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End The Wait Ontario is a parent-led advocacy organization. We publish FOI-verified data on the Ontario Autism Program waitlist and push for evidence-based reform. Built for Ontario families, researchers, and journalists.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

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Speak softly and carry a big stick.·The data is the stick.·Follow the data. Demand the standard.

Founded by the family behind Carroll v. Ontario, a human-rights case about autism wait times (HRTO 2025-62264-I, not yet decided).

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

  1. Home
  2. ›Investigations
  3. ›Oversight Doesn’t Follow the Money

Spending & oversight · FAO · FIPPA · AG

When oversight doesn’t follow the money.

Ontario spent $691.2 million on autism services in 2023–24. Less than half reached core clinical therapy. The administrative architecture managing the rest is largely shielded from public audit. Structural barriers have left 71,263 children behind.

Reporter
Spencer Carroll
Published
April 2026
Read time
~16 min · 24 sources
Verified
2026-04-06
Total OAP spending, 2023–24
$691.2MTotal OAP spending, 2023–24FAO · MCCSS via FOI
Reached core clinical therapy, the rest is architecture
44.5%Reached core clinical therapy, the rest is architectureTrillium FOI · 2024-07-04
To AccessOAP, the consortium-run intake apparatus
$57.9MTo AccessOAP, the consortium-run intake apparatusFAO Spending Plan Review
Children still on the OAP waitlist
71,263Children still on the OAP waitlistMCCSS FOI via OAC · May 2026
“
My son was diagnosed at 14 months. We registered with the OAP before his second birthday. We did everything the system asked us to do, exactly when the system asked us to do it. We waited four and a half years. He received two rounds of caregiver coaching. He received zero core clinical services. He turned six last month. The critical intervention window, ages zero to six, is closed. It does not reopen.

Family impact · one documented case

Spencer Carroll · Founder, End The Wait Ontario · family wording, not a clinical cutoff; development and learning continue after age six

01 · The first six years

75% of this child’s first six years were spent waiting.

Early childhood can be an important time to offer appropriate support, but there is no universal age-six cutoff and no single therapy is right for every autistic child. Development and learning continue throughout life. The documented harm here is the family’s prolonged lack of access to the funded core services it sought.

In the documented case above, the child was diagnosed at 14 months. The family registered with the OAP in September 2021. The system acknowledged their existence. Then the system made them wait.

One family’s documented timeline

First six years vs. OAP wait vs. core services received.

First six years
Ages 0–6
On waitlist
75%, zero core services
Core services received
0%

Family chronology · OAP registration September 2021 · sixth birthday March 2, 2026. The percentage is a timeline comparison, not a clinical cutoff.

Every month waiting is a month without the funded support a family was seeking. The ministry snapshot counts 71,263 registered children without an active funding agreement; it does not establish a common clinical need or outcome for every child in that group.

02 · What the waitlist actually costs a family

$175,439 in pre-tax income, to buy a fraction of what $153,000 in public funds would have delivered.

When the public system fails to deliver the services it promised, families face a choice: continue waiting or pay privately, with after-tax income, for services they were seeking through the public program.

This is not a discretionary government benefit. This is public money, appropriated by the Legislature, designated for children with autism. The funds do not belong to the government. They belong to the public. Families should not have to petition an externally operated intake apparatus for access to what is already theirs.

Yet that is precisely what happens. The government has inserted an intermediary, a privately operated consortium functioning as a needs-determination and claims-administration system, between the public funds and the children those funds exist to serve.

The financial cost · one family, 4.5 years

What was paid, what was earned, what would have cost less.

AmountDescriptionBeneficiaryStatus
~$100KPrivate therapy over 4.5 years, after-tax dollars paid out of pocket.Paid by familyOpen
~$175KPre-tax income required at ~43% combined Ontario marginal rate.Earned by familyOpen
~$153KWhat OAP core services would have cost the government ($34,000/yr FAO avg × 4.5 years).Public cost (not delivered)Reversed
$0Reported public spending on core clinical services for this child during the family chronology above.DeliveredLocked

Scale

This is not an outlier. There are 71,263 children registered in the OAP without active core clinical services funding. For every family that can afford to pay privately, there are families that cannot. Many of those children go without an active funding agreement while years of potential support pass.

03 · Where $691.2M goes

Less than half reaches children as therapy.

$691.2M total

  • $307.3M44.5%

    Core clinical services, therapy

    44.5%

  • $104.0M15.0%

    Legacy / childhood budgets · transitional

    15.0%

  • $57.9M8.4%

    AccessOAP administration

    8.4%

  • $58.9M8.5%

    Urgent response

    8.5%

  • $36M5.2%

    Foundational family services

    5.2%

  • $26.5M3.8%

    Capacity building

    3.8%

  • $54.7M7.9%

    Entry to school

    7.9%

  • $45.9M6.6%

    Connections + other

    6.6%

MCCSS documents obtained by The Trillium through FOI · FAO Spending Plan Review.

The FAO estimated OAP spending of $691.2M in 2023–24. MCCSS documents obtained by The Trillium through FOI reveal how that money was allocated. Only $307.3M, 44.5%, reached core clinical therapy. The remaining $383.9M went to administrative architecture, pillar programs, and support structures.

“

Less than half reaches children as therapy. No published independent audit has examined how the rest is spent.

ETWO analysis · FAO Spending Plan Review · MCCSS via FOI

04 · The administrative architecture

Administration and direct support answer different needs. The public record should show what each delivers.

Look at the list of non-therapy line items above. Foundational Family Services. Capacity Building Initiatives. Entry to School. Connections for Students. Urgent Response. These programs have distinct mandates, and several can provide meaningful support beyond core clinical services. The accountability question is whether their outcomes and costs are reported clearly beside core-service access.

Foundational services, capacity building, urgent response, and school-transition programs are not interchangeable with core clinical funding. Nor is autism itself a crisis caused by lack of treatment. These programs may address real family, workforce, safety, and transition needs while the funding queue remains unresolved.

The case for scrutiny does not require pretending every non-core program could disappear. It requires publishing comparable spending, access, and outcome measures so the public can see which functions are necessary, which overlap, and what reaches families.

The math of full funding vs. the current architecture

Illustrative upper bound, not a redirection plan.

AmountDescriptionBeneficiaryStatus
~$3.05BFull funding requirement: 91,974 children × $34,000/yr (FAO average).RequiredOpen
$691.2MCurrent total OAP spending, 2023–24 (FAO Spending Plan Review).ActualOpen
$383.9MCurrent spending outside core clinical services. This scenario does not assume it is all legally or operationally reroutable.Scenario inputIn progress
+11,291Arithmetic upper bound at $34,000/yr if every non-core dollar were redirected; not a forecast or recommendation.IllustrativeReversed

This ~$3.00B figure answers a different question than the FAO shortfall figure cited elsewhere on this site (a $385M gap against the 2026-27 budget, using the FAO's 2020 baseline for a smaller cohort). This one asks what it would cost, at the FAO's own per-child average, to fully fund every child registered today. Both are legitimate calculations; they are not the same number, and neither supersedes the other.

The $383.9M comparison is a transparency stress test, not a claim that all non-core spending is waste or can be transferred. It shows why program-level reporting matters: the public should be able to compare each line’s mandate and outcomes with the unmet demand for core funding.

Autism support is not analogous to a cast applied after a fracture. A diagnosis can establish program eligibility, but it does not prescribe one service, intensity, or outcome. Individualized planning and administration still have legitimate roles; those roles should be proportionate, timely, and publicly accountable.

In the Ontario Autism Program, diagnosis is the beginning of an administrative process. Administrative and clinical dollars are not automatically fungible, but their scale can still be compared. $57.9M went to AccessOAP, the consortium that handles registration, intake, needs determination, care coordination, and payment reconciliation. At the FAO’s average of $34,000 per child, that amount is equivalent to 1,703 average annual funding amounts; equivalence is not proof that the whole contract could be redirected.

Structural observation

The functions AccessOAP performs, registration, intake, needs assessment, claims coordination, payment administration, are structurally identical to insurance claims administration. The difference is that insurance companies are regulated, audited, and subject to public reporting. AccessOAP, as a private consortium funded by public money, is not subject to public FIPPA requests, mandatory Auditor General audit cycles, or comparable public reporting requirements.

05 · Spending goes up. The waitlist goes up.

Both lines rise together, the paradox of structural inefficiency.

  1. 2019–20

    Spending ~$300M · 23,000 children registered

    Baseline year before OAP redesign.
  2. 2020–21

    Spending ~$390M · 40,000 children registered

    +30% spend, +74% registrations.
  3. 2021–22

    Spending ~$500M · 54,000 children registered

    AccessOAP partnership announced Dec 2021.
  4. 2022–23

    Spending ~$600M · 68,000 children registered

    +100% spend vs baseline, +196% registrations.
  5. 2023–24

    Spending $691M · 70,176 children registered

    44.5% reaches core clinical therapy.
  6. 2025–26Pivot

    Budget $965M · 91,974 children registered

    Described as a record investment. Waitlist still 71,263.

In any functioning system, more money should produce fewer children waiting. In the OAP, both lines go up together. Spending is up ~3.2× since 2019. Registrations are up ~3.8×. The 2026 funding level is the highest in the program’s history. The waitlist is the largest in the program’s history.

06 · 91,974 registered. 20,711 funded.

A sea of red. One funded segment.

  • 22.5%
    Funded · active CFA

    20,711 children

  • 77.5%
    Waiting · no funding agreement

    71,263 children

91,974 children registered. Visualizing the ratio at scale, the waitlist is over three times the funded population. MCCSS / AccessOAP · Dec 2025.

07 · The oversight gap

FIPPA applies to provincial institutions. AccessOAP is not a FIPPA institution.

DimensionMCCSS · ministry sideAccessOAP · contractor side
FIPPA accessFull, FIPPA-designated institution.Not covered, not a FIPPA institution.
AG special auditFull, statutory authority over MCCSS.Discretionary, Section 9.1 of the AG Act, only if AG chooses.
FAO data accessCan request ministry data.No statutory access to AccessOAP books.
$57.9M breakdownAggregate visible at the ministry layer via FOI.By consortium partner, by function, by line, not disclosed.

The AG can audit grant recipients under Section 9.1 of the Auditor General Act, discretionarily. The FAO has no authority over the contractor.

Government position

The government announced $965M for OAP in the 2026 Budget, described as a record investment. The FIPPA amendment was characterized as protecting Ontario from foreign entities.

08 · Provincial accountability mechanisms

Seven levers, every one exercisable under current law.

  1. 01

    Standing Committee on Public Accounts.

    Can request the AG to audit AccessOAP as a grant recipient. Precedent: opposition leaders jointly requested the Greenbelt audit in January 2023.
  2. 02

    AG public request form.

    The Auditor General considers public submissions when planning audits. Anonymous submissions accepted.
  3. 03

    Ontario Ombudsman, systemic investigation.

    Nowhere to Turn (2016) made 60 recommendations on developmental services. The Ombudsman has jurisdiction over MCCSS.
  4. 04

    FAO analysis request, any MPP.

    Any MPP can request the FAO to examine the cost-effectiveness of AccessOAP’s delegated delivery model.
  5. 05

    FIPPA request to MCCSS.

    MCCSS holds the AccessOAP contract, performance metrics, and financial reports. FOI the ministry for what it knows about how $57.9M is spent.
  6. 06

    IPC order.

    If MCCSS denies a FIPPA request for AccessOAP contract records, the Information and Privacy Commissioner can compel disclosure. IPC orders are binding.
  7. 07

    Federal AG “follow the money.”

    If National Autism Strategy funds flow to Ontario, the federal AG’s authority under the Federal Accountability Act (2006) engages automatically.

09 · Federal accountability mechanisms

Healthcare is provincial. Federal money comes with federal strings.

  1. 01

    Canada Health Act, sections 14, 15, 18–20.

    Allows the federal government to withhold CHT payments if provinces violate its five criteria. Ontario has never been penalized under the CHA for autism services, but the statutory authority exists.
  2. 02

    Canada Health Transfer, conditional funding.

    The CHT is not unconditional. The 2023 bilateral health agreements require provinces to report on how funds are used. Federal transfers have been withheld before.
  3. 03

    Canada Social Transfer, section 24.3.

    The CST funds social programs including early-childhood development. A National Autism Strategy could establish shared principles and objectives.
  4. 04

    Bill S-203 / National Autism Strategy.

    The Strategy Secretariat sits within PHAC. Federal autism funding comes with strings, reporting requirements, and the federal AG’s follow-the-money authority.
  5. 05

    Federal spending power.

    The constitutional spending power allows Ottawa to attach conditions to any transfer, even in provincial jurisdiction. A National Autism Strategy with conditional funding would use this mechanism.

Scope

The CHA covers insured health services, primarily medically necessary physician and hospital services. Autism therapy delivered through a dedicated provincial program is not clearly within the CHA’s current envelope. However, the April 2026 CHA Services Policy expansion creates a precedent for broadening that definition.

10 · Structural reforms

The oversight gap is a design choice. Other designs are possible.

  1. 01

    FIPPA designation for major contractors.

    Designate entities administering $10M+ in public funds as FIPPA institutions through regulation. AccessOAP’s records become accessible.
  2. 02

    Mandatory AG audit cycle.

    Require the AG to include grant recipients above $25M in the regular audit cycle. Systematic, not discretionary.
  3. 03

    Public reporting in transfer payments.

    Require detailed public financial breakdowns, by function and by partner, in all transfer payment agreements above $10M.
  4. 04

    Outcome reporting tied to funding.

    Measure developmental milestones, therapy hours delivered, wait-time reduction, and family satisfaction, not just enrollment numbers.
  5. 05

    Independent evaluation.

    Periodic arm’s-length evaluation reporting to the Legislature. The FAO or a dedicated unit could fulfil this role.
  6. 06

    Whistleblower protections.

    Extend Public Service of Ontario Act protections to employees of grant recipients performing public functions.

Right now

The oversight gap exists by design. So does the fix.

We are calling for mandatory independent audits of all major OAP contractors and direct public FIPPA access for publicly funded institutions. Two minutes. We pre-fill the verified numbers.

Email Your MPP (2 min)See all actions

Verified anchors

  • $691.2M OAP spending 2023–24 · FAO/FOI
  • 44.5% reaches core clinical therapy · Trillium FOI
  • $57.9M to AccessOAP · MCCSS FOI via The Trillium
  • 91,974 registered / 20,711 funded · MCCSS FOI via OAC · May 2026

Reading list

  • The Corporate Takeover Playbook
  • The Quiet Transfer
  • Privatization Dangers
  • 74 Pages, 65% Undocumented

Editorial note

Scope and fairness: this page describes a structural pattern. It does not characterize the intent, competence, or integrity of AccessOAP, Accerta Services, or any consortium partner. No allegation of wrongdoing is made or implied anywhere on this page. Fair comment under Grant v. Torstar Corp., 2009 SCC 61, and WIC Radio Ltd. v. Simpson, 2008 SCC 40.

Citable source facts(1)Question-and-answer pairs with their source and verification link.

Is the Ontario Autism Program underfunded?

Verified

Yes. The Financial Accountability Office (FAO) determined that $1.35 billion annually is needed to serve all registered children at 2018-19 service levels. The 2026-27 Ontario Budget allocated $965 million, leaving an estimated $385M+ annual shortfall. This gap is the primary driver of the perpetual 91,974+ child waitlist.

Source: Financial Accountability Office of Ontario [FAO] · Verify Link

Filed underAll investigations
About This Article

Written by Spencer Carroll

Founder & Autism Advocate

Parent of autistic child navigating OAP system

Evidence on this page

The source chain stays visible.

Key claims are paired with their source, evidence tier, and verification date so readers can inspect the public record directly.

Facts3
Sources3

91,974

children are registered in the Ontario Autism Program

Government / peer-reviewedMCCSS FOI via OAC · May 2026Verified 2026-08-10

22.5%

Only 20,711 children have active funding agreements (22.5%), less than one in four

Government / peer-reviewedMCCSS FOI via OAC · May 2026Verified 2026-08-10

WHO recommends accessible, community-based early interventions for children with autism. Timely evidence-based psychosocial interventions improve communication and social engagement

Government / peer-reviewedWorld Health Organization (2023)Verified 2023-11-15
Last system verification: 2026-08-10. Next scheduled update: 2026-11-05.
View methodologyBrowse every source