The children waiting for diagnosis
Diagnosis is the entry point — behind every assessment is a family already waiting for services.
Registered
88,175Children registered
Total in the Ontario Autism Program queue
CBC FOI Jan 2026
Funded
20,666Have active funding
Just 23.4% of registered children
CBC FOI Jan 2026
Waiting
67,509Still waiting
Registered. Diagnosed. Un-funded.
CBC FOI Jan 2026
Verified — CBC FOI Jan 2026
| Metric | Value |
|---|---|
| Children registered | 88,175 |
| Have active funding | 20,666 |
| Still waiting | 67,509 |
The earliest signs of autism are often subtle and may be noticed by attentive parents before a formal assessment is possible. The Canadian Paediatric Society recommends M-CHAT-R screening at 18-month and 24-month well-child visits. If you have concerns before those checkups, speak with your doctor — do not wait.
0-12 Months
12-24 Months
Learn about autism screening tools or how to get assessed in Ontario.
Some children are not identified until they enter school, where the social and academic demands increase significantly.
Autism in teenagers and adults may look very different from childhood presentations, particularly in those who have not been previously diagnosed. Many autistic teens and adults have developed strategies for appearing neurotypical — a process called masking or camouflaging — which can make their autism less visible to others, but comes at a significant mental health cost.
Common presentations in adulthood include finding social interactions exhausting, preferring direct and literal communication, having strong routines that are difficult to disrupt, sensitivity to sensory inputs, and deep expertise in specific areas of interest. Anxiety, depression, and burnout are frequently co-occurring experiences in undiagnosed or under-supported autistic adults.
If you are an adult wondering whether you might be autistic, see our guide: Do I Have Autism? Signs and Self-Assessment for Adults.
You do not need to be certain that a child or adult is autistic before seeking assessment. If you have concerns about any of the signs described above, that is sufficient reason to consult a healthcare provider. In Ontario, your family doctor or paediatrician can provide a referral for a diagnostic assessment. You can also seek private assessment through a registered psychologist, which is faster but involves out-of-pocket costs.
For children in Ontario, registering with the Ontario Autism Program (OAP) as soon as a diagnosis is confirmed is important, as waitlist position generally depends on registration date. Services include ABA therapy, speech-language therapy, and occupational therapy, among others.
Early signs in infants include limited eye contact, not smiling back by 6 months, not babbling by 12 months, not responding to their name by 12 months, and not pointing or waving by 12 months. By 16–18 months, not saying single words is also a red flag. The Canadian Paediatric Society recommends discussing these concerns with your doctor promptly.
Toddler signs include no two-word phrases by 24 months, loss of previously acquired language skills, limited pretend play, repetitive movements (hand flapping, rocking), lining up objects, unusual attachment to specific objects, intense distress at changes in routine, and limited interest in other children.
School-age children may have difficulty understanding social rules, struggle to maintain friendships, experience sensory overload in busy environments, have very focused areas of intense interest, and find transitions or unexpected changes very difficult. Academic skills may be strong in some areas and challenging in others.
Autistic adults may find social interactions exhausting, struggle to read implicit social cues, prefer direct communication, have strong routines and difficulty with unexpected changes, experience sensory sensitivities, and have intense areas of interest. Many adults are not diagnosed until adulthood, particularly women who have learned to mask their traits.
Girls often present with stronger social motivation and are more likely to "mask" autism traits by imitating social behaviours learned from peers. This camouflaging can make autism less apparent to parents and clinicians, leading to later diagnosis. Girls may show fewer repetitive behaviours and more internalized anxiety, making their presentations more subtle.
Verified Facts
Evidence supports autism screening and intervention commencing in the first 2 years of life — earlier identification directly enables earlier intervention during the highest neural plasticity window
1 in 50 — According to the 2019 Canadian Health Survey on Children and Youth, about children and youth aged 1 to 17 in Canada had an autism diagnosis
WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement
88,175 — children are registered in the Ontario Autism Program
23.4% — Only 20,666 children have active funding agreements () — less than one in four