By Spencer Carroll · September 7, 2026 · 24 min read
Three recorded calls · Every quotation checked against three transcription systems · Nobody is named
In January 2026 the Minister responsible for Ontario's autism programme told me, on a recorded call, that he could not see where my son stood in the queue. Not that he would not tell me. That he could not. Intake had been placed at arm's length from his own ministry, and the arm's length worked in both directions.
Within days, someone who was not the Minister got in touch to explain how things really get done.
The most revealing thing anyone told me about government was what happens after people like me leave the room.
We were on the phone, talking about what the Ontario Autism Program costs to run and how much of the money reaches families. My new acquaintance described parents making that argument to ministers — being heard, being thanked, being shown out. And then, in this telling, the politicians turned to the person still in the room to discuss why people like me did not understand how government works.
I was the one who left. They were the one who stayed.
I have no way to know whether that meeting ever happened. I know it was described to me, and the distinction turned out to be the whole story. I was being asked to picture a room I could not enter, and to accept that my acquaintance was inside it, explaining me after the door closed.
That is the message I now hear underneath every piece of advice, every explanation, every offer in three recorded conversations: you are small, I am not, and your smallness is why I am here.
Small is relative, so let me be accurate about my size. I hold a Bachelor of Commerce and have run my own businesses for eighteen years — fabrication, distribution, strategy — after a management career in hotels in Canada, the United States and Scotland. I built an independent public dataset on this programme that draws upwards of thirty thousand visitors a month. A clip of me discussing it was included in a World Health Organization social-media feature. I read the financial records myself. I represent my son at a tribunal without a lawyer, and I meet the deadlines. I was not a man who needed rescuing.
What none of that bought me was an answer to one question: when would a public programme help my child? That is the only sense in which I was small, and it was the sense that mattered to the person who approached me. A platform with that reach is worth something to anyone assembling influence. So is a father who cannot get an answer. I was both, and I think that is precisely why the message arrived.
I recorded the calls. What follows is my reading of the relationship I was offered, set against what I actually did. It is not proof of anyone's intentions, or of the influence they claimed. And to be plain about the one inference a reader might reach for and should not: I have no evidence that either the Premier or the Minister had anything to do with this approach, and I do not suggest they did.
This is a story about what fills the space when a province hands the front door of a public programme to a contractor and steps back. I did not understand that when the message arrived. I understood it by the third call.
Part IThe gap
In January 2026 I spoke to Premier Doug Ford. He was decent to me. In the transcript, the words I attribute to him acknowledge that his minister knows the file better than he does and promise to have Minister Michael Parsa call. Parsa called the next day. Ford did what he said he would do.
The Minister asked about my son — his registration, the services we were using — and offered to have his office find answers. Then, in the passage I attribute to him, he explained that intake for the programme had been placed at arm's length from government, and said that he did not know where individual children stood: "don't even know who's where".
I will not put words in quotation marks against a sitting Premier or Minister on the strength of one machine transcript. That sentence appears in three separate transcriptions of the same recording, produced by different systems, and the speaker identifies himself within it: he refers to himself as the minister and to the year I registered.
Those were attentive conversations with the two highest offices I could reach. They left me with a promise of inquiries, not a date.
The silence was not an accident of two busy offices. It was the arrangement working as designed. Intake had been contracted out to an organisation that, on paper, answers to the ministry; on the phone, the Minister could not see into it. The distance that keeps ministers' hands off individual files also keeps a father's question from reaching anyone who can answer it. Everything that follows happened inside that space.
Part IIThe approach
Within days, I placed the first call to the person this story is about — returning an approach that had arrived in writing, through a social-media account that was not their own. The message gave a name, a number and an email address, described long experience in the autism-programme world, and said people they knew had seen my website. I have it. I am not reproducing it, because it would identify them, and identifying them is not the point. They later filled in how it had come about: a clinician they knew had sent them the site, and before writing they had asked around whether anyone knew me. Nobody much did. They wrote anyway.
Across three calls in January and March, this person claimed a hand in how the programme had been built and, eventually, offered to reach a sitting minister on my behalf. They never claimed they could secure funding or move my son through the queue. What they offered was a personal path to influence, at the moment the official one had produced attention without an answer.
The first call began with small talk, then with my explaining the site and asking about their involvement. They had read the site, they said — "I read it quick" — but "I didn't memorize it". The answer to my question grew into an account of unusual knowledge and unusual access. I had handed them the opening; they used it to become the person who could explain the system I was stuck in.
The questions that came back were in a register I did not think about until later. "So how's your son doing?" they asked, "as one parent to another." Then: "I'm just curious because I know a fair bit about the space. So was he able to get into some help or care early on?" I answered as any father would, and told a stranger how my household was arranged and what we had paid for ourselves. Each question arrived with its own excuse for being asked.
Later they asked whether my son was receiving the funding. Still on the wait list, I said, and I mentioned what it would be worth in a year when it came. They suggested the wait might run on a fixed timer — a guess, they said — and then added that they could find out, if they cared to. My child's wait was something they could choose to investigate. I had no such choice about caring. They became someone with access to an answer; I stayed someone waiting for one.
The next day that figure came back in their voice, inside a funding model: "you will get 65 grand a year for your son […] he's very severe". What I had said as a father returned as a data point, with a severity attached.
By March, when they suggested I write to request a meeting — they supplied the opening line: I should tell the minister I had heard he was a great guy and had some thoughts about funding — I said I already had, repeatedly. I was in my fifth year of trying through the ordinary channels. Advice to ask nicely only sounds practical if you discount all the asking that has already been done.
They talked at length about how government works, and some of it was useful: ways to combine funding streams, ways to reduce a long list of demands to a few achievable outcomes. I engaged. That matters, because authority is easiest to accept when it arrives carrying something worth hearing.
In the second call they moved from the funding model to the strain on families. They asserted an extreme rate of family breakdown and spoke of divorce and abuse. Figures like that circulate widely in this sector and do not survive checking, so I am not repeating it. What I noticed was the posture: the suffering of families like mine, presented as something already measured and understood.
One reading is credentialing. I know what this costs people like you. I have studied it. Let me explain what you need.
The second reading is mine, and the literature on social engineering has a name for it: elicitation. A statement like that, dropped in front of a parent, is bait. It is not a question, because a question can be declined. It is a claim about your life, placed on the table to see what you do with it. Agree, and you have confirmed the strain. Deflect, and you have marked a subject you will not go near. Correct it, and you have described your marriage to a stranger. Every reply gives something up. There is no move that gives nothing.
If that is what it was — and it is how I read it — it is the first page of the playbook: find out what the mark has to lose before you decide what to offer him.
So: my marriage is healthy. There was nothing to find and nothing was found. That is exactly why the move is worth writing down. Read as a probe, it was not testing my family. It was testing me, and what I had to lose.
The same register ran through smaller moments — an opening stretch of complaint about their own household, volunteered before any business had been raised; the questions about my son; "What does your business do, by the way?" Each is unremarkable on its own. That is what makes them work.
They described past fights they said they had won on parents' behalf. They claimed credit for the programme's design and blamed its failures on other people's implementation. When I questioned the mechanism, they invoked having designed it. When I questioned the results, the answer was the limitations of government.
Two lines from that stretch stayed with me. On how they had learned what money was in the system: "i had some friends in the minister's office do some digging". On the previous service contracts: "i broke them all".
I cannot confirm either. What they did was make both sound ordinary — a favour from inside a minister's office, the unmaking of a province's contracts, delivered in the register of someone recalling a Tuesday.
The same register carried a run of inside stories: how the programme's budget had been set, who was on the late-night call, what a minister said and what the Premier answered, how the number doubled. Told with names and times of day. I could not check any of it and I am not repeating it. I record that it was told, because that is what it was for. Each story was a room I had not been in, narrated by someone who said they had — and that gap was a form of power whether the rooms were real or invented. Success proved their influence; failure proved why I needed someone who understood the obstacles.
I did check — the provincial lobbyist registry, and the public record of who was consulted when the programme was built — and found no documentary confirmation of their central claim about their own role. That does not prove it false — work can be done without a name on it, and I cannot see inside a government contract. It means only that I cannot lend their account my authority by printing it as fact.
It also means something a reader should hold onto. The person I am describing claimed a role that no record I could find documents. A documented role in this programme is therefore not a clue to their identity, and resemblance to a role is not an identification.
Part IIIThe split
Throughout the calls, this person was contemptuous of the province's established advocacy organisations. Most of it I am not reproducing. One part I must, because the reasoning is the point. It opened with a question — "This is not meant to be condescending at all" — "Have you read about autism? Like a lot?" — and a short lecture on empathy that used my own child as its illustration: "your kid's dog died, you'd love your son. That's emotional empathy." Then the reasoning: one such organisation was unfit for the work because, they asserted, people in its leadership are autistic. Its executives, they said, lack a particular kind of empathy, and they attributed that to being on the spectrum. Agreement appeared to be expected.
I reject that reasoning completely and flatly. Nothing about being autistic makes a person less able to advocate. What I am recording is that this was said to the father of a non-verbal autistic child, by someone who claimed a hand in building the programme that child is waiting on.
The community itself was described to me in the same spirit. Mothers who had confronted a premier were, in this telling, wives who had forgotten how to court a husband: "why don't they like us more? I was like, you're all married." Parents admitted to a consultation were guests who had misbehaved: "even when we let you inside the inner sanctum sanctorum to contribute ideally calmly you guys lose your shit". Note the pronouns. We let you inside. And there was a rule about where things are actually settled, offered once it had been established that I was a man who drinks beer: "as I tell most people, especially some of the women, all these decisions are made over" — and the sentence finished with the names of two chain restaurants. The people who have carried this cause in Ontario for a decade are, by and large, mothers. I was being told which side of the door they were on, and invited through it.
On it, they built an offer. Having asserted — not shown — that the incumbents could not do the job, they turned it around: I could. "You come across as having some of that because you've run a business. You know how hard it is to be there for people, right?" There was space to step into. Earlier in the same call I had been told I sounded more constructive than other parents, and then: "the key, life advice, the key is you have to be at the table." Life advice, to a man who has run his own businesses for eighteen years, from someone I had spoken to twice. Three steps. The people doing this work are unfit. You are fit. Take the space. Set beside what was later asked of me, it is hard to read as career advice. It reads as an approach to a platform, and to the community behind it.
The Ontario Autism Coalition and the advocates around it are volunteers and parents who have carried this work for years while raising their own children. They deserve a defence here, because the account I was given made their exhaustion a reason to discount them.
And I want to say where I now stand, because it has changed. In these calls I argued that autism advocacy in this province could afford to be more technical, more patient, more accommodating. I meant it, eighteen months in. The people I was implicitly criticising have published detailed funding proposals, sat across from ministers, built coalitions, and kept at it through changes of government — for years, while raising their own children. That is not an unwillingness to compromise. It is a record of trying every reasonable thing and being met with what my own family has been met with: attention without an answer.
What changed my view was not an argument.
I had asked one of them, in writing, whether anything strange had started happening once they began advocating at a high level. The answer was a shrug: their whole life was strange. I read it as a joke.
Then I had the year I had. An ordinary bad year, as these things go, and it showed me what a long run of attrition does to a person's appetite for asking nicely. I understood, from the inside, the intensity I had been quietly criticising in people who have been at this far longer than I have. They were not being unreasonable. They were tired in a way I had not yet earned the standing to judge.
I stand with them. I was wrong to be impatient, and it took a bad year that had nothing to do with them to show me why.
I owe them an honest account of my own part, too. I sometimes joined in the criticism; my frustration with advocacy and my wish to work independently were already there. That makes the move more intelligible, not less. They did not need to invent a grievance. They could agree with mine and offer me a more flattering place in the story — the parent who understood practical constraints, who might succeed where others supposedly had not. The subtext: you can be different from the other parents, provided you learn how to behave with us. The pressure was never about cutting anyone off. It was about whose judgment I would trust.
Here is what the approach failed to account for. I had been warned in writing before the first call, by someone who had been in this world a great deal longer than I have.
The warning was practical, and mostly right. I was told this person was well connected and might be worth hearing out. I was told to expect a particular pitch — that he controls things, that he is the one really in charge. I was told, in terms, "don't give him too much information", because "they're sniffing around". And I was told this:
"don't tell him I warned you he was calling"
I have thought about that line more than any other in this account. Someone who knew this world well enough to know the call was coming, and what it would sound like, did not want it known that they had told me. Whatever else is true or not true here, that fear is real. I did not have to take anyone's word for it. I watched it operate.
The people being diminished to me were the same people who made sure I did not walk in blind. That was a concrete act of care, and it did more to protect my judgment than any claim about who could get a minister's attention.
Part IVThe terms
My website was not incidental. They said it had drawn their attention. They asked why I wanted to be a policy advocate when my son was, as they understood it, doing well. Then, inside an explanation of how I might focus my goals, a partnership appeared: "if you and i are working together".
The "if" matters. This was conditional, not agreed. But it placed us together in an imagined future — them handling the difficult people, me bringing the cause. Advice could become a relationship before either of us had defined its terms.
In January the political logic became explicit. They described support for funding being answered with political support, using another group's purported arrangement as the example. Their formulation: "you take care of us we'll take care of you".
Then they did the arithmetic out loud. Take the number of children in the programme, multiply for parents and grandparents, call it three to one. And then, in their words:
"that's 240 000 adults […] if doug takes care of your kids can you deliver 240 000 adults as volunteers in the next election because if you can you're in the game"
To be exact: that is not an offer from anyone in government, and neither official said anything of the kind to me. It is one person's account of how influence is transacted, put to the father of a child on a waiting list, with my son's community priced as canvassers. There is nothing wrong with parents volunteering in an election; people do it every cycle. The question was what the volunteering was being tied to. I had brought a child waiting for services. The conversation now treated the people around children like mine as political capacity.
That is why I read the interest in my site as more than interest in its content. A website gives a father a voice; an audience can give someone else a route to parents. I cannot prove that acquiring that route was their intention, and I will not pretend to. They never demanded control of my site, never asked me to remove an article, never made silence a price. I am not describing a threat. I am describing something quieter: across three conversations, every road led back to what my platform might be worth inside their model of influence. Nobody had to say the quiet part for that to be the shape of it, and it is on tape.
The March offer deserves the words it was made in. What was offered was not a meeting. It was a text:
"if i can send the text which i'm happy to today right now or when we hang up"
They added that it might not be worth anything — and then gave the reason it might be: their own history of support, as they described it, for the minister and his party.
And in the same breath, the other road: "if you want to build you know a huge support you know a wave of support and you want to use that as a cudgel do that too i've done it".
That is the connection, in its own voice: a minister reachable by text before dinner, past support for his party as the reason it might land, and a cudgel as the alternative. It was not a promise to fund my son, and no price was attached. I cannot turn the January lesson into a bargain the recording does not contain.
I declined in writing the next day. The record contains earlier refusals too; it does not support a story in which I kept saying yes until the final ask.
Then I did the thing the offer was meant to spare me. The day after the call I wrote to that minister myself, and five minutes later to the ministry's general address. I asked for thirty minutes. I gave the waitlist figure — 67,399 children, many waiting more than five years — and offered to bring the data.
Twenty-five seconds after the first email, an automatic reply arrived. Staff would follow up directly.
Nobody ever did.
That exchange is the whole argument in miniature. I was offered a private route and I used the public one, and the public one did not answer. I am not claiming the private route would have worked; I cannot know. I am saying I never found out, because I would rather be told no through the front door than let in through a side one.
Part VThe performance
The March call reads differently from the first two. My answers become sustained objections: I have asked, the wait is not acceptable, I want accountability. They keep returning to the way government is, and to the usefulness of talking to someone who controls money. "What you want is a meeting where you ask for money, right?" I answered with Oliver Twist's line — please, sir, can I have some more? "Versus what?"
When I argued that a tribunal outcome could protect access, they invoked the notwithstanding clause — their move in an argument, not a legal conclusion I adopt. Its effect was to place even the formal route I was pursuing beneath the power they described. When I argued for accountability, they said it was not built into the system. When I asked when it would be: "It doesn't."
An explanation of constraints can help a parent choose a workable action. Repeated as the answer to whether the constraints should change, it sets the boundary of what the parent may expect. My demand becomes idealism. Their resignation becomes expertise. If I keep objecting, that is only further evidence that I do not understand.
I did not let it pass. Late in the call I called them a supposed power broker. They rejected the term, then said: "I'm a person who applies pressure using power when I deem it to be appropriate."
That sentence describes discretion. They would decide when their power was appropriate to use. They also described helping when they had the time and the interest. I could not put down my child's need until a more convenient moment. The stakes were unequal even if every offer was sincere.
The inequality was not left to inference. My own trade was the example: "You make closets. Do you pursue government contracts making closets? Of course you don't." And a few minutes later, closing a thought about how the world is run: "I'm in a different place than you are, right?" I was. I was in the place where the queue is.
No hidden threat is needed to see that. The position the conversation offered me was: informed by them, advised by them, admitted through them, and expected to recognise what they said they had done.
I do not know how much power this person actually held. That was never the question. The question is what was done with the appearance of it, in front of a parent who could not test any of it — and on that, I am relying on the recordings of those calls, not on my memory of them.
I do have some basis for judgment. I spent my twenties in hotels where money and power actually stay — the Four Seasons, the Ritz-Carlton — close enough to real authority to learn how it carries itself. It does not tell you it has friends in the minister's office. It does not do arithmetic about your community at you. It does not text. The person on my phone did all three.
What I was being given was not access. It was information from a firehose — claim after claim, none of it checkable, all of it delivered in the voice of someone who assumed I would never try. Whether or not the warning I had been given was right in every particular, it was right in kind. That is not how dignified positions of authority operate. I have a word for how this operated, and I hold it as my opinion on everything set out above — claims I could not check, offered to a parent who could not check them, in exchange for a relationship on their terms: grift.
I kept returning to what my child needed.
Part VIWhat fills the space
Here is what I think the whole of it means.
My son is waiting for something the federal government treats as health — Ottawa's national autism framework belongs to the Minister of Health and is run by the Public Health Agency of Canada — and that anywhere else in this country's health system would be called care. Ontario chose to run it differently. Intake for the programme was handed to a private consortium led by a corporation and placed, in the Minister's own words to me, at arm's length from government — so far at arm's length that the Minister could not tell me where my child stood. The public accounts show close to a billion dollars in ministry payments passing through that corporation over four years — most of it programme money administered onward to families. The operator's own contract, in the programme records I have seen, was about $58 million in 2023-24.
Into the gap that arrangement created came the person in these recordings. Not a public servant, not an elected official: a private individual who cited their own history of support for the governing party and offered to text a minister between hanging up and dinner. I was not talking to my government. I was talking to a private individual standing in the space where my government used to be.
That is what a privatised public programme looks like from the inside. The money is public. The accountability runs on paper to the ministry, and on the phone the Minister could not answer me. A father asks the province a question and the province cannot answer it, and then someone else gets in touch to explain how things really get done, and every protection that would attach to a public official — a register, a record, a name — attaches to nobody.
So set aside whether any of it was true, and look only at what this person chose to say to me. They told me they had a hand in building the programme my son is waiting on. They told me friends in a minister's office had done some digging for them. They told me they had broken the province's service contracts — "i broke them all". They told me the arrangement between a government and a community is "you take care of us we'll take care of you". And they worked out aloud that the parents and grandparents of Ontario's autistic children come to some 240,000 adults, before putting the question that follows: "if doug takes care of your kids can you deliver 240 000 adults as volunteers in the next election".
Whether any of it was true is a separate matter, and I have said where I could not confirm it. It was all said; I have the recordings. None of it needed my agreement. It needed my presence, my exhaustion, and my inability to check a word of it — and in January I had no way to know whether it described how things actually work or was a salesman's patter dressed as insider knowledge.
What I make of the calls is opinion. This was not advice. It was an audition, and the part on offer was a route to other parents. I may be wrong about what was intended — intention is the one thing a recording cannot capture. I am not wrong about what was said, because it is on tape. And I am not wrong about who it was said to, because it was said to me.
The record exists, and it is not mine to sit on. Three recorded calls, the written approach, my refusals in writing, the emails to a minister's office that went unanswered — all of it preserved, hashed, and anchored to a public timestamp service on a date I can prove, so that nobody, including me, can quietly revise it. Every quotation in this article was checked against three separate transcription systems and appears in all three; the voices were told apart by two independent methods, and on every line quoted here they agree. I have written each sentence to be checked rather than believed: attributed where it is their claim, marked where it is my opinion, silent where I could not confirm. I made a memorandum to file. I kept this matter out of my son's case and met its deadlines.
That is also why it should not end here. A father with a website is not the right person to report these recordings. A newsroom is — with an editor, a lawyer, and the standing to put to the people who can answer them the questions I cannot. The recordings and the written record are available to any newsroom prepared to do that properly.
I have also prepared a request that the Auditor General examine how intake is administered. It concerns the programme, not any individual, and at the time of writing I have not yet sent it. I say so because a reader is entitled to know the difference between something I have done and something I intend to do.
I am withholding whatever would turn this into a guessing game about a name. Describing a supposed role can harm someone who happens to fit it. The conduct is the subject here; identification is not an invitation.
A word to the person this describes, and to anyone who believes it describes them. Nobody is named here, and I have written to no one about this piece. The recordings were made lawfully, by a party to the calls, and are preserved unaltered; I will not publish them, and I will not confirm or deny to anyone who you are. Everything inside quotation marks is verbatim from the transcripts, and every judgment here is stated as mine. But a record cuts both ways. If you dispute anything in this account — a quotation, a characterisation, my reading of it — the door is open: write to me through the contact page. Any quotation you dispute will be checked again against the recording. Whatever you say will be noted publicly on this page, with the date, accurately and in your own words wherever we disagree, under the same corrections policy that governs everything else on this site.
He registered in September 2021. He was invited into core clinical services in August 2026. As I write, he has still had no determination of needs and has received no funding.
There was a gap between a Minister's willingness to help and an answer about care. Into that gap came someone claiming the knowledge and access I lacked. I did not have to prove them fraudulent to refuse the relationship. I did not have to prove them influential to see what accepting it would ask of my judgment.
My son cannot speak. I can. I recorded the conversation, checked what I could, and put my refusal in writing.
Related
Is your child on the list?
Add your family's wait to the public count. It takes a minute, and it is the number the province does not publish.
For reporters
The three recordings, the written approach and the sealed manifest are available to a newsroom that will report them properly.
If someone you know should read this, send it to them.
Published:
Written by Spencer Carroll
Founder & Autism Advocate
Public sources referenced in this statement
- Public Accounts of Ontario — detailed schedules of payments, MCCSS transfer payments, 2021-22 to 2024-25. Treasury Board Secretariat, Government of Ontario
- Selection process for Ontario Autism Program services — the independent intake organization. Ministry of Children, Community and Social Services
- Ontario Lobbyists Registry (public search). Office of the Integrity Commissioner of Ontario
- Framework for Autism in Canada (2024). Public Health Agency of Canada, on behalf of the Minister of Health
- Criminal Code, R.S.C. 1985, c. C-46, s. 184(2)(a). Government of Canada