March 25, 2026

The Trillium: Ottawa dad says he's trying to boost 'accountability' with autism waitlist website

Ontario's Queen's Park press gallery covers End The Wait Ontario on the same day the Government of Ontario tables its 2026 budget.

Direct answer

91,974 children registered in OAP, 77.5% have no active funding agreement (MCCSS FOI via OAC · May 2026)

The Trillium · MCCSS FOI via OAC · May 2026 · Verified 2026-08-10

In brief

In short

  • Queen's Park press gallery covered End The Wait Ontario on the same day the Government of Ontario tabled the 2026 budget
  • 91,974 children registered in OAP, 77.5% have no active funding agreement (MCCSS FOI via OAC · May 2026)
Show all 3 facts
  • Spencer Carroll's advocacy for data-driven accountability featured by The Trillium's Sneh Duggal
Verified: 2026-08-10Scope: Ontario, Canada

On the record

Independent reporting confirms the data families have long reported.

Ontario's figures, as of May 2026 (MCCSS FOI via OAC · May 2026).

Registered

91,974

Children registered

Total registered in the Ontario Autism Program

Funded

20,711

Have active funding

22.5% of registered children

Without active agreement

71,263

Without an active funding agreement

An administrative status; it does not confirm current service delivery.

Figures as of · MCCSS FOI via OAC · May 2026 · checked

Show as table
Ontario Autism Program key statistics (MCCSS FOI via OAC · May 2026, as of May 13, 2026)
MetricValue
Children registered91,974
Have active funding20,711
Without an active funding agreement71,263
Reporter
Sneh Duggal
Publisher
The Trillium (Village Media)
Published
March 25, 2026

The Trillium is a Village Media outlet covering Queen's Park. Subscribe to The Trillium for full access.

Attribution: This page summarizes coverage originally published by The Trillium on March 25, 2026, by reporter Sneh Duggal. The Trillium is Ontario's Queen's Park press gallery publication. The full article is available to Trillium Insiders subscribers, read it on thetrillium.ca.

On the day the Government of Ontario tabled its 2026 budget, The Trillium's Sneh Duggal profiled Spencer Carroll and End The Wait Ontario. The article reports that Carroll launched the website to boost “accountability” and help families get faster access to therapy through the Ontario Autism Program (OAP).

The article describes Carroll's son, diagnosed with autism at 14 months and registered in the OAP shortly after. Now six, he is still waiting for core clinical services, the OAP stream that funds applied behaviour analysis (ABA), speech-language therapy, occupational therapy, and therapy equipment. The family has spent between $75,000 and $100,000 out of pocket on private services while waiting.

The Trillium · March 25, 2026

A couple of years went by, figured that things would pick up, we would get core clinical services, but it never came.

, Spencer Carroll, as quoted in The Trillium, March 25, 2026

The Trillium notes that the OAP is housed within the Ministry of Children, Community and Social Services rather than the health system, with core funding ranging from $6,600 to $65,000 depending on a child's age and level of need. The province's 2025 budget raised OAP funding to $779 million, and the article cites the Ontario Autism Coalition's response that the waitlist had not meaningfully shrunk despite the increase.

The Trillium · March 25, 2026

Current figures (not from the article); checked August 2026.
MeasureValueSource
Children in the OAP91,974FOI-verified, May 2026
Unfunded for core services77.5%MCCSS FOI via OAC · May 2026
Reported wait time5+ years for families registered in August 2021 (community-reported, Ontario Autism Coalition, July 2026)Ontario Autism Coalition, July 2026 (reported from community intake)
2025-26 OAP budget$779MOntario Budget 2025

The article traces the website's origin to Carroll's interview on autism and early intervention, featured on the World Health Organization's social media last fall. Soon after, he launched End The Wait Ontario, which brings together waitlist data, provider lists, and guides for families waiting for services or navigating the school system.

I'm a parent putting together the information best I can. It's not meant to be the be-all and end-all ... I'm just looking to fill a void where I thought one existed at this point.

, Spencer Carroll, as quoted in The Trillium, March 25, 2026

The Trillium also summarizes the site's asks: wait times under six months, funding based on need without age caps, and monthly published intake and waitlist numbers by region. It notes that Carroll has filed an application to the Human Rights Tribunal of Ontario challenging the OAP waitlist as systemic disability discrimination under the Ontario Human Rights Code.

If the province is going to fix it, fund it fully. Don't throw it $100 million every year and say, ‘Okay, we've done our part.’ You're not meeting the medical needs of children full-stop.

, Spencer Carroll, as quoted in The Trillium, March 25, 2026

Government Response (via The Trillium)

In response to questions about Carroll's website and his asks, the Ministry of Children, Community and Social Services (MCCSS) pointed to this year's $779 million for the OAP, and told The Trillium that the number of children in core clinical services has tripled since 2022.

The ministry said all registered families have access to foundational family services, urgent response services, caregiver-mediated early years programs, and the entry-to-school program, and cited more than $635 million for children's special-needs programs and $90 million for the Healthy Babies Healthy Children program.

This page summarizes the article in End The Wait Ontario's own words, with brief quoted excerpts. Originally published in The Trillium, March 25, 2026, by Sneh Duggal. Read the full article on thetrillium.ca

In Our Own Words

The statements below are End The Wait Ontario's own advocacy. They are not quotes from The Trillium article.

I made a choice: I would never let another family lose those irreplaceable years to government bureaucracy.

, Spencer Carroll, End The Wait Ontario

We demand transparency and faster access to services that meet WHO early intervention standards. Families registered in 2021 are still waiting after five-plus years. Every month we wait, another cohort of children ages out. This isn't a policy debate. It's an emergency.

, Spencer Carroll, End The Wait Ontario

Also referenced: World Health Organization

Spencer Carroll's interview on autism diagnosis and early intervention was shared on the World Health Organization's official Instagram account (@who) on October 29, 2025. End The Wait Ontario is not affiliated with or endorsed by WHO.

Watch on WHO Instagram

Legal Action

Carroll v. Ontario (HRTO File 2025-62264-I)

Spencer Carroll's application to the Human Rights Tribunal of Ontario challenges the OAP waitlist as systemic disability discrimination under the Ontario Human Rights Code.

HRTO Case Disclaimer

The legal claims in Carroll v. Ontario (HRTO 2025-62264-I) involve specific individual circumstances and are distinct from the general advocacy positions expressed on this website. This case alleges that wait times during documented critical developmental windows may constitute discrimination under Ontario's Human Rights Code.

Also by The Trillium

OAC demands $186M go 'exclusively' to core therapies

March 27, 2026, Sneh Duggal

Read coverage

CBC News Investigation

67,500+ Ontario kids waiting for core autism funding

March 30, 2026, Brockbank & King

Read coverage

Explore

See the data yourself

Each figure on this site shows its source and date. 91,974 children registered; 71,263 have no active funding agreement (MCCSS FOI via OAC · May 2026).

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The source chain stays visible.

Key claims are paired with their source, evidence tier, and verification date so readers can inspect the public record directly.

Facts4
Sources3

22.5%

Only 20,711 children have active funding agreements (22.5%), less than one in four

Primary sourceMCCSS FOI via OAC · May 2026Verified 2026-08-10

OAP registrations jumped 21% since mid-2024, with the number of funded children dipping in some periods despite hundreds more registering

Secondary sourceNicole Brockbank & Angelina King (2026)Verified 2026-03-30
Last system verification: 2026-08-10. Next scheduled update: 2026-11-05.

About this page

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Written by

Founder & Autism Advocate

Lived experience: Parent of autistic child navigating OAP system