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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
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  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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  2. ›Stimming and Autism

Stimming and Autism: Understanding Self-Stimulatory Behavior

Stimming is a natural, functional behavior — not a problem to be fixed. Understanding it is the first step to supporting autistic people well.

TL;DR

  • Stimming serves regulatory and communicative functions for autistic people
  • Types include visual, auditory, tactile, vestibular, and olfactory stimming
  • Suppressing stimming can increase anxiety and mask distress signals
  • Only intervene if stimming causes physical harm or significant safety concerns, with individual consent

Who this affects

These challenges are common among the children waiting for services.

Registered

88,17588,175

Children registered

Total in the Ontario Autism Program queue

CBC FOI Jan 2026

Funded

20,66620,666

Have active funding

Just 23.4% of registered children

CBC FOI Jan 2026

Waiting

67,50967,509

Still waiting

Registered. Diagnosed. Un-funded.

CBC FOI Jan 2026

Verified April 29, 2026 — CBC FOI Jan 2026

Share these numbers
Ontario Autism Program key statistics (CBC FOI Jan 2026, verified 2026-04-29)
MetricValue
Children registered88,175
Have active funding20,666
Still waiting67,509

What Is Stimming?

Stimming — shorthand for self-stimulatory behavior — refers to repetitive movements, sounds, or sensory experiences that a person engages in for self-regulation or sensory satisfaction. The word is commonly associated with autism, but stimming is a universal human behavior. Neurotypical people fidget, tap their feet, doodle, and twirl their hair — all forms of stimming. In autistic people, stimming tends to be more frequent, more varied, and more functional, serving as a primary tool for nervous system regulation.

For many autistic people, stimming is an integral part of how they process and navigate the world. It is not a symptom of impairment or a behavior that needs to be trained away. Contemporary autism advocacy — including the positions of many autistic-led organizations — strongly endorses accepting and accommodating stimming as part of respecting autistic neurology.

This represents a significant shift from older approaches that sought to eliminate stimming through behavioral intervention. Current best practices focus on understanding the function of a stim and supporting the person's overall regulation, not on suppressing the behavior itself.

Types of Stimming

Stimming can be categorized by the sensory system it engages. An individual may engage in many different types across different situations, reflecting their unique sensory profile.

Visual

Watching spinning objects, moving fingers near the face, gazing at lights, flickering patterns

Auditory

Humming, repeating words or phrases (echolalia), listening to the same sound on loop, making repetitive sounds

Tactile

Touching particular textures, tapping surfaces, scratching, running fingers along edges, rubbing fabrics

Vestibular

Rocking, spinning, jumping, swinging — involving the sense of balance and movement

Proprioceptive

Squeezing, pressing, hand-flapping (generates joint input), wearing tight clothing, heavy lifting

Oral / Olfactory

Chewing, biting or mouthing objects, smelling clothing or objects, seeking particular scents

The Functions of Stimming

Stimming serves several important neurological and emotional functions. The most commonly identified are: sensory regulation (reducing overwhelming input or providing needed stimulation to an under-responsive system); emotional expression (hand-flapping when excited, rocking when anxious or distressed); stress reduction (providing predictable sensory input that calms the nervous system in unpredictable environments); and communication (some stims signal emotional states to people who know the individual well).

When an autistic person is prevented from stimming — through social pressure, behavioral intervention, or environmental constraint — they are deprived of an important regulatory tool. Research and autistic self-reports consistently show that suppressed stimming leads to increased anxiety, reduced cognitive function, and greater likelihood of meltdown. The internal distress remains; only its outward expression is hidden.

For parents, educators, and support workers, this means that allowing and accommodating stimming is not permissiveness — it is supporting the autistic person's ability to function, learn, and regulate effectively.

When Stimming Becomes a Concern

The vast majority of stimming does not require intervention. A stim warrants attention only when it is causing physical harm (such as head-banging resulting in injury, or skin-picking causing wounds), or when it poses an immediate safety risk. Even then, the approach should not be to simply stop the stim, but to understand its function: what sensory input or regulatory need is the person trying to meet? Can a safer alternative that provides similar input be offered?

Social acceptability is a poor reason to suppress stimming. The discomfort of neurotypical observers does not justify removing an autistic person's primary regulatory tool. Where social environments genuinely limit an autistic person's opportunities (for example, in job interviews or formal settings), this is a conversation to have with the autistic person about their choices and options — not a unilateral decision to eliminate the stim through behavioral training.

The Acceptance Approach

Contemporary autism research and autistic-led advocacy organizations strongly endorse accepting stimming as a natural part of autistic neurology. The guiding principle: if a stim is not causing physical harm, it should be accommodated — not suppressed. Creating environments where autistic people can stim freely is an act of respect and inclusion.

Sensory Processing and AutismUnderstanding Autism MeltdownsSensory Regulation Resources OntarioAutism Therapy Options in Ontario

Frequently Asked Questions

What is stimming in autism?

Stimming — short for self-stimulatory behavior — refers to repetitive movements, sounds, or sensory inputs that a person engages in for self-regulation or sensory satisfaction. In autistic people, stimming is a natural and typically healthy behavior. Examples include hand-flapping, rocking, humming, spinning, repeating phrases or sounds (echolalia), tapping, and pacing. Stimming is not exclusive to autism — all people engage in some form of self-stimulatory behavior (fidgeting, nail-biting, hair-twirling) — but it tends to be more frequent and varied in autistic people.

Why do autistic people stim?

Autistic people stim for many important reasons: self-regulation (calming an overwhelmed or under-stimulated nervous system), processing and expressing strong emotions (joy, excitement, anxiety, or distress), managing sensory input (blocking out excess stimuli or seeking needed input), communicating a state that may be difficult to express in words, and sometimes simply because it feels good. Stimming serves genuine neurological and emotional functions — it is not a symptom to be eliminated without understanding its purpose for the individual.

What are examples of stimming?

Stimming takes many forms across different sensory channels. Visual stimming: watching spinning objects, flickering lights, moving fingers near the eyes. Auditory stimming: humming, repeating sounds or phrases, listening to the same sound repeatedly. Tactile stimming: rubbing textures, scratching, tapping surfaces or body parts. Vestibular stimming: rocking, spinning, jumping. Proprioceptive stimming: squeezing, pressing, hand-flapping. Olfactory stimming: smelling objects or people. The specific stims an individual uses are personal and often reflect their sensory profile.

Is stimming harmful?

Most stimming is not harmful and should not be suppressed. Stimming that does not cause physical injury, does not significantly interfere with learning or daily functioning, and does not distress the person doing it should generally be accepted and accommodated. Suppressing stimming can increase anxiety, mask important signals of distress, and deprive the autistic person of an important regulatory tool. The exception is stimming that causes physical harm (e.g., severe head-banging or skin-picking causing wounds) — in those cases, the goal is to understand and address the underlying cause, not simply stop the behavior.

Should you stop a child from stimming?

In most cases, no. Suppressing stimming has been shown to increase stress and anxiety and is strongly discouraged by contemporary autism advocacy and many clinical guidelines. The primary consideration should be: is this stim causing physical harm? If not, the focus should be on creating environments where autistic children can stim freely. If a specific stim is causing physical injury or poses a significant barrier to the child's safety or learning, the approach should focus on understanding the function of the stim and finding safer alternatives — with involvement and consent of the autistic child or young person wherever possible.

  • Ministry of Children, Community and Social Services: Spending Plan Review (2024). Financial Accountability Office of Ontario (2024)
  • Ontario Autism Coalition FOI update on Ontario Autism Program registrations and funding. Ontario Autism Coalition (December 2025)

Next Steps

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What official government data tracks the Ontario autism waitlist?

Primary sources include: Financial Accountability Office (FAO) annual reports, Ontario Auditor General reviews, OHRC policy statements, publicly available FOI data, and AccessOAP program data. Latest FOI data (Dec 2025) shows 88,175 registered children with only 23.4% having active funding agreements (up from 70,176 registered in the FAO 2023-24 report).

Source: FAO, Auditor General, OHRC, CBC FOI Jan 2026

What does the WHO say about early autism intervention timing?

The WHO Fact Sheet on Autism Spectrum Disorders (2023) states that timely access to early evidence-based psychosocial interventions can improve the ability of autistic children to communicate effectively and interact socially. Dawson et al. (2010, Pediatrics; PMID 19948568) confirmed in an RCT that ESDM (Early Start Denver Model) at 18–30 months produced significant developmental gains.

Source: WHO Fact Sheet: Autism Spectrum Disorders (2023); Dawson et al., Pediatrics 2010 (PMID 19948568)

About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

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Verified Facts

Facts cited on this page

1 in 50 — According to the 2019 Canadian Health Survey on Children and Youth, about children and youth aged 1 to 17 in Canada had an autism diagnosis

Gov / Peer-ReviewedPublic Health Agency of Canada (2024)Verified: 2024-03-26

Evidence supports autism screening and intervention commencing in the first 2 years of life — earlier identification directly enables earlier intervention during the highest neural plasticity window

Gov / Peer-ReviewedZwaigenbaum L, Bauman ML, Stone WL, et al. (2015)Verified: 2015-10-01

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15

88,175 — children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

23.4% — Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29
View our methodologyView all sourcesNext data update: 2026-05-15