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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
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  • Ottawa
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  • London
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  • All Regions
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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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How many children are on the Ontario autism waitlist in 2026?

As of January 2026, **88,175 children are registered with the Ontario Autism Program**. [FOI] However, only **20,666 (23.4%)** have an active Core Funding Agreement. This represents approximately 285% growth in the waitlist since 2019, with over 67,000 children still waiting for essential funding.

Source: CBC FOI Jan 2026, FAO Report 2024

How long do families wait for Ontario autism services?

Ontario autism wait times for core clinical services now exceed **5+ years** (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists. [FAO]

Source: CBC FOI Jan 2026, FAO Report 2024

How long does autism diagnosis take in Ontario?

Before joining the OAP waitlist, Ontario diagnostic waitlists average **12–24 months** at public hospitals. [OAP] This pre-waitlist delay means total time from first concern to therapy often exceeds **5–7 years**, an invisible bottleneck in official statistics.

Source: Ontario Autism Program [OAP]

Is private autism assessment faster in Ontario?

Private autism assessments cost **$2,000–$4,000** but reduce wait times from years to weeks. [OAP] Many families face the choice of paying out-of-pocket to access the OAP sooner or waiting while their child misses the critical early intervention window.

Source: Ontario Autism Program [OAP]

Comorbidity

Autism and OCD: Differentiating and Treating Co-Occurrence

Obsessive-Compulsive Disorder co-occurs with autism at rates of 17% to 37%, far exceeding the 2-3% prevalence in the general population. The overlap between autistic restricted and repetitive behaviors (RRBs) and OCD compulsions creates a significant diagnostic challenge. Misidentification in either direction leads to inappropriate treatment: applying Exposure and Response Prevention (ERP) to autistic routines that serve a regulatory function, or failing to treat genuine OCD because it is attributed to autism. Accurate differentiation requires clinicians with dual expertise — a resource that remains scarce in Ontario.

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  3. ›Autism and OCD in Ontario | Diagnosis & Treatment Guide

17-37%

OCD co-occurrence rate in autism

Postorino et al., 2017 — Journal of Autism and Developmental Disorders

2-3%

General population OCD prevalence

American Psychiatric Association, DSM-5-TR

Up to 50%

Autistic individuals with subclinical OCD symptoms

Ruzzano et al., 2015 — Research in Autism Spectrum Disorders

Differentiating OCD from Autistic Routines

The core distinction lies in function and experience. Autistic routines and special interests are generally ego-syntonic — they feel good, serve a regulatory purpose, and the person wants to engage in them. OCD compulsions are ego-dystonic — they are driven by distress, the person recognizes them as excessive or irrational, and they would stop if they could. However, this distinction is less clear-cut in practice.

Some autistic individuals experience "autistic OCD" where obsessions and compulsions are thematically linked to autistic traits. A person with contamination OCD may have heightened distress because of sensory sensitivity to textures. Ordering and symmetry compulsions may blend with a genuine autistic need for visual consistency. Clinicians must assess whether the behavior reduces distress (suggesting OCD) or produces satisfaction (suggesting autistic RRB).

In children, differentiation is especially challenging. Parents and teachers may dismiss compulsive behaviors as "just their autism." The Children's Yale-Brown Obsessive Compulsive Scale (CY-BOCS) can be adapted for autistic children, but requires a skilled evaluator who understands both conditions.

Adapted ERP Therapy

Exposure and Response Prevention (ERP) is the gold-standard treatment for OCD and can be effective for autistic individuals with genuine OCD. Key adaptations include visual supports for the exposure hierarchy, concrete language for cognitive components, longer habituation periods, careful avoidance of exposures that target autistic regulatory behaviors (not OCD), and integration of sensory accommodations throughout treatment.

A critical safety consideration: ERP must never be applied to behaviors that serve an autistic regulatory function. Forcing an autistic person to "resist" stimming, routine adherence, or sensory avoidance that is not OCD-driven can cause significant harm. The assessment phase must clearly distinguish OCD targets from autistic needs before any exposure work begins.

Ontario Treatment Access

Ontario has a small number of clinicians trained in both OCD and autism. The Frederick W. Thompson Anxiety Disorders Centre at Sunnybrook Health Sciences Centre in Toronto offers OCD treatment and has experience with neurodivergent patients. CAMH provides assessment and treatment through its Autism and Dual Diagnosis program. McMaster Children's Hospital in Hamilton offers pediatric OCD services.

Private OCD therapists trained in ERP are available through the Canadian OCD Network directory. Sessions typically cost $175-$275. Some private insurance plans cover psychological services. The Ontario Structured Psychotherapy (OSP) program may provide access to CBT-based OCD treatment at no cost, though autism-adapted ERP is not specifically guaranteed.

Frequently Asked Questions

How can I tell if my child has OCD or if it is an autistic routine?
Autistic routines typically bring comfort, serve a regulatory purpose, and the child resists changes to them because they feel right. OCD compulsions are driven by anxiety or dread, the child may recognize them as excessive, and they provide only temporary relief before anxiety returns. If disrupting a routine causes fear rather than frustration, OCD should be investigated. A clinician experienced in both autism and OCD can help differentiate.
Is ERP therapy safe for autistic individuals?
ERP can be safe and effective for genuine OCD in autistic individuals when properly adapted. The critical requirement is that the clinician correctly identifies OCD targets vs. autistic regulatory behaviors. ERP must never target stimming, sensory accommodations, or routines that serve a genuine autistic function. Adapted ERP uses visual supports, concrete language, and longer timelines.
Where can I find an OCD therapist who understands autism in Ontario?
The Frederick W. Thompson Anxiety Disorders Centre at Sunnybrook (Toronto) and CAMH have dual expertise. The Canadian OCD Network maintains a provider directory. Private therapists specializing in OCD who also have autism training can be found through Autism Ontario's provider list. Telehealth options expand access for those outside Toronto and Hamilton.

Sources

1

Postorino, V. et al.

Systematic Review: Relationship Between Obsessive-Compulsive Disorder and ASD. Journal of Autism and Developmental Disorders, 2017; 47:2456-2473

2

Ruzzano, L. et al.

Repetitive Behaviours in Autism and OCD: New Perspectives from a Network Analysis. Research in Autism Spectrum Disorders, 2015; 19:39-47

3

Russell, A.J. et al.

CBT for Comorbid OCD in High-Functioning ASD: A Randomized Controlled Trial. Journal of Autism and Developmental Disorders, 2013; 43:1070-1082

Related Topics

Autism and Anxiety: Prevalence, Impact, and Ontario Supports

comorbidity

Autism and Mental Health: A Comprehensive Ontario Guide

comorbidity

Autism and Sensory Processing: Understanding and Support in Ontario

comorbidity

Verified References & Sources

Updated: Mar 2026

Government Reports & Data

[2023]
Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
Community Living Ontario • Report • 2023-10-01
View
[2024]
Inclusion Without Proper Support Is AbandonmentVerified FAO Data
Elementary Teachers' Federation of Ontario • Report • 2024-06-01
View
[2020]
Autism ServicesVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
View
[2024]
Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2024-02-29
View
[2025]
Ontario Autism Coalition FOI update on Ontario Autism Program registrations and fundingVerified FAO Data
Ontario Autism Coalition • Report • 2025-12-10
View

Commitment to Accuracy: Our data is verified against official government reports (FAO, MCCSS), peer-reviewed scientific literature, and accessible public records. Last updated: March 24, 2026.

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Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
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Verified Facts

Facts cited on this page

1 in 50, According to the 2019 Canadian Health Survey on Children and Youth, about children and youth aged 1 to 17 in Canada had an autism diagnosis

Gov / Peer-ReviewedPublic Health Agency of Canada (2024)Verified: 2024-03-26

88,175, children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15

23.4%, Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29
View our methodologyView all sourcesNext data update: 2026-07-28