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End The Wait Ontario is a parent-led advocacy organization. We publish FOI-verified data on the Ontario Autism Program waitlist and push for evidence-based reform. Built for Ontario families, researchers, and journalists.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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Speak softly and carry a big stick.·The data is the stick.·Follow the data. Demand the standard.

Founded by the family behind Carroll v. Ontario, a human-rights case about autism wait times (HRTO 2025-62264-I, not yet decided).

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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Guide

How to Create a Crisis Plan for Families of Autistic Individuals in Ontario

A crisis plan helps families respond safely and effectively when an autistic family member experiences extreme distress. Having a written plan reduces panic, improves communication with first responders, and protects everyone involved. This guide walks you through building a plan you can share with schools, caregivers, and emergency services.

This is an independent advocacy resource providing publicly available information. It does not represent any government body, professional organization, or service provider.

How to Create a Crisis Plan for Families of Autistic Individuals in Ontario, Quick Summary

  • A crisis plan helps families respond safely and effectively when an autistic family member experiences extreme distress.
  • Identify Common Triggers and Warning Signs
  • Create De-Escalation Strategies
  • Prepare an Emergency Contacts List
  • Estimated time: 1-2 days · Difficulty: beginner
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  3. ›How to Create an Autism Family Crisis Plan | End The Wait Ontario
Beginner1-2 days

On this page

  1. Identify Common Triggers and Warning Signs
  2. Create De-Escalation Strategies
  3. Prepare an Emergency Contacts List
  4. Write a Crisis Communication Card
  5. Share the Plan with Schools and Caregivers
  6. Review and Update the Plan Quarterly
Identify Common Triggers and Warning SignsCreate De-Escalation StrategiesPrepare an Emergency Contacts ListWrite a Crisis Communication CardShare the Plan with Schools and CaregiversReview and Update the Plan Quarterly

Identify Common Triggers and Warning Signs

List the situations, sensory inputs, or changes in routine that typically trigger a crisis for your family member. Note the early warning signs such as increased stimming, verbal escalation, or withdrawal. Understanding patterns is the first step to prevention.

Create De-Escalation Strategies

Work with your family member's therapist or BCBA to develop specific de-escalation techniques. Strategies may include offering a quiet space, using visual supports, reducing sensory input, or using a calm voice. Write down exactly what to do and what to avoid during each stage of escalation.

Prepare an Emergency Contacts List

List phone numbers for your family doctor, therapist, local crisis line, and trusted family members. Include the MCCSS crisis line and your regional children's mental health agency. Keep printed copies in your home, car, and your child's school file.

Write a Crisis Communication Card

Create a wallet-sized card that explains your family member's autism diagnosis, communication style, and triggers. Include instructions for first responders such as "speak slowly," "do not touch without warning," or "this person is nonverbal." This card can prevent misunderstandings during a crisis.

Share the Plan with Schools and Caregivers

Give a copy of the full crisis plan to your child's school, respite provider, and any other regular caregivers. Walk them through the plan in person so they understand each step. Ask them to confirm they have read and will follow the plan.

Review and Update the Plan Quarterly

Set a calendar reminder to review the crisis plan every three months. Update triggers, strategies, and contacts as your family member grows and changes. Practise the plan with family members so everyone knows their role during a crisis.

Evidence

Evidence and sources

1

Children's Mental Health Ontario

Crisis services and resources for families of children with developmental disabilities (cmho.org)

2

Autism Ontario

Safety resources and crisis planning tools for autism families (autismontario.com)

Frequently asked questions

1

Should I call 911 during an autism crisis?

Call 911 if there is immediate danger to life or safety. If there is no immediate danger, a crisis line may help you de-escalate. Tell dispatch the person is autistic and may not respond to commands. Request a Mobile Crisis Intervention Team if available.

2

What is a Mobile Crisis Intervention Team?

MCITs pair a police officer with a mental health nurse to respond to some crisis calls. They are available in some Ontario cities including Toronto, Ottawa, and Hamilton. Ask local dispatch what crisis response options exist in your area.

3

Can I include my child in creating the crisis plan?

Yes, if your child is able to participate. Involving them helps the plan reflect their actual experience and preferences. Even nonverbal individuals can contribute through their therapist using visual supports or assistive communication devices.

Related pages

How to Document Your Child's Sensory Needs for Ontario Schools

Intermediate · 2-4 weeks

How to Communicate an Autism Diagnosis to Your Child's School in Ontario

Beginner · 1-2 weeks

Verified References & Sources

Updated: Mar 2026

Government Reports & Data

  • [2023]
    Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
    Community Living Ontario • Report • 2023-10-01
    View
  • [2024]
    Inclusion Without Proper Support Is AbandonmentVerified FAO Data
    Elementary Teachers' Federation of Ontario • Report • 2024-06-01
    View
  • [2020]
    Autism ServicesVerified FAO Data
    Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
    View
  • [2024]
    Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
    Financial Accountability Office of Ontario (FAO) • Report • 2024-06-05
    View
  • [2026]
    Ontario Autism Program figures as of May 13, 2026 (MCCSS, released under Freedom of Information to the Ontario Autism Coalition; published in the OAC "OAP At A Glance" update, July 2026)Verified FAO Data
    Ministry of Children, Community and Social Services (Ontario), obtained by the Ontario Autism Coalition • Report • 2026-05-13
    View

Next Steps

Where the waitlist stands

Families navigating autism services in Ontario face a documented multi-year wait. Here is the Ontario data — and a two-minute way to push back, when you are ready.

See where the waitlist standsEmail Your MPP

Related Resources

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  • Questions Answered
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  • What Should I Do First?
Citable source facts(3)Question-and-answer pairs with their source and verification link.

How many children are on the Ontario autism waitlist in 2026?

Verified

As of May 13, 2026, 91,974 children are registered with the Ontario Autism Program. However, only 20,711 (22.5%) have an active Core Funding Agreement. This represents approximately 290% growth in registrations since 2019, with 71,263 children still waiting for essential funding.

Source: MCCSS FOI via OAC · Mar 2026, FAO Report 2024 · Verify Link

How long do families wait for Ontario autism services?

Verified

Ontario autism wait times for core clinical services now exceed 5+ years (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists.

Source: MCCSS FOI via OAC · Mar 2026, FAO Report 2024 · Verify Link

Is the Ontario Autism Program underfunded?

Verified

Yes. The Financial Accountability Office (FAO) determined that $1.35 billion annually is needed to serve all registered children at 2018-19 service levels. The 2026-27 Ontario Budget allocated $965 million, leaving an estimated $385M+ annual shortfall. This gap is the primary driver of the perpetual 91,974+ child waitlist.

Source: Financial Accountability Office of Ontario [FAO] · Verify Link

About This Article

Written by Spencer Carroll

Founder & Autism Advocate

Parent of autistic child navigating OAP system