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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

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Parent Guide

Behaviour Support

Behaviour Support for Autistic Children in Ontario

Understanding behaviour as communication. A neurodevelopment-affirming guide to behaviour support plans, finding a qualified BCBA, OAP funding, school supports, and ethical practice.

TL;DR Summary (AI-Ready)
  • Behaviour is communication: challenging behaviour serves a purpose (escape, attention, sensory, tangible)
  • Behaviour support plans (BSPs) must be based on a functional behaviour assessment (FBA)
Show all 6 factsShow fewer facts
  • OAP funding covers FBAs, BSP development, caregiver coaching, and direct behaviour services
  • ABA is a science; Positive Behaviour Support (PBS) is a values-based framework within it
  • Find a BCBA through the BACB registry or ONTABA directory; ask about their approach to consent
  • Red flags: punishment-based, no FBA, compliance-only goals, ignoring child assent
Verified: 2026-05-09
Scope: Ontario, Canada
About This Article
Published:February 27, 2026
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system

The services gap

Services exist — but access remains rationed by a waitlist measured in years.

Registered

88,17588,175

Children registered

Total in the Ontario Autism Program queue

CBC FOI Jan 2026

Funded

20,66620,666

Have active funding

Just 23.4% of registered children

CBC FOI Jan 2026

Waiting

67,50967,509

Still waiting

Registered. Diagnosed. Un-funded.

CBC FOI Jan 2026

Verified April 29, 2026 — CBC FOI Jan 2026

Share these numbers
Ontario Autism Program key statistics (CBC FOI Jan 2026, verified 2026-04-29)
MetricValue
Children registered88,175
Have active funding20,666
Still waiting67,509

Behaviour Is Communication

Every challenging behaviour serves a purpose. Before trying to change behaviour, we must first understand what the child is communicating. When we address the underlying need, the challenging behaviour often decreases naturally.

Behaviour is not the problem. Behaviour is the symptom. Autistic children communicate through their behaviour, especially when they lack the language, skills, or regulatory capacity to express needs in other ways. Our job is to listen to what the behaviour is telling us, not to silence it.

Hitting, biting, or aggression

Possible functions:

  • Communicating pain, discomfort, or sensory overload
  • Requesting space or escape from demands
  • Expressing frustration when unable to communicate needs verbally

Elopement (running away)

Possible functions:

  • Escaping overwhelming sensory environments
  • Seeking preferred activities or locations
  • Responding to anxiety or fear

Meltdowns and shutdowns

Possible functions:

  • Neurological response to sensory, emotional, or cognitive overload
  • Accumulated stress exceeding coping capacity
  • Not a choice or deliberate behaviour

Self-injurious behaviour

Possible functions:

  • Communicating pain (headache, earache, GI distress)
  • Sensory seeking or self-regulation
  • Expression of extreme distress or anxiety

Demand avoidance / refusal

Possible functions:

  • Anxiety about unpredictability or perceived failure
  • Need for autonomy and control
  • Executive function challenges making task initiation difficult

Loud vocalizations or scripting

Possible functions:

  • Self-regulation and emotional processing
  • Sensory seeking (auditory input)
  • Communication attempt or expressing joy

The Four Functions of Behaviour

Behaviour analysis identifies four broad categories of behaviour function:

Escape / Avoidance

Behaviour to get away from something aversive

Attention / Connection

Behaviour to gain social interaction or response

Tangible / Access

Behaviour to obtain a preferred item or activity

Sensory / Automatic

Behaviour that provides internal sensory feedback

A behaviour support plan is only as good as the assessment behind it. Effective BSPs are built on a thorough functional behaviour assessment (FBA) and focus on teaching new skills, modifying the environment, and supporting the child — not just reducing unwanted behaviour.

1

Functional Behaviour Assessment (FBA)

A systematic process to identify the function (purpose) of challenging behaviours. Includes direct observation, data collection, caregiver interviews, and analysis of antecedents and consequences.

Why it matters: Foundation of the entire plan. Without understanding WHY, interventions are guesswork.

2

Antecedent Strategies

Proactive changes to the environment, routines, or demands to PREVENT challenging behaviour before it occurs. Examples: visual schedules, transition warnings, sensory modifications, choice-making opportunities.

Why it matters: Prevention is always more effective and humane than reactive strategies.

3

Replacement Behaviours

Teaching the child alternative, more effective ways to communicate the same need the challenging behaviour serves. If hitting = "I need a break," teach a functional communication response for requesting breaks.

Why it matters: Behaviour only changes sustainably when the child has a better alternative.

4

Reinforcement Strategies

Systematic approaches to motivate and strengthen replacement behaviours and adaptive skills. Uses the child's preferences and interests. Reinforcement should be natural, age-appropriate, and dignity-preserving.

Why it matters: Builds on strengths and interests rather than focusing on deficits.

5

Crisis Response Protocol

Clear steps for what to do if challenging behaviour escalates to crisis level despite preventive strategies. Prioritizes safety, uses least restrictive response, and includes debriefing procedures.

Why it matters: Ensures consistency and safety. Should be a last resort, not the primary plan.

6

Data Collection and Review

Ongoing measurement of behaviour frequency, duration, and intensity to evaluate whether the plan is working. Regular review meetings with the clinical team and family to adjust strategies.

Why it matters: Plans must be data-driven and regularly updated based on progress.

Who Creates a Behaviour Support Plan?

Behaviour support plans should be developed by a Board Certified Behaviour Analyst (BCBA) or equivalent qualified professional. The plan should be created collaboratively with:

Parents/caregivers
The child (to the extent possible)
Teachers and school staff
Other therapists (OT, SLP)
Respite workers
Family support workers

Behaviour analytic services are a core OAP-funded service. Families receiving OAP core clinical services or using their Childhood Budget can access behaviour support from approved providers. Here is what is covered.

Functional Behaviour Assessment (FBA)

OAP Covered

Direct assessment by a BCBA including observation, data collection, and analysis. Results in a written report identifying behaviour functions.

Behaviour Support Plan Development

OAP Covered

Creation of an individualized BSP based on FBA findings. Includes antecedent strategies, replacement skills, and reinforcement procedures.

Caregiver Coaching

OAP Covered

Training parents and caregivers to implement BSP strategies at home. Essential for plan success and generalization.

Direct Behaviour Analytic Services

OAP Covered

One-on-one behaviour therapy sessions delivered by a BCBA or RBT (Registered Behaviour Technician) under BCBA supervision.

Social Skills Groups

OAP Covered

Group-based social skills programming run by qualified behaviour analysts. Must be evidence-based and individualized.

School Consultation

Limited

Some OAP providers offer school consultation as part of their service package, but direct school-based service delivery may have limitations. Check with your provider.

How to Request Behaviour Services Through OAP

  1. 1.Contact your OAP Family Support Worker and request behaviour analytic services as part of your clinical plan.
  2. 2.Select an OAP-approved provider who offers BCBA services. Check the OAP provider directory.
  3. 3.The provider will conduct an FBA and develop a BSP. Review it carefully and ensure your family's priorities are reflected.
  4. 4.Request regular progress reports and plan review meetings. You have the right to participate in every decision about your child's plan.

Schools have legal obligations around behaviour support. Ontario's Education Act and PPM 141 set clear expectations for how schools respond to challenging behaviour, including strict limits on the use of restraint and seclusion.

IEP Behaviour Goals

Common behaviour-related goals for IEPs

  • Self-regulation strategies (identifying emotions, using calming techniques)
  • Functional communication for requesting breaks or help
  • Transition management (following visual schedule, accepting changes)
  • Social interaction skills (turn-taking, personal space, initiating)
  • Task completion strategies (breaking tasks down, self-monitoring)

PPM 141: Restraint and Seclusion

Your rights under provincial policy

  • Physical restraint is a LAST RESORT only when there is imminent risk of serious harm
  • Seclusion rooms must meet specific ventilation, lighting, and supervision standards
  • Every use of restraint or seclusion must be documented and reported to parents
  • Schools must develop plans to reduce and eliminate the use of restraint and seclusion
  • Parents have the right to review all documentation and request plan modifications
  • Students should not be routinely placed in seclusion as a "behaviour management" strategy

If Your Child Is Being Restrained or Secluded

If you believe your child's school is using restraint or seclusion inappropriately:

  1. 1. Request all incident reports in writing
  2. 2. Request a meeting to review the behaviour plan
  3. 3. Contact the Ontario Human Rights Legal Support Centre (1-866-625-5179)
  4. 4. File a complaint with the school board special education department
  5. 5. Consider involving your BCBA to consult with the school on alternatives

ABA is a scientific discipline. How it is applied matters enormously. The autistic community has raised important concerns about historical ABA practices. Modern, ethical behaviour analysis is evolving. Understanding the landscape helps you make informed decisions for your family.

Applied Behaviour Analysis (ABA)

The scientific discipline

Key Points
  • Broad science of learning and behaviour
  • Includes many techniques and approaches
  • Can be used ethically or unethically depending on practitioner
  • Historically focused on behaviour reduction and compliance
  • Modern ABA is evolving toward more affirming practices
  • Regulated through BACB certification
Considerations
  • •Quality varies enormously between providers
  • •Autistic community has raised valid concerns about historical practices
  • •Intensity recommendations (20-40 hrs/week) are debated
  • •Look for providers who prioritize assent and quality of life

Positive Behaviour Support (PBS)

The values-based framework

Key Points
  • Values-based application of behaviour science
  • Emphasizes quality of life as the primary outcome
  • Environmental and systems-level change, not just individual
  • Person-centred planning and self-determination
  • Rejects punishment-based and aversive procedures
  • Widely endorsed by disability advocacy organizations
Considerations
  • •Aligns with neurodevelopment-affirming principles
  • •Focuses on building skills, not just reducing behaviours
  • •Considers the whole person in context, not isolated behaviours
  • •Emphasizes meaningful participation and inclusion

The Bottom Line

The label matters less than the practice. Whether a provider calls their approach ABA, PBS, or something else, what matters is: Do they conduct proper assessments? Do they prioritize the child's quality of life and autonomy? Do they teach skills rather than just suppress behaviour? Do they respect the child's right to say no? Evaluate providers by their actions, not their titles.

Where to Search

BACB Certificant Registry

Official international registry of all Board Certified Behaviour Analysts. Search by location, name, or certificate number.

Search Registry

Ontario Association for Behaviour Analysis (ONTABA)

Ontario-specific professional association. Directory of members who meet ONTABA standards of practice.

Search Registry

OAP Provider Directory

List of approved OAP service providers who offer behaviour analytic services. Must be OAP-approved to bill against OAP funding.

Search Registry

Questions to Ask a Potential Provider

1.

What is your approach to behaviour support? Do you use a neurodevelopment-affirming framework?

2.

How do you obtain the child's assent (agreement) to participate in programming?

3.

Do you conduct a functional behaviour assessment before developing a behaviour plan?

4.

How do you involve the family in goal-setting and plan development?

5.

What is your policy on the use of punishment or aversive procedures?

6.

How do you measure progress and how often do you review the plan?

7.

What does your supervision model look like for RBTs?

8.

How do you handle situations where the child withdraws assent?

9.

What are your qualifications and how long have you been practicing?

10.

Can you provide references from families you have worked with?

Not all behaviour support is ethical behaviour support. The autistic community has documented harm from practices that prioritize compliance over wellbeing. As a parent, you are your child's most important advocate. Trust your instincts and watch for these warning signs.

Punishment-based procedures

Critical

Any practice that uses pain, discomfort, deprivation (food, water, comfort items), or aversives to reduce behaviour. Ethical behaviour support never uses punishment as a primary strategy.

No functional behaviour assessment

Critical

Developing a behaviour plan without first understanding WHY the behaviour occurs is like prescribing medication without a diagnosis. Demand a proper FBA.

Goals focused only on compliance

High Concern

Plans that aim to make the child "quiet," "still," or "compliant" without teaching replacement skills or addressing underlying needs are not in the child's best interest.

Ignoring the child's assent

Critical

If a child is clearly distressed, resisting, or withdrawing during sessions, and the provider continues regardless, this is a serious ethical concern. The child's "no" matters.

Not individualized

High Concern

Cookie-cutter plans that look the same for every child. Effective behaviour support must be tailored to the individual child's strengths, needs, preferences, and context.

Dismissing autistic community concerns

High Concern

Providers who refuse to engage with feedback from autistic adults or dismiss concerns about historical ABA harm are not practicing reflectively or ethically.

Promising to "fix" or "cure" autism

Critical

Autism is a neurodevelopmental difference, not a disease. Any provider promising to eliminate autism or make your child "indistinguishable from peers" is not practicing ethically.

Excessive hours without justification

High Concern

Recommending 30-40 hours per week without clear clinical rationale, individualized assessment, or consideration of the child's other needs (play, rest, family time) is a red flag.

How to Report Concerns

  • BACB Ethics Hotline: Report ethical violations at bacb.com/ethics
  • ONTABA: File a complaint through the Ontario Association for Behaviour Analysis
  • OAP Complaints: Contact MCCSS if the provider is OAP-funded
A behaviour support plan (BSP) is a written, individualized document that identifies the function of challenging behaviours and outlines proactive strategies, replacement skills, and environmental modifications to support the child. It is developed by a qualified behaviour analyst (BCBA) based on a functional behaviour assessment (FBA).
Yes. Behaviour support is a core clinical service under the OAP. Families can use their OAP funding to hire a Board Certified Behaviour Analyst (BCBA) for functional behaviour assessments, behaviour support plan development, and caregiver coaching. Behaviour analytic services are explicitly listed as a covered service category.
Applied Behaviour Analysis (ABA) is a broad scientific discipline. Positive Behaviour Support (PBS) is a values-based framework within that discipline that emphasizes quality of life, skill-building, and environmental changes over compliance-focused approaches. Modern, ethical ABA practice increasingly aligns with PBS principles, prioritizing the autistic person's dignity, autonomy, and preferences.
Search the Behavior Analyst Certification Board (BACB) registry at bacb.com to find Board Certified Behaviour Analysts in your area. You can also search the Ontario Association for Behaviour Analysis (ONTABA) directory. Ask about their experience with autism, approach to consent, and whether they use neurodevelopment-affirming practices.
Yes. Ontario schools can develop safety plans and behaviour support strategies for any student who needs them, regardless of diagnosis. However, a formal behaviour support plan developed by a BCBA typically requires a referral through the OAP or private funding. Schools must accommodate students under the Education Act and PPM 141 governs restraint and seclusion.
Red flags include: punishment-based procedures, no functional behaviour assessment before creating a plan, goals focused solely on compliance, ignoring the child's assent or withdrawal, plans that are not individualized, dismissing autistic community concerns, promising to "fix" autism, and excessive hours without clinical justification.

Support Your Child With Confidence

Every child deserves behaviour support that respects their dignity, builds their skills, and improves their quality of life. You are the expert on your child.

Find a Provider Crisis SupportABA Therapy Guide

Take Action

Help End the Wait

Your voice matters. Join thousands of Ontario families fighting for timely autism services.

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Verified References & Sources

Updated: Mar 2026

Government Reports & Data

[2020]
Autism ServicesVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2020-07-21
View
[2024]
Ministry of Children, Community and Social Services: Spending Plan ReviewVerified FAO Data
Financial Accountability Office of Ontario (FAO) • Report • 2024-02-29
View
[2025]
Ontario Autism Coalition FOI update on Ontario Autism Program registrations and fundingVerified FAO Data
Ontario Autism Coalition • Report • 2025-12-10
View
[2024]
Diagnostic Hub Waitlist Data — FOI Response (Trillium Health Partners hospital system, not The Trillium newspaper)Verified FAO Data
Trillium Health Partners (hospital) • Report • 2024-03-15
View

Official Government Sources

[2025]
Canada Disability Benefit - How much you could receiveGovernment Source
Government of Canada • Government • 2025-06-20
View

Commitment to Accuracy: Our data is verified against official government reports (FAO, MCCSS), peer-reviewed scientific literature, and accessible public records. Last updated: March 24, 2026.

  • Ministry of Children, Community and Social Services: Spending Plan Review (2024). Financial Accountability Office of Ontario (2024)
  • Ontario Autism Coalition FOI update on Ontario Autism Program registrations and funding. Ontario Autism Coalition (December 2025)

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About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
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Verified Facts

Facts cited on this page

88,175 — children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

23.4% — Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15

1 in 50 — According to the 2019 Canadian Health Survey on Children and Youth, about children and youth aged 1 to 17 in Canada had an autism diagnosis

Gov / Peer-ReviewedPublic Health Agency of Canada (2024)Verified: 2024-03-26
View our methodologyView all sourcesNext data update: 2026-05-15