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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP

Your Region

  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
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  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?

Take Action

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  • File Complaint
  • Advocacy Toolkit

About

  • Our Story
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  • Media References
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  • Press
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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP
  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions
  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?
  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit
  • Our Story
  • Transparency
  • Media References
  • Founder
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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

Legal|Privacy|Terms|Cookies|Accessibility|Corrections|Authority

Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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How many children are on the Ontario autism waitlist in 2026?

As of January 2026, **88,175 children are registered with the Ontario Autism Program**. [FOI] However, only **20,666 (23.4%)** have an active Core Funding Agreement. This represents approximately 285% growth in the waitlist since 2019, with over 67,000 children still waiting for essential funding.

Source: CBC FOI Jan 2026, FAO Report 2024

How long do families wait for Ontario autism services?

Ontario autism wait times for core clinical services now exceed **5+ years** (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists. [FAO]

Source: CBC FOI Jan 2026, FAO Report 2024

How long does autism diagnosis take in Ontario?

Before joining the OAP waitlist, Ontario diagnostic waitlists average **12–24 months** at public hospitals. [OAP] This pre-waitlist delay means total time from first concern to therapy often exceeds **5–7 years**, an invisible bottleneck in official statistics.

Source: Ontario Autism Program [OAP]

Is private autism assessment faster in Ontario?

Private autism assessments cost **$2,000–$4,000** but reduce wait times from years to weeks. [OAP] Many families face the choice of paying out-of-pocket to access the OAP sooner or waiting while their child misses the critical early intervention window.

Source: Ontario Autism Program [OAP]

Comorbidity

Autism and Intellectual Disability: Ontario Services and Support

Approximately 30-40% of autistic individuals also have an intellectual disability (ID), defined as an IQ below 70 with concurrent deficits in adaptive functioning. This dual diagnosis has profound implications for service planning, educational placement, transition to adulthood, and long-term residential and employment support. In Ontario, individuals with dual ASD-ID may access services through both the autism program stream and the developmental services stream, but navigating both systems requires careful coordination.

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  3. ›Autism and Intellectual Disability in Ontario | Dual Diagnosis

30-40%

Co-occurrence rate (ID in autism)

Postorino et al., 2021 — meta-analysis

Below 70 with adaptive deficits

ID definition threshold (IQ)

DSM-5, American Psychiatric Association

Age 16

Recommended DSO application age

Developmental Services Ontario guidelines

20,000+

Adults with ID waiting for residential supports in Ontario

Ontario Ombudsman, Nowhere to Turn, 2016 (updated 2024 estimates)

Prevalence and Assessment

The reported co-occurrence rate of intellectual disability in autism has changed over time as diagnostic practices have evolved. Earlier studies reported rates of 50-70%, but recent population-based studies using broader autism diagnostic criteria find rates of 30-40%. A 2021 meta-analysis by Postorino et al. confirmed a pooled prevalence of approximately 33% across 38 studies.

Cognitive assessment in autistic individuals requires instruments validated for this population. Standard IQ tests may underestimate abilities due to the influence of language delays, social demands of the testing situation, and attentional differences. Ontario clinicians increasingly use non-verbal IQ measures (e.g., Leiter-3) and adaptive behaviour assessments (Vineland-3) to provide a more accurate picture.

Ontario Services for Dual ASD-ID

In Ontario, individuals with dual ASD-ID can access services through multiple pathways. The Ontario Autism Program provides clinical services during childhood. Developmental Services Ontario (DSO) provides the gateway to adult developmental services including residential supports, day programs, and Passport funding for community participation.

Eligibility for adult developmental services requires a DSO application, which should be initiated at age 16 to allow processing time before the youth turns 18. The DSO assessment determines eligibility based on the intellectual disability, not the autism diagnosis — meaning that autistic individuals without ID do not qualify for adult developmental services, creating a significant service gap.

The Surrey Place Dual Diagnosis Program in Toronto and regional dual diagnosis justice programs serve individuals with complex co-occurring presentations. Community Networks of Specialized Care provide consultation and support for challenging situations across Ontario.

Frequently Asked Questions

Does my child need a separate ID diagnosis to access developmental services?
Yes. Developmental Services Ontario requires documentation of an intellectual disability — an autism diagnosis alone does not qualify for adult developmental services. The assessment must show an IQ below approximately 70 and significant deficits in adaptive functioning. This assessment should be completed before your child turns 18.
What happens to services when my child with dual ASD-ID turns 18?
At 18, OAP eligibility ends and adult developmental services become the primary support pathway. Apply to DSO at age 16 to ensure continuity. Adults with dual ASD-ID may also qualify for ODSP income support, Passport funding for community participation, and residential support — though waitlists for residential placements average 8-10 years.
Can IQ tests accurately assess autistic children?
Standard IQ tests may underestimate autistic children's abilities due to language demands, social testing conditions, and attentional differences. Request that the assessor use autism-appropriate instruments including non-verbal IQ measures and adaptive behaviour assessments. Multiple assessment sessions may be needed for accurate results.

Sources

1

Postorino, V. et al.

Intellectual Disability in Autism Spectrum Disorder: Updated Meta-Analysis. European Journal of Psychiatry, 2021; 35(3):187-198

2

Developmental Services Ontario

Eligibility and application guidelines for adult developmental services, 2024

Related Topics

Autism and Epilepsy: What Ontario Families Need to Know

comorbidity

Turning 18 with Autism: The Complete Ontario Transition Guide

life-stage

Autism and Employment: Navigating the Ontario Job Market

life-stage

Verified References & Sources

Updated: Mar 2026

Government Reports & Data

[2023]
Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
Community Living Ontario • Report • 2023-10-01
View
[2024]
Inclusion Without Proper Support Is AbandonmentVerified FAO Data
Elementary Teachers' Federation of Ontario • Report • 2024-06-01
View
[2020]
Autism ServicesVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
View
[2024]
Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2024-02-29
View
[2025]
Ontario Autism Coalition FOI update on Ontario Autism Program registrations and fundingVerified FAO Data
Ontario Autism Coalition • Report • 2025-12-10
View

Commitment to Accuracy: Our data is verified against official government reports (FAO, MCCSS), peer-reviewed scientific literature, and accessible public records. Last updated: March 24, 2026.

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About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

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Verified Facts

Facts cited on this page

1 in 50, According to the 2019 Canadian Health Survey on Children and Youth, about children and youth aged 1 to 17 in Canada had an autism diagnosis

Gov / Peer-ReviewedPublic Health Agency of Canada (2024)Verified: 2024-03-26

88,175, children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15

23.4%, Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29
View our methodologyView all sourcesNext data update: 2026-07-28