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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

Common Questions

  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts

Tools

  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker

Providers

  • Provider Directory
  • Choosing a Provider
  • Submit a Provider

Funding & Support

  • OAP Overview
  • Funding Guide
  • Eligibility
  • How to Register
  • DTC & RDSP

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)
  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
  • Options While Waiting
  • Funding Amounts
  • Next Steps Tool
  • Wait Estimator
  • Funding Estimator
  • Therapy Budget
  • Waitlist Tracker
  • Provider Directory
  • Choosing a Provider
  • Submit a Provider
  • OAP Overview
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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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How many children are on the Ontario autism waitlist in 2026?

As of January 2026, **88,175 children are registered with the Ontario Autism Program**. [FOI] However, only **20,666 (23.4%)** have an active Core Funding Agreement. This represents approximately 285% growth in the waitlist since 2019, with over 67,000 children still waiting for essential funding.

Source: CBC FOI Jan 2026, FAO Report 2024

How long do families wait for Ontario autism services?

Ontario autism wait times for core clinical services now exceed **5+ years** (2026). Most families currently receiving invitations registered in 2020 or earlier. This delay far exceeds the sensitive early intervention window recommended by developmental specialists. [FAO]

Source: CBC FOI Jan 2026, FAO Report 2024

How long does autism diagnosis take in Ontario?

Before joining the OAP waitlist, Ontario diagnostic waitlists average **12–24 months** at public hospitals. [OAP] This pre-waitlist delay means total time from first concern to therapy often exceeds **5–7 years**, an invisible bottleneck in official statistics.

Source: Ontario Autism Program [OAP]

Is private autism assessment faster in Ontario?

Private autism assessments cost **$2,000–$4,000** but reduce wait times from years to weeks. [OAP] Many families face the choice of paying out-of-pocket to access the OAP sooner or waiting while their child misses the critical early intervention window.

Source: Ontario Autism Program [OAP]

Comorbidity

Autism and Tourette Syndrome: Managing Tic Disorders in Ontario

Tic disorders, including Tourette syndrome, co-occur with autism at rates of 9% to 22% — significantly above the 1% general population prevalence of Tourette syndrome. The overlap creates compounded challenges: tics may be mistaken for stimming, stimming may be misidentified as tics, and both conditions involve repetitive movements that are difficult to suppress. Accurate diagnosis matters because treatment approaches differ. Ontario has limited specialist resources for this co-occurrence, concentrated primarily in Toronto and Hamilton.

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  3. ›Autism and Tourette Syndrome in Ontario | Tics & Support

9-22%

Tic disorder prevalence in autistic individuals

Canitano, R. & Vivanti, G., 2007 — Psychiatry Research

~1%

General population Tourette syndrome prevalence

Centers for Disease Control and Prevention, 2023

>60%

Co-occurrence of ADHD in autism + Tourette

Freeman, R.D. et al., 2000 — Developmental Medicine & Child Neurology

Differentiating Tics from Stimming

Tics are sudden, rapid, recurrent motor movements or vocalizations that are semi-voluntary — the person feels an urge (premonitory urge) before the tic and temporary relief after. Stimming is self-stimulatory behavior that serves a regulatory function — it provides sensory input, emotional regulation, or focus. The person generally does not experience a preceding urge with stimming.

In practice, differentiation can be complex. Some autistic individuals experience both tics and stims simultaneously. Motor tics may co-occur with motor stereotypies. A clinician must assess whether the behavior is preceded by a premonitory urge, whether suppression causes discomfort or just frustration, and whether the behavior serves a regulatory function or occurs involuntarily.

Accurate differentiation matters because treatment pathways diverge. CBIT (Comprehensive Behavioral Intervention for Tics) targets the urge-tic cycle. Suppressing stimming — which serves a regulatory function — is not appropriate and can cause harm. Both behaviors should be accommodated in school and work settings.

CBIT and Therapy Adaptations

Comprehensive Behavioral Intervention for Tics (CBIT) is the first-line behavioral treatment for tic disorders. It teaches the individual to recognize premonitory urges and implement a competing response. For autistic individuals, CBIT adaptations include visual supports for the competing response chain, concrete language, explicit instruction in urge recognition (which may overlap with interoception difficulties), and careful distinction between tic targets and stim preservation.

Habit Reversal Training (HRT), a component of CBIT, has been adapted for autistic populations. Research by Capriotti et al. (2014) demonstrated that with appropriate modifications, autistic children can benefit from CBIT. Sessions may need to be shorter, more frequent, and incorporate the child's special interests as motivators.

Medication and Ontario Services

When tics significantly impair function, medication may be considered alongside behavioral therapy. Alpha-2 agonists (clonidine, guanfacine) are often first-line, particularly because guanfacine also addresses ADHD symptoms that frequently co-occur in this population. Antipsychotics (aripiprazole, risperidone) are reserved for severe tics due to side effect profiles. Medication management should involve a physician experienced in both autism and tic disorders.

Ontario specialist services include the Tourette Syndrome Neurodevelopmental Clinic at the Hospital for Sick Children (SickKids) in Toronto, which sees children with co-occurring autism and Tourette syndrome. McMaster Children's Hospital in Hamilton offers neurodevelopmental assessment. For adults, the Movement Disorders Clinic at Toronto Western Hospital provides Tourette assessment. OHIP covers all physician visits and hospital-based services.

School accommodations for co-occurring autism and Tourette syndrome should be documented in the student's IEP. Appropriate accommodations include tic-break passes, testing in a separate room, permission to use fidget tools, reduced writing demands, and exemption from penalties related to tic-related disruptions.

Frequently Asked Questions

How do I know if my child is stimming or having tics?
Tics are preceded by an urge (a building tension that the person must release). Stimming serves a regulatory or sensory function without a preceding urge. Tics tend to change over time in type and location. Stims tend to be more consistent. If unsure, a neurologist or developmental pediatrician experienced with both conditions can differentiate. Both behaviors should be accommodated, not suppressed.
Is CBIT therapy available in Ontario for autistic children with tics?
Yes, though availability is limited. SickKids in Toronto offers CBIT through its Tourette Syndrome clinic. Private psychologists trained in CBIT can be found through the Tourette Canada provider directory. Some providers offer telehealth CBIT sessions, expanding access beyond major cities. OHIP covers hospital-based assessment; private therapy typically costs $150-$225 per session.
What school accommodations should be in place for autism plus Tourette syndrome?
The student's IEP should include: tic-break passes to leave the classroom, testing in a separate room, permission for movement and fidget tools, reduced handwriting demands (typed alternatives), no penalties for tic-related disruptions, a designated safe space for tic storms, and staff training on both conditions. Ontario's Education Act requires schools to provide these accommodations when documented.

Sources

1

Canitano, R. & Vivanti, G.

Tics and Tourette Syndrome in Autism Spectrum Disorders. Psychiatry Research, 2007; 11(1):19-28

2

Capriotti, M.R. et al.

CBIT for Youth with Tourette Syndrome and Co-Occurring ASD. Behavior Modification, 2014; 38(6):859-881

3

Freeman, R.D. et al.

An International Perspective on Tourette Syndrome. Developmental Medicine & Child Neurology, 2000; 42:436-447

Related Topics

Autism and ADHD: Understanding Co-Occurrence in Ontario

comorbidity

Autism and Sensory Processing: Understanding and Support in Ontario

comorbidity

Autism and OCD: Differentiating and Treating Co-Occurrence

comorbidity

Verified References & Sources

Updated: Mar 2026

Government Reports & Data

[2023]
Exclusion of Students With Disabilities — 2023 SurveyVerified FAO Data
Community Living Ontario • Report • 2023-10-01
View
[2024]
Inclusion Without Proper Support Is AbandonmentVerified FAO Data
Elementary Teachers' Federation of Ontario • Report • 2024-06-01
View
[2020]
Autism ServicesVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
View
[2024]
Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2024-02-29
View
[2025]
Ontario Autism Coalition FOI update on Ontario Autism Program registrations and fundingVerified FAO Data
Ontario Autism Coalition • Report • 2025-12-10
View

Commitment to Accuracy: Our data is verified against official government reports (FAO, MCCSS), peer-reviewed scientific literature, and accessible public records. Last updated: March 24, 2026.

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About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
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FAO & Legislative Assembly Cited

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Verified Facts

Facts cited on this page

1 in 50, According to the 2019 Canadian Health Survey on Children and Youth, about children and youth aged 1 to 17 in Canada had an autism diagnosis

Gov / Peer-ReviewedPublic Health Agency of Canada (2024)Verified: 2024-03-26

88,175, children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15

23.4%, Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29
View our methodologyView all sourcesNext data update: 2026-07-28