Guide

How to Create a Crisis Plan for Families of Autistic Individuals in Ontario

A crisis plan helps families respond safely and effectively when an autistic family member experiences extreme distress. Having a written plan reduces panic, improves communication with first responders, and protects everyone involved. This guide walks you through building a plan you can share with schools, caregivers, and emergency services.

How to Create a Crisis Plan for Families of Autistic Individuals in Ontario, Quick Summary

  • A crisis plan helps families respond safely and effectively when an autistic family member experiences extreme distress.
  • Identify Common Triggers and Warning Signs
  • Create De-Escalation Strategies
  • Prepare an Emergency Contacts List
  • Estimated time: 1-2 days · Difficulty: beginner
Beginner1-2 days

Identify Common Triggers and Warning Signs

List the situations, sensory inputs, or changes in routine that typically trigger a crisis for your family member. Note the early warning signs such as increased stimming, verbal escalation, or withdrawal. Understanding patterns is the first step to prevention.

Create De-Escalation Strategies

Work with your family member's therapist or BCBA to develop specific de-escalation techniques. Strategies may include offering a quiet space, using visual supports, reducing sensory input, or using a calm voice. Write down exactly what to do and what to avoid during each stage of escalation.

Prepare an Emergency Contacts List

List 911, your family doctor, a local crisis helpline, and relatives or friends who can help. Add the contact information for the OAP urgent response lead organization in your area, but remember that urgent response services are not 24/7 crisis supports. Keep the list easy to find at home and put copies in your emergency kit and car. If the plan is for a child, keep the school's contact information up to date.

Write a Crisis Communication Card

Create a wallet-sized card that explains your family member's autism diagnosis, communication style, and triggers. Include instructions for first responders such as "speak slowly," "do not touch without warning," or "this person is nonverbal." This card can prevent misunderstandings during a crisis.

Share the Plan with Schools and Caregivers

Give a copy of the full crisis plan to your child's school, respite provider, and any other regular caregivers. Walk them through the plan in person so they understand each step. Ask them to confirm they have read and will follow the plan.

Review and Update the Plan Quarterly

Set a calendar reminder to review the crisis plan every three months. Update triggers, strategies, and contacts as your family member grows and changes. Practise the plan with family members so everyone knows their role during a crisis.

Evidence and sources

1

Children's Mental Health Ontario

Crisis services and resources for families of children with developmental disabilities (cmho.org)

2

Autism Ontario

Safety resources and crisis planning tools for autism families (autismontario.com)

Frequently asked questions

1

Should I call 911 during an autism crisis?

Call 911 if there is immediate danger to life or safety. If there is no immediate danger, a crisis line may help you de-escalate. Tell dispatch the person is autistic and may not respond to commands. Request a Mobile Crisis Intervention Team if available.

2

What is a Mobile Crisis Intervention Team?

Ontario's current funding program uses the name Mobile Crisis Response Team, or MCRT. These teams let police work with trained crisis workers when responding to someone in need. For 2025-2026 and 2026-27, the province lists police services and OPP detachments receiving grants for these teams.

3

Can I include my child in creating the crisis plan?

Yes, if your child is able to participate. Involving them helps the plan reflect their actual experience and preferences. Even nonverbal individuals can contribute through their therapist using visual supports or assistive communication devices.

Verified References & Sources

Updated:

Government Reports & Data

  • [2023]
    Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
    Community Living OntarioReport 2023-10-01
  • [2024]
    Inclusion Without Proper Support Is AbandonmentVerified FAO Data
    Elementary Teachers' Federation of OntarioReport 2024-06-01
  • [2020]
    Autism ServicesVerified FAO Data
    Financial Accountability Office of Ontario (FAO)Report 2020-07-21
  • [2024]
    Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
    Financial Accountability Office of Ontario (FAO)Report 2024-06-05
  • [2026]
    Ontario Autism Program figures as of May 13, 2026 (MCCSS, released under Freedom of Information to the Ontario Autism Coalition; published in the OAC "OAP At A Glance" update, July 2026)Verified FAO Data
    Ministry of Children, Community and Social Services (Ontario), obtained by the Ontario Autism CoalitionReport 2026-05-13

Next Steps

Where the waitlist stands

Families navigating autism services in Ontario face a documented multi-year wait. Here is the Ontario data — and a two-minute way to push back, when you are ready.

Citable source facts(3)Question-and-answer pairs with their source and verification link.

How long do families wait for Ontario autism services?

Verified

Ontario autism wait times for core clinical services now exceed 5+ years (Ontario Autism Coalition, July 2026). Funding invitations are currently reaching families who registered in August 2021 (Ontario Autism Coalition, July 2026 (reported from community intake)). This delay far exceeds the sensitive early intervention window recommended by developmental specialists.

Source: MCCSS FOI via OAC · Mar 2026, FAO Report 2024 · Verify Link

How many children are on the Ontario autism waitlist in 2026?

Verified

As of May 13, 2026, 91,974 children are registered with the Ontario Autism Program. However, only 20,711 (22.5%) have an active Core Funding Agreement. This represents ~300% growth in registrations since 2019, with 71,263 children still waiting for essential funding.

Source: MCCSS FOI via OAC · Mar 2026, FAO Report 2024 · Verify Link

Is the Ontario Autism Program underfunded?

Verified

Yes. The Financial Accountability Office (FAO) determined that $1.35 billion annually is needed to serve all registered children at 2018-19 service levels. The 2026-27 Ontario Budget allocated $965 million, leaving an estimated $385M+ annual shortfall. This gap is the primary driver of the perpetual 91,974+ child waitlist.

Source: Financial Accountability Office of Ontario [FAO] · Verify Link

About This Article

Written by

Founder & Autism Advocate

Parent of autistic child navigating OAP system