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Budget 2026: $965M budgeted, 67,509 children still waiting. Read our analysis →

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP

Your Region

  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions

Evidence & Data

  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?

Take Action

  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit

About

  • Our Story
  • Transparency
  • Media References
  • Founder
  • Press
  • Contact
end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP
  • Toronto
  • Ottawa
  • Hamilton
  • London
  • Mississauga
  • All Regions
  • Evidence Library
  • Data Hub
  • Waitlist Data
  • Cost Calculator
  • Data Stories
  • Where Does the Money Go?
  • Action Hub
  • Write Your MPP
  • File Complaint
  • Advocacy Toolkit
  • Our Story
  • Transparency
  • Media References
  • Founder
  • Press
  • Contact

Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

Legal|Privacy|Terms|Cookies|Accessibility|Corrections|Authority

Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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How many children are on the Ontario autism waitlist in 2026?

As of January 2026, **88,175 children are registered with the Ontario Autism Program**. [FOI] However, only **20,666 (23.4%)** have an active Core Funding Agreement. This represents approximately 285% growth in the waitlist since 2019, with over 67,000 children still waiting for essential funding.

Source: CBC FOI Jan 2026, FAO Report 2024

How long do families wait for Ontario autism services?

Ontario autism wait times for core clinical services now exceed **5+ years** (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists. [FAO]

Source: CBC FOI Jan 2026, FAO Report 2024

Is the Ontario Autism Program underfunded?

Yes. The Financial Accountability Office (FAO) determined that **$1.35 billion annually** is needed to serve all registered children at 2018-19 service levels. The 2026-27 Ontario Budget allocated **$965 million**, leaving an estimated **$385M+ annual shortfall**. [FAO, Ontario Budget 2026] This gap is the primary driver of the perpetual 88,175+ child waitlist.

Source: Financial Accountability Office of Ontario [FAO]

Guides

How to Create a Crisis Plan for Families of Autistic Individuals in Ontario

A crisis plan helps families respond safely and effectively when an autistic family member experiences extreme distress. Having a written plan reduces panic, improves communication with first responders, and protects everyone involved. This guide walks you through building a plan you can share with schools, caregivers, and emergency services.

This is an independent advocacy resource providing publicly available information. It does not represent any government body, professional organization, or service provider.

How to Create a Crisis Plan for Families of Autistic Individuals in Ontario, Quick Summary

  • A crisis plan helps families respond safely and effectively when an autistic family member experiences extreme distress.
  • Identify Common Triggers and Warning Signs
  • Create De-Escalation Strategies
  • Prepare an Emergency Contacts List
  • Estimated time: 1-2 days · Difficulty: beginner
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  3. ›How to Create a Crisis Plan for Your Autism Family | End The Wait Ontario
Beginner1-2 days

Step-by-Step Guide

1

Identify Common Triggers and Warning Signs

List the situations, sensory inputs, or changes in routine that typically trigger a crisis for your family member. Note the early warning signs such as increased stimming, verbal escalation, or withdrawal. Understanding patterns is the first step to prevention.

2

Create De-Escalation Strategies

Work with your family member's therapist or BCBA to develop specific de-escalation techniques. Strategies may include offering a quiet space, using visual supports, reducing sensory input, or using a calm voice. Write down exactly what to do and what to avoid during each stage of escalation.

3

Prepare an Emergency Contacts List

List phone numbers for your family doctor, therapist, local crisis line, and trusted family members. Include the MCCSS crisis line and your regional children's mental health agency. Keep printed copies in your home, car, and your child's school file.

4

Write a Crisis Communication Card

Create a wallet-sized card that explains your family member's autism diagnosis, communication style, and triggers. Include instructions for first responders such as "speak slowly," "do not touch without warning," or "this person is nonverbal." This card can prevent misunderstandings during a crisis.

5

Share the Plan with Schools and Caregivers

Give a copy of the full crisis plan to your child's school, respite provider, and any other regular caregivers. Walk them through the plan in person so they understand each step. Ask them to confirm they have read and will follow the plan.

6

Review and Update the Plan Quarterly

Set a calendar reminder to review the crisis plan every three months. Update triggers, strategies, and contacts as your family member grows and changes. Practise the plan with family members so everyone knows their role during a crisis.

Frequently Asked Questions

Should I call 911 during an autism crisis?
Call 911 only if there is immediate danger to life. If possible, call a crisis line first as they can coach you through de-escalation. If you do call 911, tell dispatch that the person has autism and may not respond to commands. Request a Mobile Crisis Intervention Team if available in your area.
What is a Mobile Crisis Intervention Team?
MCITs pair a police officer with a mental health nurse to respond to crisis calls. They are available in some Ontario cities including Toronto, Ottawa, and Hamilton. MCITs are better equipped to handle situations involving autism or mental health crises than standard police response.
Can I include my child in creating the crisis plan?
Yes, if your child is able to participate. Involving them helps the plan reflect their actual experience and preferences. Even nonverbal individuals can contribute through their therapist using visual supports or assistive communication devices.

Sources

1

Children's Mental Health Ontario

Crisis services and resources for families of children with developmental disabilities (cmho.org)

2

Autism Ontario

Safety resources and crisis planning tools for autism families (autismontario.com)

Related Guides

How to Find Respite Care for Your Autistic Child in Ontario

Beginner2-6 weeks

How to Document Your Child's Sensory Needs for Ontario Schools

Intermediate2-4 weeks

How to Communicate an Autism Diagnosis to Your Child's School in Ontario

Beginner1-2 weeks

Verified References & Sources

Updated: Mar 2026

Government Reports & Data

[2023]
Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
Community Living Ontario • Report • 2023-10-01
View
[2024]
Inclusion Without Proper Support Is AbandonmentVerified FAO Data
Elementary Teachers' Federation of Ontario • Report • 2024-06-01
View
[2020]
Autism ServicesVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
View
[2024]
Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2024-02-29
View
[2025]
Ontario Autism Coalition FOI update on Ontario Autism Program registrations and fundingVerified FAO Data
Ontario Autism Coalition • Report • 2025-12-10
View

Commitment to Accuracy: Our data is verified against official government reports (FAO, MCCSS), peer-reviewed scientific literature, and accessible public records. Last updated: March 24, 2026.

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About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

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Verified Facts

Facts cited on this page

88,175, children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

According to the FAO (2020 report), OAP funding covers less than one-third of estimated need at 2018-19 service levels

Gov / Peer-ReviewedFinancial Accountability Office of Ontario (2020)Verified: 2020-07-21

$965M, Ontario allocated to the Ontario Autism Program in 2026-27

Gov / Peer-ReviewedGovernment of Ontario, Ministry of Finance (2026)Verified: 2026-03-26

23.4%, Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15
View our methodologyView all sourcesNext data update: 2026-07-28