitation system work?

The Ontario Autism Program uses an invitation-based system where families wait based on registration date. There is no transparent timeline provided, and families cannot predict when they will receive services. This lack of accountability creates uncertainty during the sensitive early intervention period.

Source: Ontario Government OAP Guidelines

Was Spencer Carroll featured on WHO social media?

A clip featuring Spencer Carroll discussing autism diagnosis and early intervention was shared on the World Health Organization's official Instagram account (@who). End The Wait Ontario is not affiliated with or endorsed by WHO, but the clip's inclusion demonstrates alignment with WHO's emphasis on timely access to evidence-based interventions.

Source: WHO Instagram @who

Young child looking through a window, representing the tens of thousands of children waiting years for Ontario autism services
Clip featured in @WHO reel

Yourchildneedstherapynow.
Ontariosayswait5 years.

An Independent, Parent-Focused Advocacy ResourceSee the verified waitlist data, understand what it means for your child, and email your MPP in minutes. 67,399 children are still waiting.

Just diagnosed? Start hereSee the data first

Read time: 4 minutes. You'll leave with a plan.

FOI verifiedBudget cross-checkedUpdated monthly
Live · Updated monthly from Ontario FOI data
67,39967,399

children registered without active funding

Featured in @WHO reelFOI-Verified DataParent-Founded2,400+ Letters Sent

87,692

children registered

67,399

still waiting

5+ yrs

average wait

Start here

Choose your next step

4 min
Just diagnosed?

Register for OAP, line up interim supports, and know what to expect.

Already waiting?

Estimate your wait, find interim services, and track your OAP status.

Want change?

Email your MPP in under 5 minutes with verified data.

Pick one path now. The data, sources, and advocacy tools stay connected as you move.

Press & research

Citeable figures, regional breakdowns, and methodology — updated monthly from FOI data.

Press & media kitDownload the dataset (CSV)
Explore the Data
Girl sitting on a bench, representing children waiting for Ontario autism services

67,399 children waiting without funded services

FOI verified
Email Your MPP2 minStart HereSee the Data

Ontario Autism Waitlist

The numbers, as of January 2026

A compact source chain for families, reporters, and policymakers: registration, funding status, average wait, and active service access.

FOI verifiedCBC FOI Jan 2026
Queue size
Children registered
87,692

Ontario Autism Program, December 2025

Unfunded
Waiting without funded services
67,399

76.9% of registered children

Delay
Average wait for core services
5+ years

Exceeds WHO early-intervention window

Funded
Receiving core clinical services
20,293

23.1% of registered children

Last verified January 7, 2026. Figures reconcile with OAC FOI, FAO 2024, and Ontario Budget 2026.Download CSV

The Crisis

Three numbers tell the entire story

Ontario publishes the data. The data, read plainly, condemns the system.

The Scale

Every Dot Is a Child

87,692 registered. Each one waiting for a system that can't keep up.

Why Timing Matters

The Wait Outlasts the Window

WHO emphasizes timely access to early intervention. Ontario's average wait is 5+ years.

The Trajectory

A Waitlist That Only Grows

Approximately 526 more children join the unfunded backlog every month.

The Human Cost

Who Falls Through the Cracks

Systemic gaps compound disadvantage for the most vulnerable children.

Follow the Money

$691 Million In. $307 Million Out as Therapy.

55 cents of every dollar never reached a therapist's office. No independent audit of OAP spending allocation has been published.

Your Move

Where Do You Start?

Choose the path that matches where you are right now, then keep moving.

The Evidence

Our Claims Are Sourced

FOI data, government reports, and peer-reviewed research.

Budget Day 2026 — Independent Analysis

Record Spending. Per-Child Funding Declining.

The government describes it as the “largest single-year increase in history.” Here is what the per-child figures show.

What the government says

+$186M

“Largest single-year increase in program history”

FAO Baseline Funding71%

Source: 2026 Budget Paper p.269

What the data shows

33¢

on the dollar of what each child actually needs

Percentage of Need met33%

Calculation: FAO Methodology (2024)

Follow the money

Spending Analysis

Where $691.2M went in 2023-24

FOI-Verified Breakdown
Core Clinical ServicesDirect funding for autism therapy
$307.3M
Legacy ProgramsPre-2019 program maintenance
$104.0M
AccessOAP OperationsAdministrative & intake costs
$57.9M
Other OAP PillarsFoundational services & respite
$157.2M
Capacity / OtherWorkforce development & research
$64.8M
Where $691.2M went in 2023-24
CategoryAmountPercentage
Core Clinical Services$307.3M44.5%
Legacy Programs$104.0M15.0%
AccessOAP Operations$57.9M8.4%
Other OAP Pillars$157.2M22.7%
Capacity / Other$64.8M9.4%

“Less than half reaches children as therapy. No independent audit of OAP spending allocation has been published.”

Read the Full Investigation
Annual Funding Gap — FAO Methodology

$1.9B–$2.5B

The FAO’s “$385M gap” was calculated in 2020 for 40,700 children. There are now 87,692. Three independent calculations confirm the shortfall.

See the full methodology
Sources: 2026 Ontario Budget p.269-270•FAO 2020 & 2024•FOI Dec 2025
Data Analysis

The Official Number Is the Floor, Not the Ceiling

Ontario reports 87,692children on the autism waitlist. That figure counts only those already diagnosed and registered with the OAP — it omits everyone still waiting for assessment.

Official Count
67,399
Unfunded OAP Registrants
Diagnostic Wait
6,113+
In just 5 regional hubs
Metrics Published
3 of 11
Of the Auditor General's list

Read the full gap analysis

Regional Guides

Find services in your area

Wait times, providers, and local school-board advocacy routes differ across Ontario. Start with your region.

TorontoOttawaHamiltonNiagara

See all regional guides

Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

Quick Summary

  • 87,692 children registered in the Ontario Autism Program as of December 2025.
  • 67,399 children (76.9%) are still waiting for a core funding agreement after 5+ years.
  • WHO emphasizes timely access to early evidence-based interventions — Ontario's average wait exceeds the critical developmental window.

Primary Sources

SOURCE

MCCSS Spending Plan Review (2023–24)
Government SourceTier 1

Financial Accountability Office of Ontario • 2024

Primary source for OAP registration counts, core clinical enrollment, and reported funding allocation ranges.

Last verified: 2025-11-25

SOURCE

Autism Spectrum Disorders (fact sheet)
Government SourceTier 1

World Health Organization • 2024

WHO guidance emphasizing timely access to early evidence-based psychosocial interventions.

Last verified: 2025-11-25

SOURCE

Ontario Autism Program: Your guide to the OAP
Government SourceTier 1

Ministry of Children, Community and Social Services

Official government guide to OAP eligibility, funding, and service pathways.

Last verified: 2025-01-06

Your Next Step

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Related Resources

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Related Resources

Take ActionWrite Your MPPFile a ComplaintLegal OptionsWhile WaitingClinician Barriers Ontario Autism
About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

Where do you start?

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Verified Facts

Facts cited on this page

87,692 — children are registered in the Ontario Autism Program

SecondaryFOI Dec 2025 (OAC)Verified: 2026-04-26

23.1% — Only 20,293 children have active funding agreements () — less than one in four

SecondaryFOI Dec 2025 (OAC)Verified: 2026-04-26

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15
View our methodologyView all sourcesNext data update: 2026-05-15

Registered

87,69287,692

Children registered

Total in the Ontario Autism Program queue

CBC FOI Jan 2026

Funded

20,29320,293

Have active funding

Just 23.1% of registered children

CBC FOI Jan 2026

Waiting

67,39967,399

Still waiting

Registered. Diagnosed. Un-funded.

CBC FOI Jan 2026

Verified April 26, 2026 — CBC FOI Jan 2026

Ontario Autism Program key statistics (CBC FOI Jan 2026, verified 2026-04-26)
MetricValue
Children registered87,692
Have active funding20,293
Still waiting67,399

As Reported By

WHO InstagramOct 2025The TrilliumMar 25, 2026The TrilliumMar 27, 2026CBC NewsMar 30, 2026CBC Ottawa MorningMar 31, 2026

The data speaks. The media listened.

CBC and The Trillium have cited FOI-verified waitlist data in their reporting. The World Health Organization featured our founder in a global social media reel on early intervention.

The TrilliumCBC Ottawa MorningWHO InstagramCBC NewsThe TrilliumCBC Ottawa Morning
The TrilliumCBC Ottawa MorningWHO InstagramCBC NewsThe TrilliumCBC Ottawa Morning
The TrilliumCBC Ottawa MorningWHO InstagramCBC NewsThe TrilliumCBC Ottawa Morning

Press Coverage

All press
  • CBC News

    Mar 30, 2026

    More than 67,500 Ontario children still waiting for core autism funding

  • CBC Ottawa Morning

    Mar 31, 2026

    Ottawa father speaks out on seven-year autism waitlist

  • The Trillium

    Mar 25, 2026

    Ottawa dad boosts 'accountability' with autism waitlist website

  • The Trillium

    Mar 27, 2026

    OAC demands $186M go 'exclusively' to core therapies

WHO Instagram · Global feature

SC

Spencer Carroll

Founder & Parent Advocate

HRTO 2025-62264-I · Applicant

“The most critical window for a child is between the ages of 0 to 6. These are time-sensitive interventions that require immediate access.”

Every number on this site traces back to FOI responses, FAO reports, or Ontario Budget documents — no estimates, no rounding. See the methodology

Read full storyWatch WHO clip

Original Investigations

Public-record reporting

The money. The schools.The lobbying. The pattern.Follow the public record.

Four investigations built entirely from government filings, FOI data, and public accounts. Every claim sourced. Every figure verifiable. No allegations of wrongdoing.

01Follow the Money

6-part evidence chain

$691 Million In. $307 Million Out as Therapy.

Less than 45¢ of every program dollar reached therapy. $57.9M went to an entity not subject to FOI and never independently audited. The province has since proposed changes to the FOI law itself.

$384M
not therapy
$57.9M
no FOI access
19 yrs
projected wait
Read the evidence chain
02Inside the Schools

Funding · Takeovers · Property

Eight Boards Seized. $6.35B Special-Ed Shortfall. Quiet Property Rule Change.

One in three autistic students isn't getting a full school day. Boards overspent $583M trying to cover gaps the province failed to close — and a regulation change quietly handed the Minister new control over how school land is sold.

$6.35B
shortfall since 2018
8
boards seized
$20B+
school land value
Read the full investigation
03Federal Lobbying

Federal Registry · Public Accounts

They Run the Waitlist. Now They’re Lobbying for a Federal Role.

The company that administers Ontario's autism intake — $57.9M/year in admin fees — added the National Autism Strategy to its federal lobbying file. Combined Ontario payments: $2.5B. Payment growth since 2019: 5,747%.

$57.9M
annual admin
$2.5B
Ontario payments
5,747%
payment growth
Read the public record
New
04Quiet Transfer

Bill 11 · AccessOAP · CLHIA

Ontario Built the Prototype. Alberta Just Scaled It.

Alberta’s Bill 11, in force December 2025, redirects public health-care dollars through private insurers. The CLHIA confirmed in its own pre-budget submission that it sat on a “working group of industry representatives” inside the Alberta government overseeing the bill. The mechanism is the same one Ontario has used for autism since 2021.

25+
industry reps
0
patient reps
$6.6B
federal transfer
Read The Quiet Transfer

Sources:FAO · MCCSS FOI · CCPA · OAC · Federal Registry of Lobbyists · Ontario Education Act · 2026 Ontario Budget
Every claim sourced. No allegation of wrongdoing made or implied.

A typical child's journey through the Ontario Autism Program

Example: child registered at age 3, services begin at age 8 — after a 5-year wait

012345678Child's age (years)Age 6WHO early-interventiondeadlineWHO windowPeak neuroplasticity periodBirth to age 6 — highest treatment efficacyTypical childRegistered at 3, services at 8Pre-diagnosisRegisteredage 3Services beginage 85 years waiting3 years lostWindow already closed← still waiting

Intervention before 6

Research shows 2× greater gains in cognitive and adaptive functioning. Some children lose their diagnosis entirely. The brain's plasticity makes early therapy dramatically more effective.

Intervention after 6

Reduced neuroplasticity means slower progress, higher lifetime costs, and poorer outcomes. Every year of delay narrows the range of achievable milestones. Ontario's waitlist guarantees this for most families.

Of the 67,399 children on the unfunded backlog, the majority were registered between ages 2 and 4. At the current pace, most will age past 6 before receiving any core funding — missing the window that the WHO, the American Academy of Pediatrics, and every major autism research body identifies as critical.

Source: WHO Early Childhood Development guidelines; Ontario MCCSS OAP data via FOI. Average wait derived from registration-to-funding intervals, January 2026 cohort.

Intervention window vs Ontario OAP wait time
MetricValue
WHO intervention windowAge 0-6
Example registration ageAge 3
Average wait5 years
Service start ageAge 8
Early-intervention years lost waiting3 years
Years after window closes before services2 years

The Evidence Chain

See the full analysis
ORIGINAL INVESTIGATION

Nineteen Years

At current clearance rates, the last child registered today waits nineteen years. The intervention window is six.

19year wait
INVESTIGATION

When Oversight Doesn't Follow the Money

$691M spent. One child waited 4.5 years. Zero core clinical services received.

4.5yrs — 0 services
FOI ACCOUNTABILITY

The FOI Accountability Gap

$57.9M flows to an entity not subject to Ontario's freedom of information law. No published independent audit.

$57.9M beyond FOI reach
See the full evidence chainAccountability mechanisms

All figures sourced from FAO reports, MCCSS FOI records, and the 2026 Ontario Budget.

01 · For new families

Just diagnosed?

Step-by-step guide to OAP registration, interim therapy options, and what to expect during the wait.

87,692children registered
Get started

02 · Already waiting

Already waiting?

Estimate your wait time, find funded interim services near you, and track your OAP status.

5+ yrsaverage wait
Check your options

03 · Take action

Want change?

Email your MPP with one click, share verified data, and advocate for system-wide reform.

2,400+letters sent
Write your MPP

Why this exists

A father who refused to stay silent.

“

My son was diagnosed with severe, non-verbal autism at 14 months. Like thousands of parents, I was told early intervention was critical. Then, like thousands of parents, I was placed on a waitlist that effectively has no end. Nothing about that is normal. Nothing about that is acceptable.

SCSpencer Carroll

Spencer Carroll

Founder · Applicant, Carroll v. Ontario (HRTO 2025-62264-I)

Read the full story

On the record

Carroll v. Ontario

Human Rights Tribunal · Case 2025-62264-I · Ongoing

Covered by

  • CBC NewsInvestigative
  • CBC RadioBroadcast
  • The TrilliumPolicy reporting
Founded 2023

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Peer-reviewed

Randomized, Controlled Trial of an Intervention for Toddlers With Autism: The Early Start Denver Model

Dawson G, Rogers S, Munson J, Smith M, Winter J, Greenson J, Donaldson A, Varley J · 2010

↗
Peer-reviewed

Early Identification of Autism Spectrum Disorder: Recommendations for Practice and Research

Zwaigenbaum L, Bauman ML, Stone WL, Yirmiya N, Estes A, Hansen RL, et al. · 2015

↗
Peer-reviewed

Early intensive behavioural intervention (EIBI) for young children with autism spectrum disorders (ASD)

Reichow B, Hume K, Barton EE, Boyd BA · 2018

↗
WHO

WHO Fact Sheet: Autism Spectrum Disorders

World Health Organization · 2023

↗
WHO

WHO Comprehensive Mental Health Action Plan 2013–2030 (updated 2021)

World Health Organization · 2021

↗

The data speaks. The media listened.

CBC and The Trillium have cited FOI-verified waitlist data in their reporting. The World Health Organization featured our founder in a global social media reel on early intervention.

CBC News·The Trillium·CBC Ottawa Morning·WHO Instagram·CBC News·The Trillium·CBC Ottawa Morning·WHO Instagram·CBC News·The Trillium·CBC Ottawa Morning·WHO Instagram·CBC News·The Trillium·CBC Ottawa Morning·WHO Instagram
Featured coverageCBC NewsMar 30, 2026

More than 67,500 Ontario children still waiting for core autism funding

Digital investigation citing FOI-verified waitlist data from End The Wait Ontario. The report contextualizes the scale of Ontario's autism-service backlog against early-intervention science.

Read full coverage
All press coverageAll press →
CBC Ottawa Morning
Mar 31, 2026

Ottawa father speaks out on five-year autism waitlist

The Trillium
Mar 25, 2026

Ottawa dad boosts 'accountability' with autism waitlist website

The Trillium
Mar 27, 2026

OAC demands $186M go 'exclusively' to core therapies

CBC News
Mar 30, 2026

More than 67,500 Ontario children still waiting for core autism funding

SC
Spencer Carroll
Founder & Parent Advocate
HRTO File 2025-62264-I · Applicant
Active proceeding. Allegations have not been proven.
“The most critical window for a child is between the ages of 0 to 6. These are time-sensitive interventions that require immediate access.”— Spencer Carroll, Founder

Every number on this site traces back to FOI responses, FAO reports, or Ontario Budget documents — no estimates, no rounding. See the methodology →

Read full storyWatch WHO clip
WHO

WHO Instagram · Global feature

A parent advocate's message, carried by the World Health Organization.

Featured in a WHO social media reel on early autism intervention — reaching the organization's global audience on evidence-based care.

Watch clip
4+
Major outlets citing FOI data
1
WHO global social feature
2026
Coverage year, ongoing
100%
Sourced to FOI, FAO, or Ontario Budget

Waitlist figures cited in the headlines above match the canonical FOI dataset (87,692 children registered, last verified 2026-04-26). Source: methodology.