First person · The founder’s story

My son has no right to therapy. Ontario put that in writing.

I registered my son for the Ontario Autism Program at eighteen months old. His first appointment came four years, eleven months and eleven days later. The province’s written position is that he was never entitled to anything. I’m his father. This is what I learned reading the fine print.

A note before I begin. This is the first thing I have published under my own name about what the Ontario Autism Program did to my family. I have spent five years collecting the letters, the recordings, the file numbers and the fine print, and this week I put the question to the Human Rights Tribunal of Ontario. This page is where I start telling the rest of it. It is not where I finish. More is coming — piece by piece, document by document, all of it from the public record. This is the first.

I registered my son for the Ontario Autism Program on September 16, 2021. He was eighteen months old.

Level 3 autism — the most severe classification there is. Adaptive functioning at the 5th percentile. The psychologist’s prescription: intensive intervention, 15 to 25 hours a week.

Ontario registered him. Gave him a client number. Sent us letters.

I registered my son for the Ontario Autism Program at eighteen months old; his first appointment came four years, eleven months and eleven days later. It was a phone call.

My son is six now. Nobody from the province has ever assessed what he needs. No funding has ever been determined. Not one dollar has ever been paid.

And when a family finally asks how that can be legal, the Government of Ontario does not apologize. It does not produce a plan. It produces a position:

The OAP is a “discretionary program.”
Eligibility “does not give rise to a right to receive services and supports and/or funding.”
Services are “allocated within available resources.”
The Human Rights Code “does not give anyone in Ontario a right to receive publicly funded services or supports.”

Read those again. The richest province in Canada built a program for autistic children, took my eighteen-month-old into it, let him turn six inside its queue — and its considered legal position is that it never owed him a thing.

Taxes are supposed to work like an insurance premium. You pay in — every paycheque, every purchase, every year — and when your child needs care, the care is there. Simple. The rest of health care still works this way: nobody at the emergency room asks whether your child has a right to treatment. The health card is the receipt. The premium was already paid. Ontario decided autism therapy would work otherwise.

It collected the premium. It called the payout discretionary.

What we got. What we bought.

In five years, the program offered us two things.

Parent training — one hour, every week or two, for my wife and me. Not for him. His prescription said 15 to 25 hours a week for the child. Ontario delivered an hour a fortnight to his parents, and its own invitation letter admitted what the program really was: his place on the core services waitlist “will be maintained.” Something you do while you wait. We did it. We kept waiting.

Then school-transition invitations — in years he wasn’t starting school. When he did start, he went every weekday morning for six months. Fine program. Not therapy. No funding. No assessment. Not one place forward in the queue.

Everything else, we bought. Weekly speech therapy. Weekly occupational therapy. A private ABA program on top. Year after year of invoices for the exact services the province admits my son never received — at a fraction of the prescribed intensity, because that is what two parents can carry alone.

A family does not pay, year after year, for a service it is already receiving. Remember that sentence the next time Ontario lists everything it “offers.”

I asked. Everyone. For five years.

I wrote to the Ministry’s Autism Branch with one question: when will my son get his needs assessment?

They answered the same day. A list of programs we’d already finished. A budget announcement. No date. No queue position. No timeline. I asked when my son would get help, and the Government of Ontario sent me its press release.

I called AccessOAP — the private agency the province pays to run the front door. A coordinator called back. Her words: “still nothing new in regards to updates to the core clinical services waitlist time.” “Still no information via the ministry.” “In regards to the waitlist, I don’t have any new information.”

The people paid to run the waitlist told me they had no information about the waitlist.

Our MPP wrote to the Minister. The Minister answered over his own signature, and in one sentence confirmed the whole machine:

“AccessOAP is continuing to invite children into core clinical services in the order they registered in the OAP.”

Registration order. That is the entire algorithm. Not severity. Not urgency. Not the psychologist’s report sitting in their file.

And the part that should stop you cold: Ontario does not look at what your child needs until after his turn comes up. The needs assessment happens at the end of the wait — behind a scoring tool families never see. Not the beginning. The end.

For five years, the Ontario Autism Program’s queue — the system deciding when my son gets help — has been structurally incapable of knowing whether my son is drowning.

The longer they wait, the less autism funding your child gets

This is the part they don’t announce. I found it in their own published funding guidelines. The amount a child receives is locked by age — his age when the needs interview finally happens. Not when you registered. When they got to you.

Ontario Autism Program core clinical services annual funding by age band and level of support need, per the ministry’s published guidelines
Age at determinationLimitedModerateModerate+Extensive
Up to 3$10,900*$65,000
4–9$8,900$24,500$36,800$65,000
10–14$7,600$18,800$41,400
15–17$6,600$18,300$31,900

*Limited and moderate combined in the youngest band.

Read the last column.

Under Ontario’s Core Clinical Services age bands, a child with extensive needs — the most disabled children in the program — is worth $65,000 a year to Ontario at nine. At ten: $41,400. At fifteen: $31,900. Less than half. Same child. Same disability. The only thing that changed is how long Ontario took to look at him.

My son registered in the youngest band. He aged out of it inside their queue.

The wait is not a delay in the benefit. The wait eats the benefit. Every year they don’t get to your child, they owe your child less — and on their legal position, they never owed him anything to begin with.

A cynic would call that a feature. Look at the table and tell me the cynic is wrong.

I’m one father. Here’s everyone else.

91,974children registered
20,711with active funding
71,263still waiting
22.5%actually funded

As of the province’s most recent progress reports, 91,974 children are registered in the OAP and 71,263 of them — 77.5% — have no active core funding agreement. When the legislature’s independent watchdog, the Financial Accountability Office, examined the program as of early 2024, it found 70,176 children registered, 19,966 enrolled in core clinical services, and 14,290 actually paid. The list has grown by more than twenty thousand children since. Tens of thousands of families are living some version of the five years I just described. Most of them don’t know about the age-band table. Most of them think the silence means they’re almost at the front.

“The courts settled this” — Auton, Wynberg, and what they didn’t decide

When you push, you hear about two old cases. Auton — the Supreme Court, 2004: the Charter doesn’t force a government to create a health program it hasn’t chosen to fund. Wynberg — Ontario’s Court of Appeal, 2006, same era, same idea.

Fine. Those cases were about whether a province must build a program. Nobody is asking that. Ontario built this one. It wrote the eligibility rules. It signs the invitation letters. It registered my son, and it ran the queue that consumed his early childhood. The question nobody has answered is whether a province that chose to build a service for disabled children can lawfully run it through a mechanism that is blind to need — and that, by design, hits the most severely disabled children hardest.

That’s not a question about creating programs. It’s a question about how a service is administered, and Ontario’s Human Rights Code exists precisely for that question. I’ve put it to the Human Rights Tribunal of Ontario. The tribunal is where I’ll argue it — not here. But no parent should have to file anything to learn what I’ve written on this page. It cost me five years to assemble. It’s yours for free.

What I’d tell you to do — today

  • Register the day of diagnosis. Your date is the only lever this system gives you. The table above takes back everything delay costs you.
  • Get everything in writing and keep all of it. Every letter, every date, every file number. The province’s own paper is the best evidence of what this program actually is.
  • Email Your MPP. Demand a written answer. It accumulates. It’s a public record.
  • Call the Human Rights Legal Support Centre — 1-866-625-5179. Free legal advice. The HRTO hears complaints about how services are administered, and filing costs nothing.
  • Complain to the Ontario Ombudsman. Program administration is exactly their job.
  • Join the Ontario Autism Coalition. Alone, you’re a client number in a queue that can’t see you. Together, you’re a political problem they can’t allocate away.

What other parents ask me

Does my child have a right to autism therapy in Ontario?
No. Ontario's written legal position is that OAP eligibility "does not give rise to a right to receive services and supports and/or funding" and that services are "allocated within available resources." The province has also stated that Ontario's Human Rights Code "does not give anyone in Ontario a right to receive publicly funded services or supports" — so registration, and even a diagnosis, create no legal entitlement to therapy.
How long does a family actually wait for the Ontario Autism Program?
As of May 13, 2026, 91,974 children were registered in the Ontario Autism Program and 71,263 of them — 77.5% — had no active core funding agreement, per MCCSS Ontario Autism Program figures, May 13, 2026, obtained by the Ontario Autism Coalition under Freedom of Information. The Ontario Autism Coalition reports, from community intake, that invitations are currently reaching families who registered in August 2021 — at minimum a 5-year wait for any child registering today.
Why does OAP funding decrease with age?
Ontario's Core Clinical Services funding runs from $6,600 to $65,000 a year, but the amount is set by a child's age at their Determination of Needs interview — not by when they registered or how severe their needs are. For a child with the most extensive needs, the province's own published bands show the ceiling fall from $65,000 a year up to age 9, to $41,400 at 10–14, to $31,900 at 15–17: less than half, for the same child, the same disability. Because invitations go out strictly in registration order, every year Ontario takes to reach a child's needs interview is a year of eligible funding the age bands quietly take back.
What happens after OAP registration?
After registration, a child is placed in a queue and invited to service strictly "in the order they registered" — not by severity, urgency, or any assessment already on file, per the Ministry's own written confirmation. While waiting, families may be offered parent training or school-transition sessions, but no funding, therapy hours, or needs assessment happen until the child's turn comes up. Ontario only evaluates what a child actually needs — the Determination of Needs interview that sets the funding band — at the end of the wait, which is one reason 3,706 children are already "enrolled" in Core Clinical Services with no funding agreement yet in place.
How does Ontario decide which child gets funding first?
Ontario invites children to core clinical services strictly "in the order they registered" for the program — not by severity, urgency, or clinical need, according to the Minister's own written confirmation. A child's Determination of Needs interview, the assessment that actually evaluates what they need, does not happen until their registration date comes up in the queue, so severity plays no role in who is served next. The only variable a family can control is how early they register, since registration date is the entire mechanism.
Does registering early guarantee my child will get autism funding sooner?
Registering early is the only lever a family has, but it is not a guarantee: invitations move in registration order, so a family's place depends on how many children registered before them, not on urgency. It matters doubly because of Ontario's age-based funding bands — a child invited at age 9 can qualify for up to $65,000 a year, while the same child with the same needs invited at 15 qualifies for as little as $31,900, so being assessed earlier can also mean a larger funding band. Once entered, a registration date is fixed for the life of the wait; families cannot change their position afterward.

I did everything right. Early diagnosis, immediate registration, every program they offered, every channel they provide, five years of letters and calls — and I paid privately for the therapy the whole time, because my son’s childhood couldn’t wait for their queue.

Ontario’s answer, in writing, is that my son has no right to anything.

The province is counting on parents being too exhausted to read the fine print. I read it. Now so have you.

Spencer Carroll is the father of a six-year-old boy with Level 3 autism, and the founder of End The Wait Ontario.

Quotations and figures on this page come from the public record and the author’s own correspondence: Ontario’s stated legal position on the OAP; the Financial Accountability Office report FA2305-MCCSS (pp. 23–24); the OAP guidelines for core clinical services and supports (ontario.ca, updated 10 March 2026); ministry progress reports obtained through freedom of information; and ministerial correspondence of 10 September 2024. A human rights application concerning these events is before the Human Rights Tribunal of Ontario; the merits of that application will be argued there, not here. This article is the author’s account and commentary, not legal advice.

Next steps & sources

Continue with verified evidence.

Direct action pathways, primary source data, and contextual verification.

EvidenceInspect the sources, verification dates, and method behind the page.

Cited primary record

Primary source documentation and citation trail for this page.

Sources3
Last system verification: 2026-08-10. Next scheduled update: 2026-11-05.
About this pageSee authorship, freshness, trust signals, and ways to stay current.
Last updated: