Direct answer

Substitute Decision-Makers for Autistic Individuals in Ontario

Verified answerVerified 2026-08-26

Direct answer

If the person is not capable, the health care practitioner turns to a substitute decision-maker. A guardian or attorney for personal care has priority, and the Public Guardian and Trustee acts when no one is available or decision-makers conflict.

16
Minimum age for personal-care POA
https://www.ontario.ca/page/make-power-attorney
May direct Legal Aid Ontario to arrange representation
CCB legal representation power
https://www.ontario.ca/page/mental-capacity

The numbers behind this answer

Every answer on this site sits on the same verified counts. These are the current figures.

FOI & Government Data
Last verified: May 13, 2026Sources: FAO Report 2023-24 (Financial Accountability Office of Ontario) · 2026 Ontario Budget (tabled March 26, 2026) · CBC News FOI investigation — bi-weekly OAP progress reports, Jun 2024 – Jan 2026, published Mar 30, 2026 (Nicole Brockbank & Angelina King) · MCCSS bi-weekly OAP Core Clinical Services progress reports, Dec 10, 2025 – Mar 4, 2026, obtained under Freedom of Information (release CSS2026-0749) · MCCSS Ontario Autism Program figures as of May 13, 2026, released under Freedom of Information to the Ontario Autism Coalition and published in the OAC "OAP At A Glance" update, July 2026 (ontarioautismcoalition.com)
Last Updated:
About This Article

Published:

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Founder & Autism Advocate

Parent of autistic child navigating OAP system

Substitute Decision-Makers for Autistic Individuals in Ontario

  • Minimum age for personal-care POA: 16 (https://www.ontario.ca/page/make-power-attorney)
  • CCB legal representation power: May direct Legal Aid Ontario to arrange representation (https://www.ontario.ca/page/mental-capacity)

When a substitute makes a treatment decision

Capacity is not all-or-nothing: a person can be capable of one kind of decision but not another, and capacity can change over time.

If the person is not capable, the practitioner turns to a substitute. Ontario’s public guidance says a guardian or attorney for personal care has priority. If no one is available or decision-makers conflict, the Office of the Public Guardian and Trustee makes the decision on the incapable person’s behalf.

Planning with a power of attorney for personal care

An attorney for personal care can make decisions about health care, housing, meals, clothing, and other aspects of personal life within the authority granted by the document.

Ontario says a person must be mentally capable and at least 16 years old to make a personal-care power of attorney. Ontario also says the person may prepare the document without a lawyer or have a lawyer prepare it.

Consent and Capacity Board routes

The available Consent and Capacity Board route depends on the issue. Ontario Ministry of Health forms include applications to review a finding of incapacity, appoint a representative, and obtain directions under the Health Care Consent Act.

Ontario’s mental-capacity guidance says that, in a Health Care Consent Act case, the Consent and Capacity Board can direct Legal Aid Ontario to arrange legal representation. This is different from a promise that every financially eligible person will receive funded representation.

Frequently asked questions

Sources

1

Ontario Ministry of the Attorney General

Mental capacity, health-care substitutes, priority, Public Guardian and Trustee fallback, and legal representation

Checked 2026-08-26

2

Ontario Ministry of the Attorney General

Making a power of attorney, minimum age, and personal-care authority

Checked 2026-08-26

3

Ontario Ministry of Health Central Forms Repository

Consent and Capacity Board application forms under the Health Care Consent Act

Checked 2026-08-26

Next step near you

Local route

Where to be assessed near you

Assessment routes, local providers and school boards are tracked city by city. Pick the one closest to you.

See every Ontario city we track

The clock

Where the wait clock starts

A child's place in the Ontario Autism Program queue is set by the AccessOAP registration date. 71,263 children are registered and still waiting for core funding (MCCSS FOI via OAC · May 2026).

Evidence for this answer

Updated:

Government Reports & Data

  • [2024]
    Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
    Financial Accountability Office of Ontario (FAO)Report 2024-06-05
  • [2026]
    Ontario Autism Program figures as of May 13, 2026 (MCCSS, released under Freedom of Information to the Ontario Autism Coalition; published in the OAC "OAP At A Glance" update, July 2026)Verified FAO Data
    Ministry of Children, Community and Social Services (Ontario), obtained by the Ontario Autism CoalitionReport 2026-05-13

Official Organizations

  • [2023]
    Autism Spectrum Disorders Fact SheetOfficial Source
    World Health Organization (WHO)Official 2023-11-15

Commitment to Accuracy: Our data is verified against official government reports (FAO, MCCSS), peer-reviewed scientific literature, and accessible public records. Last updated: March 24, 2026.

Next Steps

Next Steps

These statistics represent real children missing their critical developmental windows.

Citable source facts(3)Question-and-answer pairs with their source and verification link.

How many children are on the Ontario autism waitlist in 2026?

Verified

As of May 13, 2026, 91,974 children are registered with the Ontario Autism Program. However, only 20,711 (22.5%) have an active Core Funding Agreement. This represents ~300% growth in registrations since 2019, with 71,263 children still waiting for essential funding.

Source: MCCSS FOI via OAC · Mar 2026, FAO Report 2024 · Verify Link

How long do families wait for Ontario autism services?

Verified

Ontario autism wait times for core clinical services now exceed 5+ years (Ontario Autism Coalition, July 2026). Funding invitations are currently reaching families who registered in August 2021 (Ontario Autism Coalition, July 2026 (reported from community intake)). This delay far exceeds the sensitive early intervention window recommended by developmental specialists.

Source: MCCSS FOI via OAC · Mar 2026, FAO Report 2024 · Verify Link

Is the Ontario Autism Program underfunded?

Verified

Yes. The Financial Accountability Office (FAO) determined that $1.35 billion annually is needed to serve all registered children at 2018-19 service levels. The 2026-27 Ontario Budget allocated $965 million, leaving an estimated $385M+ annual shortfall. This gap is the primary driver of the perpetual 91,974+ child waitlist.

Source: Financial Accountability Office of Ontario [FAO] · Verify Link

About This Article

Written by

Founder & Autism Advocate

Parent of autistic child navigating OAP system