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end|thewaitontario

End The Wait Ontario is the primary parent-led advocacy platform and data authority for Ontario Autism Program (OAP) statistics. Serving families, researchers, and journalists across Toronto, Ottawa, Hamilton, London, and all regions of Ontario.

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  • Diagnosis Guide
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  • How Long Is the Wait?
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  • Funding Amounts

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  • Next Steps Tool
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  • Funding Estimator
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end|thewaitontario

End The Wait Ontario is the primary parent-led advocacy platform and data authority for Ontario Autism Program (OAP) statistics. Serving families, researchers, and journalists across Toronto, Ottawa, Hamilton, London, and all regions of Ontario.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP

Your Region

  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions

Evidence & Data

  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?

Take Action

  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit

About

  • Our Story
  • Transparency
  • Media References
  • Founder
  • Press
  • Contact
end|thewaitontario

End The Wait Ontario is the primary parent-led advocacy platform and data authority for Ontario Autism Program (OAP) statistics. Serving families, researchers, and journalists across Toronto, Ottawa, Hamilton, London, and all regions of Ontario.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP
  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions
  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?
  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit
  • Our Story
  • Transparency
  • Media References
  • Founder
  • Press
  • Contact

Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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Speak softly and carry a big stick. — Theodore Roosevelt

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

Skip to investigation
Ontario Autism Program investigation

Scored in the Dark

Ontario built a hidden test that helps decide how much therapy an autistic child receives. Then it convinced a tribunal that letting parents see the scoring rules could threaten the province’s finances.

Send this evidence to your MPPRead the public sources
26
pages withheld

Determination of Needs Tool withheld in full under PO-4494.

~90
items scored

Semi-structured assessment across ten domains.

10
domains

Communication, social, daily living, sensory, behaviour, and more.

10x
funding spread

Roughly $6,600 to $65,000 per child per year.

Read this first

What happened

A parent requested the criteria used to decide a child’s OAP core-services budget. The ministry found one record: the 26-page Determination of Needs Tool. It withheld the tool in full.

Why it matters

The tool feeds a funding band across a large yearly range. Families provide intimate information about their child but cannot inspect the scoring criteria.

What families can do

Request the completed assessment record, ask how the band was calculated, and ask elected officials whether public scoring criteria should remain hidden.

The hidden test

Families answer the questions. They cannot inspect the scoring rulebook.

Every family seeking OAP core clinical services goes through a Determination of Needs process. The ministry describes it as a semi-structured interview built around roughly 90 items across ten domains. A care coordinator asks questions, records intimate details about a child’s life, and assigns ratings that feed into a funding band.

The public can know the domains. Parents can describe the needs. But the scoring framework that converts those answers into a funding level remains sealed.

Ten domains, one hidden score

10 domains

Communication

rated ▓▓▓

Social interaction

rated ▓▓▓

Play and leisure

rated ▓▓▓

Activities of daily living

rated ▓▓▓

Motor skills

rated ▓▓▓

Cognitive skills

rated ▓▓▓

Sensory system

rated ▓▓▓

Interfering behaviours

rated ▓▓▓

Mental health

rated ▓▓▓

Adaptability and resilience

rated ▓▓▓

Source: Source: IPC Order PO-4494, ministry description of the Determination of Needs Tool.

One conversation, a tenfold spread

The hidden score can shape a funding range from about $6,600 to $65,000.

The point is not that every child should receive the same amount. The point is that a hidden instrument can move a family across a large annual funding range, while the family cannot see the rubric used to make that movement.

Estimated annual funding point

$48,648

Extensive support band

$6,600$65,000

Why this matters: one hidden score can move a child across a funding range of roughly $58,400 per year.

Source: Source: Financial Accountability Office of Ontario, MCCSS Spending Plan Review.

The rationale

Ontario defended secrecy by treating parents as a future fraud risk.

Parent position

What parents asked for

The criteria used to decide how much therapy funding their child receives.

Section 18(1)(d)

Government position

What Ontario argued

Disclosure could let some families misrepresent needs, increase payouts, and harm the province’s finances.

The severe implication is not subtle. The argument was not just that the tool was internal. It was that releasing it could allow some families to coach answers and obtain more public money than they deserve.

The order records no proven public case of a family gaming the tool. The legal test did not require proof of actual fraud. It required a reasonable expectation of harm.

“A program for disabled children was defended, successfully, on the premise that the parents of those children are a fraud risk.”

The comparison

The legal analogy reached back to lottery-ticket security codes.

One of the most memorable pieces of the order is the analogy. The ministry relied on earlier IPC reasoning about lottery transaction security numbers: information withheld because disclosure could help people game a payout system.

Ontario lottery

INSTANT-WIN

07 21 44 09 53

Security information concealed to prevent gaming a payout system.

Same legal
treatment

Determination of Needs

OAP child

Communication ▓▓▓

Sensory system ▓▓▓

Funding score ▓▓▓

A child’s needs assessment treated as fraud-sensitive scoring information.

A child is not a lottery ticket. That is precisely why the analogy matters. The public assessment of a disabled child was placed inside the same financial-harm logic as concealed payout-system security information.

Source: Source: IPC Order PO-4494, adopting reasoning from Order PO-1799.

The numbers

The record does not show a system overrun by parents taking too much. It shows a system where most children receive nothing.

88,175

registered children

20,666

in core clinical services

67,509

waiting

The dominant risk shown by the public data is not overpayment. It is non-delivery. Tens of thousands of children remain registered and waiting while only a minority have reached core clinical services.

The pipe

The same process that assigns funding also consumes system capacity.

88,175

registered children enter

Annual

determination and reassessment load

20,666

funded — 23.4%

67,509

still waiting — 76.6%

When annual reassessments consume more of the pipe, fewer new children move off the waitlist.

The court record

Ontario already admitted the old model had a conflict problem.

In litigation over the OAP redesign, Ontario’s own evidence criticized the old model because the clinicians who assessed the child and set funding levels were also the people delivering the therapy and being paid from it.

The new system may have changed the conflict. But because the assessment tool is sealed and administered through a private consortium, the public cannot fully evaluate whether the conflict was eliminated or moved behind contract walls.

$52,000

legacy yearly ceiling

→

$41,400

redesigned maximum

Source: Source: companion Divisional Court judicial-review decisions and IPC Order PO-4494.

Structural caution

Public money now flows through a private administrative black box.

Responsible-publication guardrail

This page makes no allegation that AccessOAP, Accerta Services Inc., McMaster University, Autism Ontario, or Serefin has misused public money or acted improperly. The issue is structural transparency: a public scoring process, private administration, and a tool the public cannot inspect.

Public money

$691M program

Tax-funded, ministry-owned program.

→

The needs assessment

Sealed tool

Withheld in full under PO-4494.

→

Private administration

AccessOAP consortium

Accerta, Autism Ontario, McMaster, Serefin.

→

Beyond direct FIPPA access

Limited visibility

Internal consortium records are not directly requestable by families.

The issue is structural. A public scoring process can be administered by non-ministry actors using a tool the public cannot inspect. Families can request records from the ministry. They cannot file FIPPA requests directly against the consortium for its internal records.

The appeal problem

How do you dispute a score generated by a rulebook you are not allowed to read?

Family position

“Show us how the score was produced.”

?

System position

“You may dispute the level, but not see the full tool.”

If your child has been scored

What families can ask next

  1. 01

    Ask for your child’s completed assessment record.

  2. 02

    Ask how the level-of-need band was calculated.

  3. 03

    Ask what dispute or appeal pathway applies.

  4. 04

    Ask your MPP whether families should be allowed to see the scoring criteria.

General advocacy information only. Not legal advice.

What remains unanswered

The public does not need accusations. It needs answers.

01

Who built the Determination of Needs Tool?

02

Was it clinically validated or peer-reviewed?

03

Why is the Passport tool partly public, but the autism tool fully sealed?

04

What performance data does AccessOAP hold?

05

Has Ontario identified any real cases of parents gaming the tool?

06

How does the new model avoid the conflict Ontario criticized in the old one?

07

How can families meaningfully dispute a score generated by a hidden instrument?

08

Would a request for a completed child assessment succeed where the blank tool failed?

09

Do Ontario’s disability-funding algorithms discriminate among classes of disabled people?

Parents are not asking to cheat the system

They are asking to see the rules used to score their children.

The father in PO-4494 lost his appeal. The tool remains secret. Every year, families sit for a conversation that can shape a child’s therapy funding while the scoring criteria remain hidden.

Send this to your MPPReview the sources

Direct answers

Frequently asked questions

What is the OAP Determination of Needs Tool?+

It is the Ontario Autism Program assessment instrument used to score a child across roughly 90 items and ten domains before assigning a core clinical services funding level.

Why is the OAP scoring tool secret?+

In IPC Order PO-4494, Ontario argued disclosure could let some families misrepresent needs and harm the province’s financial interests. The IPC allowed the tool to be withheld in full.

What was IPC Order PO-4494?+

PO-4494 is a March 4, 2024 Ontario Information and Privacy Commissioner order about a freedom-of-information request for the OAP Determination of Needs Tool.

Can parents appeal an OAP needs score?+

Ontario points to a dispute process for level-of-need decisions, but families cannot inspect the full scoring instrument used to produce the score they are disputing.

How much OAP core funding can a child receive?+

The Financial Accountability Office describes core clinical services funding as ranging from roughly $6,600 to $65,000 per child per year, depending on assessed need.

Can families request their child’s completed assessment?+

Families can ask for records about their own child and should request the completed assessment record, the level-of-need calculation, and the dispute pathway that applies.

Sources and method

Built from the public record

The page should keep sources visible at the claim level, not only at the bottom. This section is still useful for journalists, researchers, and families who need the underlying record.

PO-4494Mar. 4, 2024

IPC Order PO-4494

The autism Determination of Needs Tool was withheld in full under FIPPA section 18(1)(d).

PO-4585Jan. 13, 2025

IPC Order PO-4585

Passport prioritization-tool order that adopted the PO-4494 reasoning, with limited disclosure where material was already public.

FAOJune 5, 2024

MCCSS Spending Plan Review

FAO autism-service funding figures, core clinical funding range, and OAP spending data.

FOIDec. 10, 2025

Waitlist data

OAC FOI summary: 88,175 registered, 20,666 funded, 67,509 waiting.

Storyline

OpeningThe hidden testFunding spreadFraud rationaleLottery logicWaitlistBottleneckCourt recordPrivate black boxAppeal problemQuestionsSources
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

Verified Facts

Facts cited on this page

View our methodologyView all sourcesNext data update: 2026-09-10