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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

Getting Started

  • Browse All Pages
  • Search
  • Diagnosis Guide
  • While You Wait
  • Facts (Citation Ready)

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end|thewaitontario

Parent-led advocacy for Ontario families waiting for autism services.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

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  2. ›Sensory Processing Disorder

Sensory Processing Disorder: Understanding SPD in Autism

Up to 90% of autistic people experience sensory processing differences. Learn what SPD is, how it affects daily life, and what supports are available in Ontario.

TL;DR

  • Up to 90% of autistic people experience sensory processing differences
  • SPD is not a standalone DSM-5 diagnosis but is recognized as a co-occurring feature
  • Occupational therapists (OTs) are the primary providers of sensory-focused therapy
  • Sensory accommodations at home, school, and work can significantly reduce sensory stress

Who this affects

These challenges are common among the children waiting for services.

Registered

88,17588,175

Children registered

Total in the Ontario Autism Program queue

CBC FOI Jan 2026

Funded

20,66620,666

Have active funding

Just 23.4% of registered children

CBC FOI Jan 2026

Waiting

67,50967,509

Still waiting

Registered. Diagnosed. Un-funded.

CBC FOI Jan 2026

Verified April 29, 2026 — CBC FOI Jan 2026

Share these numbers
Ontario Autism Program key statistics (CBC FOI Jan 2026, verified 2026-04-29)
MetricValue
Children registered88,175
Have active funding20,666
Still waiting67,509

What Is Sensory Processing Disorder?

Sensory Processing Disorder (SPD) describes a pattern of difficulties in how the brain organizes and responds to sensory input from the body and the surrounding environment. Sensory input includes not just the five traditional senses — sight, hearing, touch, smell, and taste — but also proprioception (body position and movement) and vestibular input (balance and spatial orientation).

People with SPD may be hypersensitive (over-responsive) or hyposensitive (under-responsive) to sensory stimuli, or may show a mixed pattern across different sensory domains. SPD is not a standalone diagnosis in the DSM-5, but sensory reactivity is explicitly included in the autism spectrum disorder diagnostic criteria. Occupational therapist A. Jean Ayres first described sensory integration dysfunction in the 1960s and 1970s, and research in this area has expanded significantly since.

The Connection to Autism

Research consistently shows that sensory processing differences are among the most common features of autism. Estimates suggest that 69–90% of autistic individuals experience atypical sensory reactivity. For the DSM-5 revision in 2013, hyper- or hyporeactivity to sensory input was added as a core feature within the restricted, repetitive behaviors diagnostic criterion.

Sensory differences can profoundly affect daily life for autistic people. Loud environments, fluorescent lighting, certain food textures, and unexpected physical contact can trigger significant distress, sometimes escalating to meltdowns or shutdowns. Environments designed without sensory considerations — including many schools and workplaces — create unnecessary barriers for autistic people.

Signs and Types of Sensory Differences

Sensory differences present differently across individuals and sensory systems. The same person may be hypersensitive in some areas and hyposensitive in others.

Auditory

Hypersensitive

Distress at vacuum cleaners, crowd noise, hand dryers, or sudden loud sounds

Hyposensitive

Not noticing when spoken to, preference for very loud music

Tactile

Hypersensitive

Aversion to certain fabric textures, clothing tags, or light touch

Hyposensitive

High pain tolerance, not noticing temperature extremes, seeking deep pressure

Visual

Hypersensitive

Difficulty with flickering lights, bright environments, or complex visual patterns

Hyposensitive

Seeking visual input — watching spinning objects, flickering lights

Proprioceptive

Hypersensitive

Discomfort with physical activity or resistance

Hyposensitive

Crashing into furniture, heavy lifting, seeking tight hugs or weighted blankets

Vestibular

Hypersensitive

Motion sickness, fear of heights or movement, avoiding swings or escalators

Hyposensitive

Strong craving for spinning, swinging, and rocking

Olfactory / Gustatory

Hypersensitive

Strong reactions to food textures, cooking smells, or perfumes

Hyposensitive

Seeking strong flavors, not noticing household odors

Treatment and Support Strategies

Occupational therapy with a sensory integration (SI) approach is the primary evidence-based intervention for SPD. Trained OTs use structured, child-directed activities to challenge the nervous system in a controlled way — swings, obstacle courses, tactile bins, and proprioceptive exercises. The goal is to support the brain in processing sensory input more adaptively. Learn more about sensory integration therapy.

Environmental accommodations are equally important. Sensory accommodations do not require a clinical setting — they can be implemented at home, in school, and at work. Examples include noise-cancelling headphones, sensory corners with low lighting, fidget tools, flexible seating, and clothing from low-sensory fabric brands. A sensory diet — a schedule of targeted sensory activities throughout the day — can also help regulate the nervous system proactively.

What Is a Sensory Diet?

A sensory diet is not a food diet — it is a personalized schedule of sensory activities designed by an occupational therapist to help regulate the nervous system throughout the day. Activities might include swinging before school, fidget tools during class, heavy work activities (carrying books, pushing a cart) between transitions, and quiet time with a weighted blanket after school. The goal is proactive regulation, not reactive management of overload.

Sensory Accommodations at Home and School

Families and educators can reduce sensory stress through practical accommodations that cost little or nothing. At home: establish predictable routines, allow sensory tools at mealtimes, offer choices about clothing, and create a low-stimulation quiet space. At school: request sensory accommodations through the IEP or Individual Education Plan, advocate for sensory breaks, fidget tools, alternative seating, and access to quieter learning environments.

In Ontario, children with autism who are enrolled in school have the right to an IEP. Sensory needs can and should be documented in the IEP with specific accommodations. Families experiencing challenges with school accommodations can request an IPRC (Identification, Placement, and Review Committee) meeting. Learn more about autism supports in Ontario schools.

Frequently Asked Questions

What is sensory processing disorder?

Sensory Processing Disorder (SPD) refers to difficulties in how the brain organizes and responds to sensory information from the body and environment. People with SPD may be oversensitive (hypersensitive) or undersensitive (hyposensitive) to sensory input — including touch, sound, light, smell, taste, movement, and body position.

How does sensory processing disorder relate to autism?

Research consistently finds that up to 90% of autistic people experience some degree of sensory processing differences. Sensory reactivity is included in the DSM-5 diagnostic criteria for autism spectrum disorder. While SPD can occur without autism, it is extremely common among autistic individuals and often significantly impacts daily functioning.

What are the signs of sensory processing difficulties?

Signs vary by sensory domain and direction of sensitivity. Hypersensitivity signs include distress at loud sounds, aversion to certain textures or fabrics, difficulty in bright or flickering light, and strong reactions to smells. Hyposensitivity signs include seeking intense sensory input (crashing into things, high pain tolerance), difficulty feeling temperature, or not noticing when clothing is uncomfortable.

What treatments help sensory processing disorder?

Occupational therapy with a sensory integration (SI) approach is the primary evidence-based treatment for SPD. Trained OTs use structured sensory activities — swings, weighted tools, tactile and proprioceptive exercises — to support nervous system regulation. Environmental accommodations (noise-cancelling headphones, sensory-friendly classrooms, dimmed lighting) are also highly effective.

How do I get my child assessed for SPD in Ontario?

A registered occupational therapist can assess sensory processing. Referrals can be made by a pediatrician, family doctor, or obtained directly from a private OT clinic. Children with an autism diagnosis may be eligible for OT through the OAP Childhood Budget. School boards also provide some OT assessment through the IPRC process for children with identified exceptionalities.

  • Ontario Autism Coalition FOI update on Ontario Autism Program registrations and funding. Ontario Autism Coalition (December 2025)
  • Ministry of Children, Community and Social Services: Spending Plan Review (2024). Financial Accountability Office of Ontario (2024)

Your Child's Health

Understanding Is the First Step

Learn more about supporting your child's development while navigating the system.

While You Wait ResourcesFind a Provider

What official government data tracks the Ontario autism waitlist?

Primary sources include: Financial Accountability Office (FAO) annual reports, Ontario Auditor General reviews, OHRC policy statements, publicly available FOI data, and AccessOAP program data. Latest FOI data (Dec 2025) shows 88,175 registered children with only 23.4% having active funding agreements (up from 70,176 registered in the FAO 2023-24 report).

Source: FAO, Auditor General, OHRC, CBC FOI Jan 2026

What does the WHO say about early autism intervention timing?

The WHO Fact Sheet on Autism Spectrum Disorders (2023) states that timely access to early evidence-based psychosocial interventions can improve the ability of autistic children to communicate effectively and interact socially. Dawson et al. (2010, Pediatrics; PMID 19948568) confirmed in an RCT that ESDM (Early Start Denver Model) at 18–30 months produced significant developmental gains.

Source: WHO Fact Sheet: Autism Spectrum Disorders (2023); Dawson et al., Pediatrics 2010 (PMID 19948568)

About This Article
Written by:Spencer Carroll - Founder & Autism AdvocateParent of autistic child navigating OAP system
Featured in CBC News Investigation
FOI Data Verified
Clip in WHO Social Media Reel
Active HRTO Advocacy
FAO & Legislative Assembly Cited

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Verified Facts

Facts cited on this page

Early Start Denver Model (ESDM) delivered to children aged 18–30 months produced significant gains in IQ, adaptive behaviour, and autism severity — some children no longer met diagnostic criteria at follow-up

Gov / Peer-ReviewedDawson G, Rogers S, Munson J, et al. (2010)Verified: 2010-01-01

Cochrane systematic review finds evidence that early intensive behavioural intervention (EIBI) may produce positive effects on adaptive behaviour and communication for young children with ASD (low certainty of evidence)

Gov / Peer-ReviewedReichow B, Hume K, Barton EE, Boyd BA (2018)Verified: 2018-05-09

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Gov / Peer-ReviewedWorld Health Organization (2023)Verified: 2023-11-15

88,175 — children are registered in the Ontario Autism Program

SecondaryCBC FOI Jan 2026Verified: 2026-04-29

23.4% — Only 20,666 children have active funding agreements () — less than one in four

SecondaryCBC FOI Jan 2026Verified: 2026-04-29
View our methodologyView all sourcesNext data update: 2026-05-15