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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

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  • All Questions
  • How Long Is the Wait?
  • What Is the OAP?
  • How Many Are Waiting?
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  • Funding Amounts

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  • Waitlist Tracker

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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Advocacy, not anger. Data, not speculation.

Carroll v. Ontario · HRTO 2025-62264-I

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

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POLICY ANALYSIS

FOI · FIPPA · Bill 97 PASSED Apr 23, 2026

Ontario's Growing Accountability Gap

Bill 97 (Plan to Protect Ontario Act) passed April 23, 2026 by a 57–33 vote. The FIPPA amendments are now in force retroactive to March 26, 2026. MFIPPA amendments take effect July 1, 2026 and January 1, 2027. Ministerial records dating back to 1988 are now outside the public's right of access — widening the accountability gap around $691.2M in autism program spending. The IPC Commissioner called the changes "about hiding government-related business to evade public accountability."

Quick Summary

  • Bill 97 (Plan to Protect Ontario Act) passed April 23, 2026 by a 57–33 vote. The FIPPA amendments are deemed in force retroactive to March 26, 2026 — ministerial records back to 1988 are now outside the public's right of access.
  • MFIPPA (municipal FOI) amendments take effect on a staggered schedule: July 1, 2026 and January 1, 2027. Source: Lerners LLP analysis of Bill 97.
  • Ontario's Information and Privacy Commissioner Patricia Kosseim publicly opposed the changes, calling them "about hiding government-related business to evade public accountability." The IPC has formally responded to MPP Stiles's request to investigate.
  • The Ontario Autism Program spent an estimated $691.2M in 2023-24. Of this, $57.9M went to AccessOAP — a group of companies whose internal records are outside FIPPA's reach because, like other private contractors, the group is not a government institution.
  • Ministerial decisions about how the program is designed, who gets the contract, and how the budget is divided are now also exempted. The public loses visibility at both ends of the accountability chain — exactly when 67,509 children are waiting.

The policy behind the numbers

67,509 children are waiting while accountability mechanisms are being narrowed — transparency is the first line of defence.

Registered

88,17588,175

Children registered

Total in the Ontario Autism Program queue

CBC FOI Jan 2026

Funded

20,66620,666

Have active funding

Just 23.4% of registered children

CBC FOI Jan 2026

Waiting

67,50967,509

Still waiting

Registered. Diagnosed. Un-funded.

CBC FOI Jan 2026

Verified April 29, 2026 — CBC FOI Jan 2026

Share these numbers
Ontario Autism Program key statistics (CBC FOI Jan 2026, verified 2026-04-29)
MetricValue
Children registered88,175
Have active funding20,666
Still waiting67,509

Timeline: From FIPPA to the Proposed Amendments

  1. 1988

    FIPPA takes effect in Ontario — gives the public a right to request government records, including ministerial records.

  2. 2019

    Ontario government restructures the Ontario Autism Program. AccessOAP consortium (led by Accerta Services Inc.) is contracted to handle registration, intake, and care coordination.

  3. July 2020

    FAO publishes Autism Services — A Financial Review. Estimates $1.35-1.4 billion/year needed to clear the waitlist — more than double the $600M commitment.

  4. June 2024

    FAO publishes MCCSS Spending Plan Review. Finds the province set aside $3.7 billion less than needed to fund existing MCCSS programs from 2024-25 to 2026-27.

  5. July 2024

    The Trillium (Village Media) publishes MCCSS spending figures obtained through a FIPPA request. Data reveals $57.9M to AccessOAP and the full spending breakdown.

  6. March 13, 2026

    Ontario government announces proposed FIPPA amendments — would exempt ministerial records retroactively to 1988.

  7. March 13, 2026

    IPC Commissioner Patricia Kosseim publishes formal statement: "This amendment is about hiding government-related business to evade public accountability."

  8. March 26, 2026

    Bill 97 (Plan to Protect Ontario Act) introduced as omnibus budget legislation containing the FIPPA amendments. FIPPA changes "deemed in force" as of this date.

  9. April 23, 2026

    Bill 97 passes Third Reading by a 57–33 vote. FIPPA amendments now law. MFIPPA amendments scheduled to take effect July 1, 2026 (most provisions) and January 1, 2027 (others).

What the Government Proposes

On March 13, 2026, the Ontario government announced proposed changes to FIPPA. The bill, to be introduced when the Legislature resumed on March 23, 2026, would remove records of the Premier, cabinet ministers, parliamentary assistants, and their offices from FIPPA's scope. Minister of Public and Business Service Delivery and Procurement Stephen Crawford said the changes would bring Ontario “more closely in line with practices used in other jurisdictions across Canada.”

The government said Ontario is currently one of only two Canadian provinces — alongside Nova Scotia — that does not explicitly exclude ministerial records from freedom of information law. The government described the change as “modernizing Ontario's privacy protections.”

Government's stated position

The Ontario government has stated publicly that the proposed amendments would “strengthen cyber security, protect cabinet confidentiality and ensure responsible modern governance.” Minister Crawford stated the changes would bring Ontario in line with other Canadian jurisdictions. The government noted that government decisions communicated to the public service, including formal direction from ministers, would continue to be subject to access rules. (Source: Ontario government news release and Minister Crawford's public remarks, March 13, 2026, as reported by CBC News.)

What the IPC Commissioner Said

Ontario's Information and Privacy Commissioner, Patricia Kosseim, published a formal statement on March 13, 2026. That statement is available in full on the IPC's website. It is a public document by an independent officer of the Ontario Legislature.

“This amendment is about hiding government-related business to evade public accountability.”

— Patricia Kosseim, Information and Privacy Commissioner of Ontario, public statement, March 13, 2026 (ipc.on.ca)

In the same statement, Commissioner Kosseim pointed out that FIPPA already protects personal, confidential, and constituency records from being released. She said the proposed change goes further — it would also exclude government-related business records held by elected officials and their staff.

The IPC's statement raised three additional concerns. First, the changes would apply retroactively to 1988— the year FIPPA took effect. Nearly four decades of government records would be placed outside FIPPA's reach. Second, the bill would weaken the IPC's oversight of FIPPA's data-linking rules, which allow the government to connect personal records across departments, including health information. The IPC called this “an inherent conflict of interest that seriously weakens accountability.” Third, the bill would let government employees carry email accounts containing personal information when they change ministries. The IPC said this “increases the risk of privacy breaches exponentially.”

Commissioner Kosseim also published an opinion piece in The Globe and Mailon March 16, 2026, titled “Ontario steps back into the information dark ages,” further elaborating on the constitutional and democratic implications of the proposed changes.

Political responses

NDP Leader Marit Stiles said publicly she would reverse these changes. The Ontario Liberal Party also promised to undo the amendments. Green Party Leader Mike Schreiner called the proposal “changing the rules to make it easier to hide the truth.” The current Ontario government holds a majority in the Ontario Legislature. (Source: Village Report, CBC News, March 2026.)

Why This Matters for Autism Families

The Ontario Autism Program spent an estimated $691.2M in 2023-24. Of this, $307.3M (44.5%) went to core clinical services — the therapy funding that 67,509 children are waiting for. The remaining 55.5% funded intake operations ($57.9M), legacy programs ($104.0M), and other components.

The public spending data that made this analysis possible was obtained through a Freedom of Information request filed by The Trillium (Village Media) to MCCSS. That request went to the ministry — a FIPPA institution — and succeeded.

Under the proposed FIPPA changes, decisions about program design, who gets the contract, and how the budget is divided — if discussed or documented in the minister's office — would no longer be available through FIPPA, even when they involve hundreds of millions of dollars in public money.

Meanwhile, the internal records of AccessOAP — how the $57.9M is divided among partners, operational decisions, staffing models — are already beyond FIPPA's reach because AccessOAP is not a government institution. The accountability chain has gaps at both ends.

For the full spending breakdown, see: Where Does the Money Go? — OAP Spending Analysis

What Other Canadian Jurisdictions Do

The Ontario government has cited alignment with other provinces as a reason for the proposed changes. Here is how Canadian jurisdictions currently handle ministerial records in their freedom of information laws.

JurisdictionMinisterial Records in FOI?Law
Ontario (current)YesFIPPA, R.S.O. 1990, c. F.31
Ontario (proposed)No — exempt retroactive to 1988Bill TBD, March 2026
FederalNo — ministerial offices excludedAccess to Information Act
British ColumbiaPartial — policy records yes, constituency noFOIPPA
QuebecNo — ministerial records excludedAct respecting Access
AlbertaNo — ministerial offices excludedFOIP Act
Nova ScotiaYesFOIPOP Act

Note: This table summarizes the general scope of each jurisdiction's FOI law as it relates to ministerial offices. Specific exemptions and exceptions vary. The characterizations reflect each law's provisions as of March 2026. Sources: FIPPA, R.S.O. 1990, c. F.31; Access to Information Act, R.S.C. 1985, c. A-1; FOIPPA (B.C.); Act respecting Access (Quebec); FOIP Act (Alberta); FOIPOP Act (Nova Scotia); IPC Commissioner statement comparing Ontario to other jurisdictions, March 13, 2026; Minister Crawford's public remarks on jurisdictional alignment.

Frequently Asked Questions

What are the proposed changes to Ontario freedom of information law in 2026?

Bill 97 (Plan to Protect Ontario Act) passed Third Reading on April 23, 2026 by a 57–33 vote. The FIPPA amendments remove records of the Premier, cabinet ministers, parliamentary assistants, and their offices from FIPPA's scope and apply retroactively to 1988. Minister Stephen Crawford said the changes would bring Ontario 'more closely in line with practices used in other jurisdictions across Canada.' MFIPPA amendments take effect on a staggered schedule: July 1, 2026 (most provisions) and January 1, 2027 (others).

What did the IPC Commissioner say about the FIPPA amendments?

Ontario's Information and Privacy Commissioner Patricia Kosseim publicly opposed the changes, calling them "about hiding government-related business to evade public accountability." Her March 13, 2026 statement noted that FIPPA already protects personal, confidential, and constituency records, and that the changes go further by excluding government-related business records held by elected officials and their staff. The IPC has formally responded to MPP Marit Stiles's request to investigate.

How do the FIPPA changes affect Ontario autism families?

The Ontario Autism Program spent an estimated $691.2M in 2023-24, with $57.9M going to AccessOAP. AccessOAP's internal records are already outside FIPPA. If ministerial decisions about program design and contracts are also exempted, the public loses visibility at both ends of the accountability chain.

What is FIPPA and who does it cover in Ontario?

FIPPA (R.S.O. 1990, c. F.31) gives the public a right to request records held by Ontario government 'institutions' — meaning provincial ministries and certain agencies, boards, and commissions. Private organizations that receive government funding are not automatically covered.

Which Canadian provinces exclude ministerial records from FOI?

Most Canadian jurisdictions exclude ministerial offices from FOI laws. The federal government, Quebec, and Alberta all exclude ministerial records. British Columbia partially excludes them. Ontario and Nova Scotia were the only two that did not explicitly exclude them — Ontario's Bill 97 (passed April 23, 2026) changed this. Nova Scotia is now the only Canadian province that still allows public access to ministerial records.

What is delegated delivery and why does it matter for accountability?

Delegated delivery is when a government contracts private organizations to run public programs. AccessOAP handles OAP registration, intake, and care coordination under a $57.9M/year contract. Because these organizations are not FIPPA institutions, their internal records are largely inaccessible through Ontario's transparency mechanisms.

Has anyone audited how Ontario autism program money is spent?

As of March 2026, no published Auditor General performance audit has examined the OAP or AccessOAP. The FAO has published two reports analyzing program-level spending data from the ministry, but these do not audit the internal operations of organizations receiving government funding.

Would the FIPPA changes apply retroactively?

Yes. The Bill 97 amendments apply retroactively to 1988 — the year FIPPA took effect. With Bill 97 having passed on April 23, 2026, nearly four decades of government records are now outside FIPPA's reach. The IPC Commissioner noted this in opposition to the changes. The IPC also flagged that the government was trying to appeal a court ruling that upheld the IPC's order for the Premier's office to produce call logs from the Premier's personal cellphone relating to government business. (Source: Lerners LLP analysis of Bill 97; IPC Commissioner statement, March 13, 2026, ipc.on.ca.)

A Note on Scope and Fairness

This analysis focuses on structural accountability gaps in Ontario's freedom of information framework as they relate to publicly funded autism services. It does not allege that AccessOAP, Accerta Services Inc., Serefin, Autism Ontario, McMaster University, or any other individual, political party, or organization has acted improperly, misused public funds, or failed to deliver on contractual obligations.

The Ontario government's stated reasons for the proposed FIPPA amendments are presented in full above. This analysis includes all three opposition parties' published positions. Readers are encouraged to consult the original government news release, the IPC Commissioner's full statement, and the referenced news reports directly.

Accountability is not adversarial. Effective transparency mechanisms serve well-run programs as much as they expose poorly-run ones — by providing independent validation that public money is being well spent and public trust is being earned.

Primary Sources

  • ipcIPC Statement by Commissioner Kosseim on proposed FIPPA changes, March 13, 2026 Source
  • ipcIPC Commissioner Kosseim, opinion in The Globe and Mail, March 16, 2026 Source
  • govOntario government news release on FIPPA amendments, March 13, 2026 Source
  • pubCBC News — Ontario wants to change its FOI rules, March 14, 2026 Source
  • pubGlobal News — Ontario government moves to change FOI rules, March 13, 2026 Source
  • pubVillage Report — NDP and Liberal leaders on FOI changes, March 18, 2026 Source
  • faoFAO, MCCSS Spending Plan Review, June 2024 Source
  • faoFAO, Autism Services — A Financial Review, July 2020 Source
  • foiMCCSS spending figures obtained via FOI by The Trillium (Village Media), July 4, 2024 Source
  • govFIPPA, R.S.O. 1990, c. F.31 Source
  • govAuditor General Act, R.S.O. 1990, c. A.35 Source
  • govFinancial Accountability Officer Act, 2013, S.O. 2013, c. 4 Source

Corrections & Right of Reply

End The Wait Ontario is committed to factual accuracy. If any figure, attribution, legal citation, or characterization in this analysis is inaccurate, we will correct it promptly and publish a dated note of correction. Organizations and individuals referenced in this analysis are invited to contact us with corrections, clarifications, or responses, which we will publish in full or in relevant part.

Contact: endthewaitontario.com/contact

No corrections have been issued as of March 21, 2026.

© 2026 End The Wait Ontario. This analysis is published as fair comment on a matter of public interest, based entirely on public records, government documents, published statements by independent officers of the Ontario Legislature, and organizations' own published materials. All data is sourced and cited. No allegation of wrongdoing, fraud, impropriety, or breach of contract is made or implied against any individual, organization, or government entity. The policy questions raised are presented for democratic deliberation, not as conclusions. Reproduction is permitted with attribution and a link to this page.

Take Action

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Email Your MPP — 2 minView Full Spending Analysis
  • Ontario Autism Coalition FOI update on Ontario Autism Program registrations and funding. Ontario Autism Coalition (December 2025)
  • Ministry of Children, Community and Social Services: Spending Plan Review (2024). Financial Accountability Office of Ontario (2024)

How many children are on the Ontario autism waitlist in 2026?

As of January 2026, **88,175 children are registered with the Ontario Autism Program**. [FOI] However, only **20,666 (23.4%)** have an active Core Funding Agreement. This represents approximately 280% growth in the waitlist since 2019, with over 67,000 children still waiting for essential funding.

Source: CBC FOI Jan 2026, FAO Report 2024

Is the Ontario Autism Program underfunded?

Yes. The Financial Accountability Office (FAO) determined that **$1.35 billion annually** is needed to serve all registered children at 2018-19 service levels. The 2026-27 Ontario Budget allocated **$965 million**, leaving an estimated **$385M+ annual shortfall**. [FAO, Ontario Budget 2026] This gap is the primary driver of the perpetual 88,175+ child waitlist.

Source: Financial Accountability Office of Ontario [FAO]

About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

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Verified Facts

Facts cited on this page

88,175 — children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

According to the FAO (2020 report), OAP funding covers less than one-third of estimated need at 2018-19 service levels

Gov / Peer-ReviewedFinancial Accountability Office of Ontario (2020)Verified: 2020-07-21

$965M — Ontario allocated to the Ontario Autism Program in 2026-27

Gov / Peer-ReviewedGovernment of Ontario, Ministry of Finance (2026)Verified: 2026-03-26

23.4% — Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15
View our methodologyView all sourcesNext data update: 2026-05-15