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End The Wait Ontario is a parent-led advocacy organization. We publish FOI-verified data on the Ontario Autism Program waitlist and push for evidence-based reform. Built for Ontario families, researchers, and journalists.

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Legal Disclaimer: This website presents advocacy arguments based on publicly available data and legal frameworks. While we strive for accuracy, this content is for informational purposes only and does not constitute legal or medical advice. Nothing on this website should be construed as a guarantee of any specific legal outcome.

Independence: End The Wait Ontario is a parent-led advocacy group. We are not affiliated with the Ontario government, the Ontario Autism Coalition, Autism Ontario, or the World Health Organization. We cite FOI data obtained by the Ontario Autism Coalition as a matter of public record. This does not constitute affiliation. References to these organizations are for informational purposes; no endorsement is implied.

Non-partisan policy advocacy: We advocate on policy outcomes for children and families and do not endorse any political party or candidate.

Statistics are current as of the dates cited and may change. For specific legal guidance, consult a licensed attorney. For medical advice, consult qualified healthcare professionals. Last updated: 2026.

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Speak softly and carry a big stick.·The data is the stick.·Follow the data. Demand the standard.

Founded by the family behind Carroll v. Ontario, a human-rights case about autism wait times (HRTO 2025-62264-I, not yet decided).

© 2026 End The Wait Ontario. All rights reserved. · Parent-led advocacy · Not a government agency

  1. Home
  2. ›What We Asked Ontario

The docket

What we asked Ontario, and what came back

Several of the questions families ask us most often have no published answer anywhere. This is the record of asking for them on paper.

Requests

6

Submitted

0

Answered

0

Quick summary

  • 6 freedom-of-information requests, covering the questions we are asked constantly and cannot answer from published data.
  • Every request shows its own status. Drafted means written but not yet sent — we do not call that "asking".
  • Where a request is refused, the refusal gets published here with the exemption relied on.
  • Until a response arrives, our answer to these questions stays "Ontario does not publish this". We do not fill the gap with an estimate.

Why this exists

The gap this page is about

A parent asks which registration month is currently getting invitations. Another asks how the amount on their funding letter was calculated, or how long the Special Services at Home wait is in their region. These are ordinary questions about a public programme, and none of them has a published answer.

What fills the vacuum is estimation. Families compare notes and build their own trackers, and the numbers that come out of that are often the best available — but they are not government data, and nobody should have to reconstruct a public queue from memory.

So we ask on the record. Asking a ministry for records is a routine statutory right, not an accusation, and nothing on this page alleges wrongdoing by anyone. It is simply the difference between saying we do not know and showing that we asked.

The requests

What each one asks for

  1. FOI-01

    Drafted, not yet submitted

    Which registration cohort is currently being invited

    To: Ministry of Children, Community and Social Services / AccessOAP · FIPPA

    Registration date is the single thing families are told determines their place in line, and Ontario does not publish which registration cohort is currently being invited. Families track it themselves by comparing notes in Facebook groups. That is not a reasonable substitute for a published number.

    Records requested

    • The number of Core Clinical Services invitations issued per month, from January 2024 to the date of this request.
    • For each month, a breakdown of those invitations by the registration-date cohort of the family invited (by registration month and year).
    • Any internal document describing the order or criteria by which invitations are issued.

    Until then
    Our processing snapshot uses community reports and labels them as such. It is not government data and we do not present it as a forecast.

    What we publish on this today →

  2. FOI-02

    Drafted, not yet submitted

    How the Determination of Needs sets a funding amount

    To: Ministry of Children, Community and Social Services · FIPPA

    A family can be assessed, receive an amount, be reassessed the following year and receive far less, without ever being shown how the number was produced. The Information and Privacy Commissioner has already considered access to Ontario autism assessment material in Order PO-4494. We are asking again, and specifically for the scoring and weighting.

    Records requested

    • The Determination of Needs scoring tool or rubric used to assess children for Core Clinical Services funding.
    • The weighting applied to each assessed domain.
    • Any table or formula mapping assessed support-need levels to funding amounts or funding bands.
    • Guidance, training material, or written direction issued to care coordinators on completing a Determination of Needs.

    Until then
    Our investigation into the scoring tool sets out what is known and what has been withheld to date.

    What we publish on this today →

  3. FOI-03

    Drafted, not yet submitted

    Special Services at Home wait times by region

    To: Ministry of Children, Community and Social Services · FIPPA

    SSAH is a second waiting list that gets far less attention than the Ontario Autism Program, and unlike OAP it is not first-come-first-served. Families are told higher needs are served sooner, without a published definition of how that is decided or how long any of it takes.

    Records requested

    • For each ministry region, by fiscal year from 2021-22 to present: the number of Special Services at Home applications received, approved, and funded.
    • For each region and fiscal year, the median and maximum number of days between application and first payment.
    • Any written criteria used to prioritise SSAH applications where demand exceeds available funding.

    Until then
    We publish no SSAH wait-time figure, because there is no defensible one to publish.

    What we publish on this today →

  4. FOI-04

    Drafted, not yet submitted

    Whether funding reviews and appeals change anything

    To: Ministry of Children, Community and Social Services · FIPPA

    Families are advised by other families that a review only examines whether the process was followed, not whether the amount was right. We have not been able to confirm that from any published source, and we have not been able to confirm what the reviewing body is formally called. Both should be a matter of public record.

    Records requested

    • The number of reviews, reconsiderations, or appeals of Ontario Autism Program funding determinations received per fiscal year from 2021-22 to present.
    • The outcome of each, grouped by category (amount increased, amount unchanged, amount decreased, assessment redone, withdrawn).
    • The median elapsed time from request to decision.
    • The name and terms of reference of the body or role that conducts these reviews.

    Until then
    Our appeal guidance describes the internal review route and says plainly where the published record runs out.

    What we publish on this today →

  5. FOI-05

    Drafted, not yet submitted

    Modified school days and parent-supplied location devices

    To: Ontario district school boards (multi-board request) · MFIPPA

    Two of the most common and most distressing school questions parents raise have no province-wide published answer: whether a child may wear a locating device, and how many children are being sent home early. Boards answer both differently, and families discover the rule only when it is applied to them.

    Records requested

    • Any written policy, procedure, or administrative guideline governing parent-supplied GPS or wearable location devices worn by a student during the school day.
    • Any written policy or procedure governing modified, reduced, or partial school days for students with disabilities, including who must authorise one.
    • The number of students on a modified or reduced school day in each of the last three school years, and the number of those students who have an Individual Education Plan.

    Until then
    Our guidance sets out the privacy grounds boards typically rely on and how to make the request in writing. It does not claim to know any individual board’s policy.

    What we publish on this today →

  6. FOI-06

    Drafted, not yet submitted

    Children who aged out without ever receiving funding

    To: Ministry of Children, Community and Social Services · FIPPA

    A child who registers at four and turns eighteen without ever being invited has been counted as registered for fourteen years and served for none of them. Ontario reports how many children are registered and how many are funded. It does not report how many ran out of childhood while waiting.

    Records requested

    • The number of individuals who exited the Ontario Autism Program on reaching age 18, per fiscal year from 2019-20 to present.
    • Of those, the number who never entered into a core funding agreement at any point while registered.
    • The median length of time those individuals were registered before exiting.

    Until then
    We publish no figure for this. Our aging-out guidance covers what happens at 18 and what adult supports exist, without estimating how many never received funding.

    What we publish on this today →

How this works

The rules we hold ourselves to

A drafted request is not a question we asked. Requests written but not yet submitted say so plainly. We would rather show an empty column than imply a clock is running when it is not.

A refusal gets published. If Ontario declines to release records, the refusal and the exemption relied on appear here. A refusal is a lawful outcome and we will not present one as proof of the thing we asked about.

No estimates get promoted to facts. Where a question on this page is unanswered, the pages that touch it say Ontario does not publish this. That is why we publish no Special Services at Home wait time and no appeal success rate.

Institutions have 30 calendar days to respond, and may extend with notice. Refusals and fees can be appealed to the Information and Privacy Commissioner of Ontario.

Sources

SOURCE

Freedom of Information and Protection of Privacy Act, R.S.O. 1990, c. F.31
Government SourceTier 1

Government of Ontario

Governs access requests to provincial ministries, including MCCSS.

SOURCE

Municipal Freedom of Information and Protection of Privacy Act, R.S.O. 1990, c. M.56
Government SourceTier 1

Government of Ontario

Governs access requests to district school boards.

SOURCE

How to Make an Access Request
Government SourceTier 1

Information and Privacy Commissioner of Ontario

Procedure, fees, and appeal rights for access requests in Ontario.

SOURCE

Order PO-4494 (Appeal PA22-00391)
Government SourceTier 1

Information and Privacy Commissioner of Ontario • 2024-03-04

Prior IPC order relevant to access to Ontario autism assessment material.

Related Resources

  • Scored In The Dark
  • Tools / Oap Tracker
  • Transparency
  • Data Hub

Follow this

We publish what comes back, including the refusals

If a response lands, it appears on this page with the records attached. If access is refused, that gets published too.

See the data we already holdHow we verify facts
Citable source facts(2)Question-and-answer pairs with their source and verification link.

How many children are on the Ontario autism waitlist in 2026?

Verified

As of March 4, 2026, 89,799 children are registered with the Ontario Autism Program. However, only 20,633 (23%) have an active Core Funding Agreement. This represents approximately 290% growth in registrations since 2019, with 69,166 children still waiting for essential funding.

Source: OAC FOI Mar 2026, FAO Report 2024 · Verify Link

Is the Ontario Autism Program underfunded?

Verified

Yes. The Financial Accountability Office (FAO) determined that $1.35 billion annually is needed to serve all registered children at 2018-19 service levels. The 2026-27 Ontario Budget allocated $965 million, leaving an estimated $385M+ annual shortfall. This gap is the primary driver of the perpetual 89,799+ child waitlist.

Source: Financial Accountability Office of Ontario [FAO] · Verify Link

About This Article

Written by Spencer Carroll

Founder & Autism Advocate

Parent of autistic child navigating OAP system

Evidence on this page

The source chain stays visible.

Key claims are paired with their source, evidence tier, and verification date so readers can inspect the public record directly.

Facts4
Sources4

89,799

children are registered in the Ontario Autism Program

Secondary sourceMCCSS FOI · Mar 2026Verified 2026-06-13

23%

Only 20,633 children have active funding agreements (23%) — less than one in four

Secondary sourceMCCSS FOI · Mar 2026Verified 2026-06-13

According to the FAO (2020 report), OAP funding covers less than one-third of estimated need at 2018-19 service levels

Government / peer-reviewedFinancial Accountability Office of Ontario (2020)Verified 2020-07-21

WHO recommends accessible, community-based early interventions for children with autism — timely evidence-based psychosocial interventions improve communication and social engagement

Government / peer-reviewedWorld Health Organization (2023)Verified 2023-11-15
Last system verification: 2026-06-13. Next scheduled update: 2026-09-10.
View methodologyBrowse every source