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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP

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  • Toronto
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  • London
  • Mississauga
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  • File Complaint
  • Advocacy Toolkit

About

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP
  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions
  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?
  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit
  • Our Story
  • Transparency
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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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How many children are on the Ontario autism waitlist in 2026?

As of January 2026, **88,175 children are registered with the Ontario Autism Program**. [FOI] However, only **20,666 (23.4%)** have an active Core Funding Agreement. This represents approximately 285% growth in the waitlist since 2019, with over 67,000 children still waiting for essential funding.

Source: CBC FOI Jan 2026, FAO Report 2024

How long do families wait for Ontario autism services?

Ontario autism wait times for core clinical services now exceed **5+ years** (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists. [FAO]

Source: CBC FOI Jan 2026, FAO Report 2024

How long does autism diagnosis take in Ontario?

Before joining the OAP waitlist, Ontario diagnostic waitlists average **12–24 months** at public hospitals. [OAP] This pre-waitlist delay means total time from first concern to therapy often exceeds **5–7 years**, an invisible bottleneck in official statistics.

Source: Ontario Autism Program [OAP]

Is private autism assessment faster in Ontario?

Private autism assessments cost **$2,000–$4,000** but reduce wait times from years to weeks. [OAP] Many families face the choice of paying out-of-pocket to access the OAP sooner or waiting while their child misses the critical early intervention window.

Source: Ontario Autism Program [OAP]

Comorbidity

Autism and Anxiety: Prevalence, Impact, and Ontario Supports

Anxiety disorders are among the most common co-occurring conditions in autistic individuals, with meta-analytic prevalence estimates of approximately 40% — significantly higher than the 15-20% prevalence in the general population. Anxiety in autism often presents differently than in neurotypical individuals, making it harder to recognize and treat. Untreated anxiety compounds autism-related challenges, increasing social withdrawal, rigidity, sensory sensitivity, and meltdowns.

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  3. ›Autism and Anxiety Disorders in Ontario | Support Guide

~40%

Anxiety prevalence in autistic individuals

van Steensel et al., 2019 — meta-analysis

Specific phobia (29.8%)

Most common anxiety type in autism

van Steensel et al., 2019

15-20%

General population anxiety prevalence

Public Health Agency of Canada, 2022

0.69 (moderate-large)

CBT effect size for anxiety in autism

Ung et al., 2015 — meta-analysis in Clinical Psychology Review

Prevalence and Presentation

A 2019 meta-analysis by van Steensel et al. found that 39.6% of autistic children and adolescents meet criteria for at least one anxiety disorder, with specific phobia (29.8%), social anxiety disorder (16.6%), and generalized anxiety disorder (15.4%) being most common. Rates are even higher in autistic individuals without intellectual disability, likely because greater awareness of social expectations amplifies anxiety.

Anxiety in autism often presents atypically. Instead of verbal reports of worry, autistic individuals may show increased repetitive behaviours, sensory avoidance, insistence on sameness, selective mutism, or physical symptoms (stomach aches, headaches). This atypical presentation means standard anxiety screening tools may miss the condition — clinicians need autism-adapted assessment approaches.

In Ontario, families frequently report that anxiety symptoms are misattributed entirely to autism ("that's just the autism") without investigation of a treatable co-occurring anxiety disorder. Advocating for thorough assessment is critical.

Evidence-Based Treatment in Ontario

Cognitive Behavioural Therapy (CBT) adapted for autism is the first-line treatment for anxiety in autistic individuals. Modified CBT protocols use visual supports, concrete language, special interest integration, and extended treatment duration. Research supports the effectiveness of autism-adapted CBT, with meta-analyses showing moderate to large effect sizes.

Medication (typically SSRIs) may be appropriate for moderate to severe anxiety. Autistic individuals are more sensitive to medication side effects, so the "start low, go slow" approach is standard practice. Combining CBT with medication often produces the best outcomes for significant anxiety.

Ontario-specific resources include: psychologists covered under OAP clinical services, Children's Mental Health Ontario member agencies (free services for children and youth), and the Ontario Structured Psychotherapy program (free CBT for adults through primary care).

Frequently Asked Questions

How can I tell if my autistic child has anxiety or if it's "just autism"?
Look for changes from baseline: increased repetitive behaviours, new avoidance patterns, sleep disruption, physical complaints (stomach aches, headaches), or intensified meltdowns. If these symptoms wax and wane with specific situations or stressors, anxiety is likely contributing. A clinician experienced in both autism and anxiety can conduct a thorough assessment.
Is standard CBT effective for autistic individuals?
Standard CBT needs modification for autistic individuals. Effective adaptations include visual supports, concrete examples, integration of special interests, extended session duration, and parent involvement. Research shows that autism-adapted CBT is effective with moderate to large effect sizes. Look for therapists specifically trained in modified CBT for autism.
Can the OAP cover anxiety treatment for my autistic child?
OAP clinical services can address anxiety as part of a comprehensive intervention plan when it affects the child's daily functioning. Additionally, Children's Mental Health Ontario agencies provide free anxiety treatment for children and youth regardless of autism diagnosis. Ask your OAP service provider to include anxiety-related goals in the service plan.

Sources

1

van Steensel, F.J.A. et al.

Anxiety Disorders in Children and Adolescents with Autistic Spectrum Disorders: A Meta-Analysis. Clinical Child and Family Psychology Review, 2019; 14(3):302-317

2

Ung, D. et al.

CBT for Anxiety in Children with ASD: A Systematic Review and Meta-Analysis. Clinical Psychology Review, 2015; 36:68-78

Related Topics

Autism and ADHD: Understanding Co-Occurrence in Ontario

comorbidity

Autism and Mental Health: A Comprehensive Ontario Guide

comorbidity

Autism and Sleep: Addressing Sleep Challenges in Ontario

comorbidity

Verified References & Sources

Updated: Mar 2026

Government Reports & Data

[2023]
Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
Community Living Ontario • Report • 2023-10-01
View
[2024]
Inclusion Without Proper Support Is AbandonmentVerified FAO Data
Elementary Teachers' Federation of Ontario • Report • 2024-06-01
View
[2020]
Autism ServicesVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
View
[2024]
Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2024-02-29
View
[2025]
Ontario Autism Coalition FOI update on Ontario Autism Program registrations and fundingVerified FAO Data
Ontario Autism Coalition • Report • 2025-12-10
View

Commitment to Accuracy: Our data is verified against official government reports (FAO, MCCSS), peer-reviewed scientific literature, and accessible public records. Last updated: March 24, 2026.

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About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

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Verified Facts

Facts cited on this page

1 in 50, According to the 2019 Canadian Health Survey on Children and Youth, about children and youth aged 1 to 17 in Canada had an autism diagnosis

Gov / Peer-ReviewedPublic Health Agency of Canada (2024)Verified: 2024-03-26

88,175, children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15

23.4%, Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29
View our methodologyView all sourcesNext data update: 2026-07-28